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Recently Diagnosed

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  • Recently Diagnosed

    My name is Cris. I'm 24 years old, and I live in Pennsylvania. I've had IC for nearly three years, although I wasn't formally diagnosed until last month. I currently take Oxybutynin and Elmiron for IC. I've also modified my diet to be IC-friendly. I am very glad that I have found this forum. Any suggestions on how to cope with the IC are welcome. Thank you!

  • #2
    Hi Cris. I am in my 20's as well so i understand what its like to be so young and stare down a lifetime of chronic pain. Are you male or female? I have some great diet tips for PBS and have found acupuncture amazingly helpful during flare up's. Attending a chronic pain management clinic has alos helped me manage my life from all sides- family, work, sex, diet, exercise, pscyhologically etc and I would highly recommend finding one near you. Im in australia and there is little support around for PBS. In fact not many people (including doctors) have even heard of it!
    I find that I have a stretching program that i do 3 times a day- its time consuming but i function so much better when i do it so its worth it.
    I gave up alcohol and cigarettes too- which has helped no end.
    I'll think of other things im sure down the track but good luck with it all.


    • #3
      I think it's great that you are following an IC diet. The latest food list is at the link in my signature below. It's printable and a huge help to me --- even after 36 years with IC I still consult the list if I'm looking at a new recipe or looking for something different.

      Warm welcoming hugs,
      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        Newly Diagnosed

        Thanks for your replies. I'm female.