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    Hello all,
    I was just wondering what are the teas I am permitted? Is just regular decaf tea okay? I see that the coffee should be decaf acid free..does the tea have to be acid free as well? I have had a heck of a time calling around this morning asking the health food stores and all they offer me is a coffee substitute made out of.....MUSHROOMS!!! Are you kidding me? Ummm, no thanks. I think I will order the coffee from here (has anyone tired it and loved it?? Does it taste like reg coffee?)
    I don't mind being caffeine free, not at all. When I was pregnant and nursing all the kids I drank decaf (THAT'S when you NEED the extra jolt! lol) But this acid free thing has thrown me for a loop.
    I have also found that no one in my city does pelvic floor therapy (internal kind) so I'm frustrated with that as well.
    Also, I think the Elmiron is actually making my bladder feel worse. Is that possible? And I'm also having a hard time swallowing.
    Any suggestions??? Thanks
    Canadian daisy

    Current Medications: doses go up and down..
    Dilaudid, Elmiron, Neurontin ,Flexeril ,Pariet, Ibuprofen, Ativan, Valtrex, Vitamin D, Caltrate, Premarin Vag Cream, Triamcinolone Injections in Perineum, Depo-Medrol for Trigger Point Injections, Biscodyl, Citromag, Milk of Magnesia, Xylocaine Jelly

  • #2
    I can have peppermint tea and chamomile and they don't seem to bother me... I am not a coffee drinker so can't help you there.
    I mentioned to my Dr about pelvic floor dysfunction and he kind of looked at me as if I had two heads lol.. so no help there really... I can't take Elmrion as it makes me sick and gave me diarhea.. wish I could take it thouhg.

    Sometimes I just drink hot water with honey in it..
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
    Tried DMSO instill- had 5 out of 6
    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6th 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Metformin (prediabetic)
    Sinequan (depression)

    Comment


    • #3
      There is a book titled The Better Bladder Book that lists a lot of different teas that are good for the bladder. Camomile tea calms all my muscles down including my bladder. I am also able to drink mint tea and find this helps with my digestion as well. Some of the herbal teas listed kind of taste like dirt but if you mix them and use some honey they are actually tolerable. Camomile is my favorite though due to the relaxing properties.

      Comment


      • #4
        The secret is to read the label --- if it really contains tea, then it's an acid drink and not good for IC. I drink herbal teas.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Oh.
          I love the regular black tea. I suppose that means I can't drink it since it's tea.
          Not too thrilled.
          Canadian daisy

          Current Medications: doses go up and down..
          Dilaudid, Elmiron, Neurontin ,Flexeril ,Pariet, Ibuprofen, Ativan, Valtrex, Vitamin D, Caltrate, Premarin Vag Cream, Triamcinolone Injections in Perineum, Depo-Medrol for Trigger Point Injections, Biscodyl, Citromag, Milk of Magnesia, Xylocaine Jelly

          Comment


          • #6
            I wouldn't try it for at least a while to see if it makes a difference.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              When my bladder calmed down I was able to drink decaff black tea if I took prelief with it, and also added almond milk. I wouldn't try this though if you are actively symptomatic.

              Comment


              • #8
                Originally posted by canadian daisy View Post
                Oh.
                I love the regular black tea. I suppose that means I can't drink it since it's tea.
                Not too thrilled.
                I have found that rooibus tea, while not perfect, is an acceptable substitute for black tea. It is a little sweeter and since it has such low levels of tannins it doesn't have that "dry" mouth feel that black tea can sometimes have. (sorry if that doesn't make sense, but I don't know how else to describe it)

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