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  • pyschological or functional?

    Is it possible to have a cystoscopy with completely normal results, and still have IC?

  • #2
    Yes. It is definitely possible.

    Donna
    Stay safe


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    • #3
      more information pls

      Hi Donna,

      is there anymore information you can give me as to reasons why this may be?

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      • #4
        Some people how have mild IC have normal cystopscopies but that doesnt mean you don't have IC. From my understanding IC is a diagnosis of exclusion meaning you dont have bladder cancer, UTI, or any other disease but you have symptoms of urgency frequency and pain. Every person is different which symptom is worse and there is also other symptoms. There is also a difference between oab and IC because most of us dont have incontinence problems. Sometimes the uro needs to do a cysto with hydro to see the glomulerations which is indicative of IC (at least this is what my uro told me) Was this an in office cysto? I was diagnosed without a cysto. My dr did the potassium sensitivity test but told me the first time he seen me that he knew I had IC. My new uro didnt need to do either to indefinitely tell me that I had IC.
        Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

        Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

        Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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        • #5
          Yes it certainly was in my case. A routine cysto does not rule in IC at all... what it does do is rule out gross, unusual bladder wall deformities such as a tumor, mass or severe hunner's ulcer. I've had two cystos that were entirely normal and that is routine for most IC patients.

          Jill
          Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

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          Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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          • #6
            I too had a totally normal cysto. Initially it gave me lots of hope that I could beat this faster and easier as surely my case must be mild. So far though I haven't been able to get into remission but the diet has taken the horrible edge off of the symtoms and I am not giving up.

            I can totally relate to you though. It's confusing when you don't have a bladder that's bleeding, red, ect. yet you sure feel like you do.
            Diagnosed w/ IC 12/2010. 3 small kidney stones removed in May of 2011.

            Currently taking: Elmiron (3 times a day-pour capsule into about 4 oz. of water and drink it down (with a little food on my stomach first), Valium (an eighth to a fourth of a pill as needed (rarely need this anymore), and Curelle Probiotics -one a day in the morning on an empty stomach.

            Tried: Urelle, Prelief, Oxybutynin, Urogesic Blue, antihistamines, nuerotin, flomax, vesicare, enablex, cystoprotek, prozac, quercetin w/ bromelaine, marshmellow root tea, garlic pills, fish oil, magnesium, Vitamin D-3, Boron, B-12 w/ Folic Acid drops. Homeopathic allergy shots for food and inhalents.


            **Elmiron and Culturelle Probiotic have helped me get a better quality of life. I've been on the Elmiron for 6 months so far and am feeling so much better and can eat and drink so much more!

            **I love the ICN - it has been a blessing in the midst of this evil curse!!!

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