Hello,
I was just diagnosed with IC this week. They say it's a 99.9% chance that's what it is. For the past 2 weeks I have been in and out of clinics and ERs all this time for pain and frequency of urination. It started out with a home UTI test which came back positive. So I went to the Dr. where they said it was positive also and put me on Bactrim (which swelled my Urethra) then Cipro (which sent me to the ER because my throat swelled up). They then did a urine culture (I have had 5 in the last 2 weeks all negative). I have had 2 bladder and kidney ultrasounds - negative and a CT scan - negative. Also all blood tests come back normal. I finally was referred to an Urologist from the ER. He's a 'progressive' doctor in the field (Dr. Davis) so I did have some hope. Tomorrow I am going in for a Cystoscopy.
Here's my question:
Will this ever get better? I am on some pain meds (Nur-something) and anxiety pills and Vesicare (all for a week). I have also been drinking the baking soda mixture daily. I have found little to no relief. I still can't sleep more than 1/2 hour without waking up needing to pee. I am so miserable. I can barely eat enough to keep it so my meds don't make me sicker. I read your stories and short of pure remission I don't know how you do it. I wish I had pain more than the frequency I deal with. No one seems to be able to help me with that one. Any ideas or suggestions? I can't go on living like this.
ETA: I LOVE Fast Food and Red Bull. I know those are big no-nos with the IC diet. Is it possible to have those occassionally or am I banned from them forever?
I was just diagnosed with IC this week. They say it's a 99.9% chance that's what it is. For the past 2 weeks I have been in and out of clinics and ERs all this time for pain and frequency of urination. It started out with a home UTI test which came back positive. So I went to the Dr. where they said it was positive also and put me on Bactrim (which swelled my Urethra) then Cipro (which sent me to the ER because my throat swelled up). They then did a urine culture (I have had 5 in the last 2 weeks all negative). I have had 2 bladder and kidney ultrasounds - negative and a CT scan - negative. Also all blood tests come back normal. I finally was referred to an Urologist from the ER. He's a 'progressive' doctor in the field (Dr. Davis) so I did have some hope. Tomorrow I am going in for a Cystoscopy.
Here's my question:
Will this ever get better? I am on some pain meds (Nur-something) and anxiety pills and Vesicare (all for a week). I have also been drinking the baking soda mixture daily. I have found little to no relief. I still can't sleep more than 1/2 hour without waking up needing to pee. I am so miserable. I can barely eat enough to keep it so my meds don't make me sicker. I read your stories and short of pure remission I don't know how you do it. I wish I had pain more than the frequency I deal with. No one seems to be able to help me with that one. Any ideas or suggestions? I can't go on living like this.
ETA: I LOVE Fast Food and Red Bull. I know those are big no-nos with the IC diet. Is it possible to have those occassionally or am I banned from them forever?
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