Announcement

Collapse
No announcement yet.

Newly Diagnosed

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Newly Diagnosed

    Hi everyone:

    My name is Ruthie, and I was formally diagnosed with IC today after cystoscopy. I have been symptomatic for six weeks, although the latter two weeks were not as intense in pain. I had five urine cultures done throughout various trips to my primary care MD as well as the ER. Only two of those showed an infection, but when I was most symptomatic they were clear.

    Saw a urologist, and I had an instillation two weeks ago, and was scheduled for cystoscopy a week later. I had the worst reaction to the instillation - intense burning and a severe urge to urinate. Has anyone else had that problem? A week later I returned to the specialist, and I then had an infection. I finally had my cystoscopy today, and definitely experienced the burning and severe urge after urinating the first time. I am a little more comfortable now after taking Uribel, but definitely still feel the discomfort. Does anyone know how long this will last?

    I have really tried my best the past three weeks to follow the IC diet, which I think is helping. Does anyone have any other recommendations? I am going on vacation to Hawaii in three weeks and I'm really hoping to be feeling better.

    Thank you so much for your help. I greatly appreciate it.

  • #2
    Welcome, you may already know that we are all different, I hate to say it but I was in severe pain after my cystoscope and had to have a rescue instill. Some of us have no pain at all. If you continue to have pain you may want to call your doctor. I hope you find relief soon.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily

    Comment


    • #3
      Hi there:

      Thank you so much for the response. My doc actually did an instill right after my cystoscope, so hopefully tomorrow will be a better day.....

      Comment


      • #4
        Good Morning, checking in to see how you're doing today?
        IC diagnosis 3 weeks ago.
        Vesicare 10 mg once daily
        IBS and Gerd-Zegerid
        IC diet
        Elmiron 100 mg three daily
        Hydroxyzine 25 mg at night
        Amitriptyline 10mg at night
        Diovan 60/12.5 daily
        Topral 50 mg daily
        Zoloft 100 mg at night
        Klonopin .5 twice daily

        Comment


        • #5
          Good morning,
          I am feeling better today. Still sore and burning but definitely not as intense as yesterday. Increasing water intake seemed to help. Thank you for following up.

          I hope you have a great day.

          Comment

          Working...
          X