Sorry I am new to the forums and can not figure out where to post this question....
Thank you Donna. I had a brain fog and posted it originally under the wrong name....
I was diagnosed about 17 months ago with IC but have been in denial. I hyave posted 2 other threads in this support page so I am sorry If this is the wrong spot for this ?....
I am working on healing myself and will soon be going to yet my 5th urologist to have a final cystoscopy done. I had one done at my first diagnosis but the last dr just did a potassium resistance test but did not go in and look.....
So has anyone had a potassium resistance test done and it be negative. The test hurt but I told the dr that I am in a 24/7 flare with constant, nagging, horrendous pain - i have horrible bladder pain/burning like a constant horrid uti, then i have urethal pain, and what i believe are bladder and uretha spasms....the placebo hurt my uretha even though i think they might have numbed part of it - so it hurt going in then i had a bad burning above my pubic bone where I usually dont hurt....
anyway. she said it was a negative test and was going to treat me with bladder instillations and pelvic floor therapy but i cant do it. i cant take the healing from 8 weeks of a catheter being put in me plus the time i have to take to get out of work...
so i am trying on my own with diet and aloe vera.
has anyone else have a diagnosis of IC with a potassium resistance test?
Thank you Donna. I had a brain fog and posted it originally under the wrong name....
I was diagnosed about 17 months ago with IC but have been in denial. I hyave posted 2 other threads in this support page so I am sorry If this is the wrong spot for this ?....
I am working on healing myself and will soon be going to yet my 5th urologist to have a final cystoscopy done. I had one done at my first diagnosis but the last dr just did a potassium resistance test but did not go in and look.....
So has anyone had a potassium resistance test done and it be negative. The test hurt but I told the dr that I am in a 24/7 flare with constant, nagging, horrendous pain - i have horrible bladder pain/burning like a constant horrid uti, then i have urethal pain, and what i believe are bladder and uretha spasms....the placebo hurt my uretha even though i think they might have numbed part of it - so it hurt going in then i had a bad burning above my pubic bone where I usually dont hurt....
anyway. she said it was a negative test and was going to treat me with bladder instillations and pelvic floor therapy but i cant do it. i cant take the healing from 8 weeks of a catheter being put in me plus the time i have to take to get out of work...
so i am trying on my own with diet and aloe vera.
has anyone else have a diagnosis of IC with a potassium resistance test?
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