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  • #31
    Macrobid

    Originally posted by Little Sunshine View Post
    I was interested in knowing more about the macrobid you take after intercourse. I am assuming it is b/c you are TERRIFIED of getting a UTI...as am I. At what dose and for how long do you take the macrobid after intercourse? I know, kind of personal so if you don't want to answer I totally understand. Lastly, is it safe to take this antibiotic even though you have IC? Thanks!
    I don't mind answering. In the last few years I just have had too many UTI's, 3 or 4 a year which doesn't help my IC at all! It doesn't seem to matter what I do. They seem to occur 2-3 days after sex even when I make sure to rinse thoroughly, go to the bathroom afterwards etc etc. So I asked my doctor if I could take them as a preventative and she said to take one before or after sex and maybe one the next day if I felt iffy at all. It works well but sometimes I get lazy about doing it cuz they give me a slightly upset stomach and then I get another one so I really shouldn't be that way.

    I mentioned it to my UG and he said it was reasonable to take one daily but I just haven't wanted to do that. He was all for me taking it daily for a number of months so it must be safe for IC. The nice thing about macrobid is it pretty much is only for the urinary tract so doesn't disrupt good bacteria much. I go ahead and double up on primadophilis reuteri on the day I take it to be safe but haven't had a yeast infection from it. I figure its probably better to take one or two a week then to get an infection and have to take alot more right?

    My dose is 100mg and I make sure to take it with food but I have a sensitive stomach to begin with. I have been taking the d-mannose too and think I will start taking that daily as it binds to e-coli if there is any in the urinary tract and then is peed out.
    Cindi


    Gelnique for frequency/urgency - works great
    Macrobid after sex
    Prilosec, continuous birth control pills
    synthroid .088mg, mucinex-d, restasis

    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

    IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
    AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
    AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    Great treatment flowchart on page 19 of the pdf

    Comment


    • #32
      Cindi

      Thank you for the useful information. I have also had a problem with UTI's. I would like to take EVERY precaution I can not to get one....especially on top of the IC. But for me, the IC feels like a TERRIBLE UTI that won't go away. I bit the bullet and called in my script for Elmiron (spelling). I usually have awful side effects from meds...but I am really keeping my fingers crossed on this one. I have been following the IC diet but definitely still have major discomfort and suppose it's time to start keeping a food diary. Though I have no idea how. If I have some upset, I am not sure how to pin point the problem food....especially if the upset doesn't occur right away. Ahhh...this all seems so complicated. I agree with you, it's probably better to be safe than sorry and risk running the chance of getting a UTI. I don't think some people understand just how much they hurt. It sounds as if you have found a system that works for you. I don't remember when you said you were diagnosed and I know that everyone is different....but honestly, do you have more good days than bad? I miss my life so much. I held out hope for SO long that they would fix my UTI or that they would rid me of what they thought were kidney stones. I feel like each new day is a test of my hope. Some days I have more of it than others. I wish I had a dollar for every night I have cried myself to sleep. I know it could be worse and I am thankful that it's not. But I feel like I am a shell of the girl I used to be. My mom has always told me that laughter is the best medicine. After 3 years of chronic back pain....I have become a firm believer in that. But right now it hurts to laugh. For me, that may be one of the saddest parts.

      Comment


      • #33
        I think the best way to do the diet is to only eat the OK foods for awhile until your symptoms seem a little better. Then slowly, like one food a day, do they TRY ITs. I usually feel a food/drink within an hour. Like yesterday I had a yogurt and immediately had more frequency/urg for a couple of hours. Not everyone feels it this fast so I guess I'm lucky that I can tell almost immediately.
        I was only diagnosed a few months ago but have had freq/urg symptoms for like 25 years following some UTI's!!! which started it all- on and off I should say. Its worse the last 10years, more pressure, only had to really watch my diet the last 6 months. I mean I stayed away from soda, cocoa, tomatoes, tea, citrus etc but not real diet sensitive. I feel like most days I have parts of the day that are good and parts of the day I am still bothered. Some days are good but then I cheat the diet which I know I shouldn't and regret it. Seems like the elmiron is helping already, less sensitivity.
        I have never had outright pain like it sounds like you have so I hope that improves for you soon. I know the diet really helps alot of people.
        Cindi


        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
        AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
        AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
        Great treatment flowchart on page 19 of the pdf

        Comment


        • #34
          I feel you on this and I already have the diarheaa, blood in stool and my god I certainly hope I do not lose my hair. I think I would just bottom out with that. I am really down about all of this because I feel I am just to young, but so many have this problem who are younger so I have been told.

          Comment


          • #35
            Wow, you poor thing. Are you supposed to keep taking it if there is blood? Has your doctor mentioned a way to deal with that and make it go away? Thats awful.
            Cindi


            Gelnique for frequency/urgency - works great
            Macrobid after sex
            Prilosec, continuous birth control pills
            synthroid .088mg, mucinex-d, restasis

            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
            Great treatment flowchart on page 19 of the pdf

            Comment


            • #36
              Little SunShine.. Just want to say I know exactly how you are feeling.. 5 months in bed has left me miserable.
              I have given up all exercise currently because of the pain.. I have gone from exercising for at least an hour everyday with lots of cardio and weights and feeling pretty miserable.
              Im just hoping sticking to the diet can reduce symptoms so I can get back I suppose

              Hannah x

              Comment


              • #37
                How have you been feeling?



                Have you started PT yet?
                Maria



                Current medication: Soul-searching

                Vitamin D and B, Green smoothies, infrared sauna use, walking, cleansing, still seeking doctors to help find THE CAUSE of this--autoimmune or infection.




                Comment

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