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Just diagnosed. Not sure....

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  • Just diagnosed. Not sure....

    Hi All.

    I've been lurking around for a week or two to get a better understanding of other peoples symptoms.
    This seems like a great community and resource!

    I originally started having lower left sharp pelvic pain shortly after kidney stone surgery a few months ago. Then a few times a week, I would wake up in the morning and void - only to be followed by a horrible left pain.
    As a couple of months went by, on the first day of ovulation, I would wake up, go to the bathroom and then just as I finish - HORRRIBLE pain - to the point where I could not stand up or move.

    I had an array of tests (pelvic ultrasound, CT, xrays, blood tests, urine samples, pap smears) and to my surprise, there was not a massive ovarian cyst like I imagined there would be. No urinary stricture from the kidney stone surgery.
    They did find some bacteria in my urine and I was put on antibiotics.
    Which didn't do anything. Also the latest ultrasound shows an enlarged cervix.

    Anyway, when I went back to the gyno still complaining of lower abdominal pressure, INSANE bloating, constipation, pelvic pain, pain after voiding, he gave me a pelvic exam and told me my bladder was extremely tender.
    Followed by this, he gave me that Potassium test which hurt pretty bad.
    He did not administer any further tests because I'm currently without insurance and said he was confident that I had I.C.

    I was kind of skeptical since I didn't have the urge to urinate, didn't urinate frequently, no burning with urination. I told him I thought I probably had endo since my periods are way out of control and come and go when they want.
    But he didn't wanna hear about it.

    Last week (two days after the potassium test), I was up until 4:30am because I had to go to the bathroom 7 times that night and my bladder started aching/burning. It was the first time I actually had that symptom.

    Anyway, today I'm going to ask my urologist what he thinks about my gyno's diagnosis. His office his more flexible with uninsured patients so maybe they'll do a cysto. (?).

    I still think there's something wrong with me female-wise.
    I see endo and IC sometimes come hand and hand.
    Once I get health insurance, I will see a different gyno.

    Anyway, I'm rambling.
    Anyone else have symptoms like this? Or start out this way?

    Nice to meet you all.

  • #2
    You may indeed have IC and another issue. My experience is that my "girl parts" and my bladder live next to each other and a problem with one will set the other off. When my cramps start when I get my period, I usually get discomfort in my bladder, too.

    I don't have frequency issues unless I am in a severe flare. Otherwise, I just have pain. So, you can have IC and not have problems with frequency.

    However, the potassium test is no longer being recommended for the diagnosis of IC (per the latest American Urological Association guidelines) because it does sometimes result in false positives and false negatives. (And it really hurts!) I think talking with a urologist is a good idea. I hope you get a diagnosis you feel confident in.

    40 y.o. mom, wife and marketing manager

    "Il faut manger pour vivre, et non pas vivre pour manger." -- Moliere ("One should eat to live, not live to eat.")

    IC symptoms began Feb 2010; diagnosed Mar 2010


    Elmiron 3x day; Elavil 25 mg/day; Prelief (when I remember!); Benadryl and Prosed DS as needed for flares

    Acupuncture 2x/month; yoga; IC Diet; meditation and breathing exercises for stress; heating pad for flares