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Doctor told me "You just need a new body"

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  • Fluffersmom
    replied
    Anemia/Sjogren's/Neurologist

    Thanks for the reply. I have thought of Sjogren's before, as I always had very dry eyes and read that the leg tingling was a symptom [who would have thought!!]. I have anemia. Thanks for the good advice. Looks like I need a neurologist. Glad you found a solution. This exchange is a perfect reason why forums like this are so valuable.

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  • HKay66
    replied
    Some Doctors really don't get it - sorry you have to deal with that!!
    A neurologist would be very good to see.
    I also had a lot of tingling, vibrating sensations in my muscles, hands, feet, etc. Neuorogist was the ONLY dr out of so many I had seen (with all my issues that started with ic) that thought to check my feritin (iron levels) and
    mine were rock bottom and that really contributed to these symptoms.
    Stress also contributed to these symtoms along with the fact that I also have sjogrens. Once I started on iron supplements these symptoms really improved.
    My primary dr only wanted me on antianxiety meds - never took into consideration anything else. That would have never taken care of my iron problem!

    Hope you have success getting to the bottom of this and getting well!!!

    Leave a comment:


  • Linda May
    replied
    Yea, I know what you mean some doctors with no heart. We are nothing more than cattle going down the line thwe more served the more money.

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  • Fluffersmom
    replied
    Good Luck

    Good luck navigating your way through the health care system-sorry to hear you may have fibromyalgia.

    Leave a comment:


  • Fluffersmom
    replied
    New Doctor

    Sounds like you need a new doctor. I don't understand how these "professionals" get away with that sort of statement.

    On a serious note, one of the diseases related to IC is Sjogren's syndrome. One of the minor symptoms is tingling in lower extremities, but not upper. Prime symptom is dry eyes. If you have dry eyes (usually you can tell but one sure way is if you have a stabbing pain in your eye), you may have this syndrome. Just a thought.

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  • Claire_A
    replied
    i had these symptoms too

    hi there, i had burning in my hands and feet that started shortly after ic and vulvodynia. I was put on ami 25mg. I came off 6 weeks ago cold turkey just to see as it was controling the nerve pain but not my v or ic. My hands and feet went nuts for the first few days and i have not had a aprob since. I was on ami for 5 months. Hope this is useful. Ps your doc sounds like he needs a New brain, Insensitive idiot. Chin up x

    Leave a comment:


  • Chicubs1
    replied
    Update

    Blood work showed elevated Epstein Barr virus, sending me for an EMG and to a rheumotologist, they are pretty sure symptoms are of fibro

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  • Chicubs1
    replied
    Thanks for the feedback!

    Appreciate the suggestions, I saw a neurologist last year as I had some numbness and tingling in hands and feet and ear pain, at that time I had just gotten over mono and had elevated Epstein Barr levels. I read that elevated Epistein Barr has been linked to both IC and fibro. Also have been told about the correlation between tingling, numbness and anxiety issues. Seeing pcp for follow up on lab work later this week and then go from there regarding A second neuro referral. Thanks again!

    Leave a comment:


  • bubbe1
    replied
    new body

    Originally posted by Chicubs1 View Post
    Went to the pcp office and saw a fill in doctor and was in tears. Have been experiencing tingling and numbness in my hands and feet along with chronic back and neck pain. Wanted advice, some direction. Accused of wanting simply pain meds which I said was not the case. After reviewing my chart, doctor said given my age and all my medical problems I just " needed a new body" Ouch! That comment cut like a knife. Trying to keep my chin up and stay positive, even thru my current IC Flare. Prayer helps as does support from family, I am learning that you don't let one doctor get you down!

    Good grief!

    I think I would have been tempted to ask the doctor if he happened to have a new body I could use.

    Sorry you're having such a hassle on top of not feeling well. I do agree with Donna that you need to consult a neurologist. Numbness and tingling can be sypmtoms of a pinched nerve, so it would be a good idea to check it out.

    Let us know how it goes.
    Laurie

    Leave a comment:


  • Tuckersmom
    replied
    I agree with Donna that you do need to follow up with getting your symptoms checked out by a neurologist --- however, all of the symptoms you described are also the symptoms of anxiety/panic disorder. Stress can do major things to our bodies, and will manifest itself in physical symptoms, although it originated in the brain.

    Leave a comment:


  • ICNDonna
    replied
    Have you seen a neurologist about the tingling and numbness? If not, I think it would be a good idea.

    Warm hugs,
    Donna

    Leave a comment:


  • Chicubs1
    started a topic Doctor told me "You just need a new body"

    Doctor told me "You just need a new body"

    Went to the pcp office and saw a fill in doctor and was in tears. Have been experiencing tingling and numbness in my hands and feet along with chronic back and neck pain. Wanted advice, some direction. Accused of wanting simply pain meds which I said was not the case. After reviewing my chart, doctor said given my age and all my medical problems I just " needed a new body" Ouch! That comment cut like a knife. Trying to keep my chin up and stay positive, even thru my current IC Flare. Prayer helps as does support from family, I am learning that you don't let one doctor get you down!
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