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  • Chicubs1
    replied
    Thanks for the support

    Appreciate words of encouragement, I admire your enthusiasm and imagine your three year old is a big motivator for you to stay positive, gratitude for the blessing we have in life is invaluable

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  • PipersMommy
    replied
    Originally posted by Chicubs1 View Post
    Thanks for the kind words, yes I am on IC diet but struggle with the no caffeine part, I find stress management and positive thinking help as I believe there is a direct correlation between mental and physical health, I utilize positive affirmations, focus on what I am grateful for as well deep breathing, aromatherapy and classical music
    Hi there! I'm newly diagnosed with interstitial cystitis too! I have found I've gotten so much support on here and that's helped almost more than anything I hope you find some relief for your symptoms soon! I struggle every single day with the caffeine too believe me I'm having a very hard time getting up and going with my 3 year old without my morning coffee so just know you aren't alone!!! Again, welcome and I hope everything starts getting better for you soon

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  • Chicubs1
    replied
    Embarrassing question

    Thanks, do you happen to know of a brand of sanitary napkin that tends to not be irritant for IC patient? My lastest challenge.....

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  • flowerangela
    replied
    chicubs those are some excellent strategies i have used also.

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  • Chicubs1
    replied
    Thanks for the words of encouragement

    Thanks for the kind words, yes I am on IC diet but struggle with the no caffeine part, I find stress management and positive thinking help as I believe there is a direct correlation between mental and physical health, I utilize positive affirmations, focus on what I am grateful for as well deep breathing, aromatherapy and classical music

    Leave a comment:


  • Jinny Jean
    replied
    It gets better!! I thought my life was over. Be patient with your body and treat it really well!! Most people on here find something that helps them survive the bad times and get back to whatever thier `normal`is

    Good luck

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  • Linda May
    replied
    We all here understand what you are going through, lets pray for a cure soon. Are you sticking with the IC diet?

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  • Chicubs1
    started a topic Newly diagnosed

    Newly diagnosed

    I was diagnosed with IC a month ago after being treated for six months with what I thought was recurrent UTIs. First Rst treatment today caused massive pain, had to leave work. Elmiron seems to help a bit, take three times a day. On top of this I have a pacemaker, low blood pressure, Tmj and elevated Epstein Barr. I am 33 and tired all the time as well as achy, some mornings I feel like I have been hit by truck, my mom has fibromyalgia so I am wondering if I have. Positives are I love my work, have supportive husband but need more support from those who have been through it.
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