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Hi everyone! I am finally getting used to this diet. I do however miss my tea and coffee. But I don't really mind the mint tea. I make it iced during the day so I feel like I have iced tea. I also am having some hot coco made with carob power and some vanilla extract and alittle natural sweetner, I put alittle whipped creme on top. Not bad at all. Made some brownies with carob powder . I have to think positive, for that is the only way I can be happy and get through a day. I went off my Macrobid for a couple of days to see what happens and so far I'm okay. Praying for all of you and hoping that tomorrow is a better day.
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I truly believe in the IC diet.. I was on it for 5 years.. I have just now started eating and drinking things that are not on the diet.. Was just testing the water to say.. And I have done ok.. But it is still in the back of my mind if I should be adding things back.. As I added things back I started realizing that I did not have the taste for them anymore.. Like Mayo Ugh I use to love it. Now It just taste funny to me.. I tried some Ketchup and the same thing.. I think my taste buds have changed.. So you will get use to not having those things also..Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I really like your attitude about diet --- taking it on as a challenge is wonderful. I know sticking with my IC diet is the one thing that helps me most.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Good message Ronda!
Thank you for sharing that you can eat more now than you used to be able to. To me, that confirms that we can heal our bladder to an extent. Maybe we can't eliminate IC entirely, but if we can get to a point where we can include a few more foods (I can eat bananas, small amounts of tomatoes, and chocolate milk for example) we can increase our nutrition overall, even if it is for a short time.
Diet is something we HAVE control of! :-)Julie Beyer, MA, RDN
IC Dietitian, Patient Advocate, Speaker, & Author
Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!
Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.
You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:
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Other IC Diet Resources:
IC Diet Webinar
IC Diet Website
For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
Free IC Diet Booklet: What Can I Eat?
Confident Choices IC Diet Blog
IC Diet Newsletter
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