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After 14 years...

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  • After 14 years...

    I began having severe bladder infections just when I was five. 2 years ago, (when I was 15), I went to my first urologist. He decided to do a cystoscopy and stretched my urethra, because he said all I had was overactive bladder. Just a few weeks after that, I had another infection. So for about 2 years I just treated the frequent infections with Bactrim, pyridium, and lots of water. Well earlier this year, I had a horrible flare up. Over the course of two months I went on 4 rounds of antibiotics and had 3 infections. I decided to go to another urologist. After viewing my history, he decided I either had overactive bladder, (which he treated me for first, since it's easier to treat), or IC. After the OB medicines didn't work, he scheduled me for my second cystoscopy. Last Monday, I had my second cystoscopy. He went in and did the whole distension thing, and he found bleeds in my bladder, which are signs of IC, so he injected my bladder with the chloropactin. Just 3 days afterwards, I'm not having any problems, and am trying to be optimistic with results I'm just happy that after 14 years, they finally figured out what was wrong! Has anybody else had the chloropactin treatment?

  • #2
    This is one that isn't used much any more, but some ICers did find it helpful. I'm glad you're doing well.

    Warm welcoming hugs,
    Stay safe

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    • #3
      what does clorpactin do?

      If you have gotten better from this don't forget to remind us about it now and then. What was the doctor's theory on using this cloropactin. Did the doctor think there was some deep seated infection?
      Last edited by purpleviolet; 07-21-2011, 01:02 PM. Reason: spell
      I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.


      • #4
        I really don't know as to why he chose to use the chloropactin. I know that's what he commonly uses for IC patients. I don't know if he thought there was a deep-seated infection. I go back to my follow up appointment in a few weeks. While I was in recovery, the only thing he told my mom was that my bladder had bleeds in it, and the chloropactin would help coat/sooth it. I also have trouble going frequently, so he said it should help relax it more. It's only day 3, so I'm hoping it won't disappoint


        • #5
          I'm glad you got some relief. I hope it lasts.

          Let's keep praying for a cure.
          IC Symptoms began in early 2001
          Divorced : Sept 2002 (Partly due to IC)
          Diagnosed with IC in April 2004
          Most recent injury - Rupurtured Left Achilles Tendon
          Wed Jan 28 2009
          (Ice Storm Accident)
          2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
          Other Injuries
          Broken Left Ankle - July 2004 ( fell off ladder)
          Broken Left Ankle (Again) - May 2005 (car accident)
          Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

          CURRENT MEDS
          Elmiron, Pyridium