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  • norfloxacin

    I saw a specialist and she wrote on my notes I have Painful Bladder Syndrome (same as IC)

    While I am on the waiting list for a cyctosopy I am supposed to be taking the drug norfloxacin for 3 months.

    SHe said sometimes a bug gets under the bladder lining and it wont show up on any of the tests. And that I need this drug to get rid of it if I have it.

    I read up on the drug and its pretty heavey duty nasty side effects.

    I was wondering if anyone has gone on this drug and gotten releif from it.

  • #2
    You mean there is urologist who goes against current thinking and thinks IC can be a deep seated infection that does not show up? Wow! Can you dig a little deeper with this doc and find out how many IC patients have really responded to this treatment. Do they get cured? If I thought it would fix my IC I would do it. What are your symptoms if you have not posted that already?
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.


    • #3
      Yeh thats what she said to me, that sometimes a bug can get under the lining that doesnt show up on the usual tests. I vaguely remeber reading about this possibilty in a cystitis book years ago (wasnt written by a doctor though). But the author said when get a cystoscopy they should take biopsy to check for these things.

      And while i'm waiting for the cystoscopy (which takes months on the public health system) I am supposed to take this drug to see if it helps.

      I didn't get to ask how many people find releif with it. And I dont get to see the specialist again until after the cystoscopy. (public health system you dont get to speak to the specialists much).

      My Symptoms:
      about 8 years ago started getting infections, on and off pain.
      gradually got more frequent
      about 5 years ago had a bad about of pain. hard to sleep, movement hurts.doctors found nothing.that went on for about 6 months and then eased up
      the last few years it got gradually worse and worse- more frequent bouts and more painful. I could manage though and adjusted my behaviour to not get as much pain, such as not going out in the cold, going to the toliet lots etc.
      till last year, got really bad and the had a few months had near constant pain (though its a bit better now) which got me to see the doctors wanting a specialist.
      cant go on trains buses for long it hurts way too much
      cold causes pain
      not drinking gallons of water causes pain
      some foods set it off i think, which happens pretty suddenly but i havent figured out what exactly. I tried giving up coffee when it was realy bad a few months back and that seemed to help.
      mostly pain symptoms in uretha and bladder and generally down that area
      frequency- when its bad i always want to go, even when I dont need to go. sometimes going makes the pain worse with burning, sometimes its a releif
      not leakage, only once a few months ago when the pain was really bad got like spasms when going for a 10 minute walk.
      its currently not as bad as back then but still hurts.

      Your idea is good to try find out more about the drug and how successful its been.
      Maybe the doctor just thinks i have an infection and not IC? But she wrote painful bladder syndrome on my notes, but ive not had a cystoscopy yet
      Last edited by MidnightMoon; 05-27-2011, 10:55 PM.