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  • #1

    kidney pain

    Does anyone have sever kidney pain with their IC?
    Tags: None
  • #2
    Did you get checked for kidney stones?
    I have PFD and I have a lot of sharp pain in my lower abdomen... but if you feel like its your kidneys that hurt, I would look into that just in case.
    Daisy
    Age: 20
    Pelvic Floor Dysfunction

    Medicine
    Valium- .05mg three times a day
    (Lowered dose because it made me panic at night)

    Other
    Physical Therapy- Didn't started yet

    Comment

    • #3
      I have been checked for kidney stones, and don't have any. My latest flare was triggered by a pretty bad kidney infection though. The infection is gone, but every time I have a flare that is one of my top complaints. I just wondered if anyone else has this problem. My little brother has IC and has a lot of kidney pain also, so maybe we are just messed up. What is PFD? And can you tell me what instillations are. I have seen them mentioned, but I don't know what they are. Thanks

      Comment

      • #4
        PFD (Pelvic Floor Dysfunction), I wasnt diagnosed with IC... so im in a slight different boat then you. I get a lot of abdominal pain.. but its all side effects of my PFD.
        But kidneys are a different area... I wish I could be more helpful, but I would go to the doctor and try to find out exactly why your in pain there.

        I havnt had instillations... so I dont want to give false information!
        I would go to the treatment section (Treatments For Moderate Interstitial Cystitis IC/PBS) and see what people say under there, or post a question about them there, your more likely to get good answers!!

        I hope you feel better soon.
        Daisy
        Age: 20
        Pelvic Floor Dysfunction

        Medicine
        Valium- .05mg three times a day
        (Lowered dose because it made me panic at night)

        Other
        Physical Therapy- Didn't started yet

        Comment

        • #5
          Hi, Cassidy ~ When you say kidney pain, do you mean in your back? I have many times had a pain in my right side, back when my symptoms flare. My PA ordered an ultrasound which did not show any abnormalty so we're thinking it's just part of the IC mystery.

          The important thing is that you discuss this with your doctor again to rule out any kidney problems again this time.

          Instillations are combinations of medications (depending what your doctor recommends) that are instilled into the bladder through the urethra with the hopes that it will calm/soothe the bladder or as some may say "temporarily repairing the GAG layer".

          Sure hope you find relief soon.

          Blessings,
          Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

          11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
          8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
          8/2010 Surg gallbladder
          TREATMENTS (updated 4/15)
          IC Diet since 8/2009 (Able to vary 4/15)
          Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
          Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
          Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
          *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
          Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
          PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

          Comment

          • #6
            I get kidney pain with my flares. Worse on the right hand side than the left. I also get general back pain. When my kidney hurts, it feels like someone punched me in that spot and I feel all bruised and tender. Certain movements make it worse.

            For me, though, I've had several kidney infections and have some scarring in my kidneys, so my dr. does a kidney ultrasound every year.

            In reading the boards, I've also seen others who complain of kidney pain. Heat does wonders for mine - heating pad and hot baths are my best friends.

            Hang in there and let us know if you have more questions.
            Conditions:
            IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

            Medications
            Elmiron 3x day
            Trazadone at bedtime
            Tramadol as needed for pain
            Monthly B-12 injections
            Continuous Birth Control (even though I had a hyst, to control cysts)
            heating pad, hot epsom salt baths, strict IC diet
            Interstim implant 9/11
            Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

            Failed Bladder Treatments
            Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

            Comment

            • #7
              Re: kidney pain

              Omigod KathiB, I know exactly how you feel!

              I have IC and I woke up yesterday with horrible lower-back pain (which I usually get during flares but never this bad or suddenly), accompanied by pain in my right flank and, like you say, a feel like I'd been punched in the right kidney-all swollen and tender.

              These are not typical symptoms for me and I'm quite worried, but maybe it's all part of the IC bundle? eek!

              Comment

              • #8
                Re: kidney pain

                Originally posted by laurita.s View Post
                Omigod KathiB, I know exactly how you feel!

                I have IC and I woke up yesterday with horrible lower-back pain (which I usually get during flares but never this bad or suddenly), accompanied by pain in my right flank and, like you say, a feel like I'd been punched in the right kidney-all swollen and tender.

                These are not typical symptoms for me and I'm quite worried, but maybe it's all part of the IC bundle? eek!
                Hi, Laurita.s ~ My first thought is that you may have a kidney infection and should really have that checked out, especially since your usual symptoms aren't this severe.

                I still have the pain in my right side every so often and it definitely feels like kidney but I've had it checked and always negative.

                Please give your doc a call....at least if it's negative you can rest a little in that area. Do hope you start feeling better and have a nice week.

                Ginger
                Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

                11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
                8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
                8/2010 Surg gallbladder
                TREATMENTS (updated 4/15)
                IC Diet since 8/2009 (Able to vary 4/15)
                Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
                Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
                Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
                *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
                Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
                PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

                Comment

                • #9
                  Re: kidney pain

                  I agree with Ginger --- any "change" or worsening of symptoms warrants a call to your urologist.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment

                  • #10
                    Re: kidney pain

                    Thanks for the tips guys

                    I called my urologist and they told me that they couldn't see me until May (ummm...what if I have an infection??) BUT they did tell me that it'd go 'faster' (whatever that means) if I call my GP first, so I did and I'm seeing her tomorrow morning-hopefully she helps! She doesn't know a tonne about IC (but agrees it exists and all that) but is very nice. The wait times in Canada are bonkers, oy vey!

                    Comment

                    • #11
                      Re: kidney pain

                      I'm new here, but just wanted to chime in as I get back, left kidney pain with other IC symptoms. In fact, I have been complaining about what I now know to be my intermittent kidney pain for the last 2 years. I am in a major IC flare right now (as I've recently learned), and my kidney pain has been exacerbated. My neuro-uro ordered an ultra-sound of my kidneys just to be sure there were no stones etc. She told me that many of her patients also complain of this kind of pain with an IC flare. So, you are not crazy or abnormal.

                      Comment

                      • #12
                        Re: kidney pain

                        I always get back pain near the kidneys when I am in pain. But the rule out the kidneys are fine it's just flare up you might wanna talk to your uro like Donna said. It best get checked out. Sending blessings your way.🙏

                        Comment

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