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Finally diagnosed after a year of symptoms!!

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  • Finally diagnosed after a year of symptoms!!

    Hi,

    I have been on these boards for a good few months now. I have suffered from frequency and now horrible on/off burning since April 2010. Have had an in office cysto which showed nothing and I really didnt want a hydro just incase it made me any worse. So... I was hoping that I might be diagnosed based on symptoms. But I thought that might not be possible- especially in te UK where ic is not recognised to begin with..

    Well, I had a urodynamics test yesterday and I was convinced I would be misdiagnosed with just oab instead of ic or even ic & oab. It turned out that my bladder is not overactive. This meant that my uro was willing to diagnosed me based on symptoms!! wooo finally!!

    Im not happy to have ic but I knew it was that from ages ago and just wanted someone to listen to me. This uro has been amazing and has started me on uracyst instills next week. Hope they work but I am just glad someone is finally helping me!!

    I am in a good mood for the first time in ages and I see a small light at the end of the tunnel now!

    Thanks for listening,

    Sarah

  • #2
    Sara! Sorry to hear you have IC I was just diagnosed on April 27th 2011 also. I wish you the best of luck and your treatment plan moving forward. So grateful for the site for us all to comfort and help each other!

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    • #3
      Thank you!

      I wish you luck too. I know-this site has been great, makes us feel less alone!!

      xx

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      • #4
        Somehow, it was a huge relief when I was diagnosed --- I still remember most of the conversation with my uro back in 1975.

        Now you can begin with treatment and hopefully will feel better soon.

        Warm healing thoughts,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          Sorry you have IC but, at least your Uro is starting a treatment plan. I hope all goe's well for you keep in touch.
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