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  • Memory loss?

    I am 39 years old. I was diagnosed with IC back in mid-March, 2011 after suffering symptoms for at least a year. I received concrete confirmation today that I have been suffering profound memory loss, possibly for a while. (It’s way too complicated to explain how I found this out on this forum—just trust me.)

    This goes WAY beyond misplacing my car keys. My memory loss is so bad that I have been visiting stores—which involves DRIVING to and from the stores—and buying things that I do not need, even buying multiple, identical items, only to completely forget that I EVER drove to and visited these stores to begin with. My boyfriend has frequently been exasperated with me, swearing that we have had certain conversations, watched certain movies, etc… and I have absolutely NO memory of doing these things. I have completed tasks at work and have no memory of them. It’s getting worse.

    Could any of the medication used to treat IC be contributing to my memory loss? My memory started to fail long before I was officially diagnosed, which is extremely frightening as I can’t completely blame it on my IC medications. However, my memory loss has been getting worse every day since I started taking the IC drugs. Has anyone else experienced this?

    Medications: Elmiron 3 times a day
    Hydroxyzine Paomate
    Amitriptyline (stopped taking 3 days ago)
    Urocit-K
    Prelief
    Cystoprotek
    Quercetin
    Adderal (for hyperactivity)
    Risperdal (depression)

  • #2
    Please talk with your doctor about this --- there are some medications on your list that "might" be contributing to your problem, but you need to know for sure what's going on.

    Sending gentle hugs,
    Donna
    Stay safe


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    • #3
      I'm older but my memory is very bad. I attribute it to on and off pain for 40 years or to getting dementia. IC has affected my mind for sure. Any drug that slows down signaling probably affects our minds. I buy something at the grocery and come home and see I already have it from a few weeks ago. BAD!
      I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

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      • #4
        memory loss you need to see your doctor asap.
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        • #5
          This must be terribly frightening for you! -At least it would be for me!

          I agree, you need to discuss this with your doctor. Medications can have a variety of side-effects, but this sounds like something where you need to find out for sure what's behind your lapses. I hope you can get some answers on this soon!

          Vicki
          "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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          • #6
            bcmcd11 you are very young to have such strong memory loss. Please take others advice and talk to your Doctor right away. This is serious. I am worried about you. Keep in touch, let us know how things are going. Hugs, Ziggy

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            • #7
              That is strange. I do hope you find answers soon! It sounds scary too. If you ever feel like driving is unsafe for you, I urge you to think about asking around for rides. Sometimes, when I'm in a nasty flare I take a lot of medicine and the doctors say I am OK to drive, but I know I'm not and make my friends and family help me out :P. I know this easier said then done, esp. when everyone is so busy, but just a thought. I hope you find some answers and feel better soon. Keep us posted.
              Have had IC symptoms since childhood, but did not seek serious treatment or become diagnosed until I was in college.

              24 yo F

              I've had a cystectomy with an Indiana Pouch. It was a success and has helped my symptoms and pain immensely.

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              • #8
                wow im 24 and somewhat suffering from this. i think its from all the pain meds from ic. i would think your antihistamines, antidepressant,Amitriptyline,and adderal would cause these symptoms. check back w/ who diagnosed your memory loss to be sure.
                Newly IC diagnosed as of February 2011.

                Medications I'm on that seem to work:
                Zoloft- one once a day
                Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                Failed Meds:
                Elmiron-after 4 months,digestive side effects got to be too much
                tramadol-allergic
                DMSO treatments(5-6)
                probiotics

                THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                AROMATHERAPY-candles,incense
                Village Naturals Aches and Pains Peppermint Bath Salts
                Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                ACUPUNCTURE/HERBS
                Significant pain relief so far.

                MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                Add me on facebook Angela Hasic

                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                Lord, make me an instrument of your peace;
                where there is hatred, let me sow love;
                when there is injury, pardon;
                where there is doubt, faith;
                where there is despair, hope;
                where there is darkness, light;
                and where there is sadness, joy.
                Grant that I may not so much seek
                to be consoled as to console;
                to be understood, as to understand,
                to be loved as to love;
                for it is in giving that we receive,
                it is in pardoning that we are pardoned,
                and it is in dying [to ourselves] that we are born to eternal life.

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                • #9
                  I have had IC since I was 13 I was not diagnosed until 2010 at the age of 43. I have UTI's monthly. I have had 2 of the Distilation surgeries, I used to go to the office and do the cocktails but they were too painful..anyway long story short I have had horrible memory issues for a few months now( I just had a distilation done in Aug 2011). I make mistakes at work all day due to the memory issue, i have messed up doing the bills etc. Its really beginning to take a toll on me with the everyday pain and the memory issues along with daily stress of kids, work etc I am at my wits end i just want to crawl in a hole and hide from everyone

                  I take elmiron and vesicare
                  Sandy Shadix

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                  • #10
                    Maybe it is not one medication but the combination. please like everyone else said get checked out.

                    Sue

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