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Very important question for all who suffer from IC

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  • #1

    Very important question for all who suffer from IC

    Does anyone of you have white particles that look like small snowflakes after they pee? I have had them since the start. In addition, the last drops when I pee are white, the same thing you have when you have UTI? I have had these two symptoms since the whole thing started....I am looking forward to your responses.

    These particles can't be yeast because I have been tested for that from the start. I am pretty sure it is related with my condition since I had them from the start.
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  • #2
    yes i did. i think there was an earlier post about this that mentioned it may be small parts of the bladder lining or something like that. search the forums
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.

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    • #3
      Thanks for the reply. Do you still have them? If you don't anymore ...do you think the medications you are taking made them dissapear? I am new to the forum and tried searching for this but did not find it. Do you remeber under which section you saw the topic?

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      • #4
        I have small, really tiny ones. I only notice it when I pee in a cup (for example for a UTI test). I remember that post, too. Someobody said that maybe the inside of the bladder sort of sheds, possibly due to the IC inflammation. Sounds terrible. I'd like to know if people with a normal bladder get that too, or if it's just us.
        Update! Feeling much better these days and no longer on any meds!

        Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

        Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

        Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).

        [/COLOR][/SIZE][/FONT]

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        • #5
          People with normal bladders do have particles in their urine at times.

          Donna
          Stay safe


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          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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          • #6
            I also have what you describe but never really gave it much thought. Like Donna said normal people have them too. I never thought they had anything to do with IC. You can ask your dr if they have any significance to you.
            Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

            Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

            Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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