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cystoscopy yesterday frusturated

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  • cystoscopy yesterday frusturated

    So I made it to my cystoscopy yesterday and went through with it with only a "local". It was hell and he said my bladder would only hold 1/2 of what a "normal" bladder would but he didnt see anything unusual. He said Ic was a diagnosed by excluding other things..and is putting a referal in to both the citys IC "specialist" and gynecology..thinking maybe its endometriosis bc i flare up pre-period..

    So i waited 7 months to be told that, the IC dr will be another 9-12 months and gyn. referal about 6-9 months...

    Im so frusturated. Im in agony..He gave me meds to control the frequency/urgency but i its annoying but its the pain that bothers me..

    Ironic thing im moving in 6 months or so...so who knows when ill actually get help..and of course im sore from yesterday and got my period today and i feel absolutely awful..

    Sorry juts needed to vent..

  • #2
    6 months seems like a terribly long time to wait for an appointment --- isn't there any way you can be seen sooner?


    Donna
    Stay safe


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    • #3
      its canada...referals go in and you wait..the first referal to urology got put in last dec..i saw urology july20..cystoscopy yesterday..now i wait again..

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      • #4
        Oh no. I am so sorry to hear about your long wait! Not fair to do that to someone who is suffering.

        Can your primary dr. help you at all - with some pain medications and anti-depressants (they help control pain)? Otherwise are you following the IC diet? Hot baths and the heating pad do wonders for me. I also took continuous birth control because I would always flare before and after my period - it was horrible. I now had a hysterectomy, so one less problem for me to worry about.

        Hang in there, know you are not alone and we are here to help.
        Conditions:
        IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

        Medications
        Elmiron 3x day
        Trazadone at bedtime
        Tramadol as needed for pain
        Monthly B-12 injections
        Continuous Birth Control (even though I had a hyst, to control cysts)
        heating pad, hot epsom salt baths, strict IC diet
        Interstim implant 9/11
        Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

        Failed Bladder Treatments
        Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

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