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Hello there my name is Kiersten,
First of all let me say THANK GOD I found a network of people who understand what IC is and I can relate to and vice versa. I am 39 and was diagnosed end of June and it's been rough few months. I have had urinary problems all my life. With frequency, prone to UTI's etc. Around March I assumed I had an aggressive uti that wouldn't go away kept doing rounds of antibiotics to no avail. I went to a new doc, who said that I did not have one however she felt I needed to see urologist. Long story short went had those awful tests done and find out I have this horrid disease. I usually have strong threshold for pain. I have endometriosis(sp?) so my periods are awful as well as I said before countless uti's. However this is by far more dibilitating than I could have imagined. At first I was strong and took it pretty good I was like okay not cancer or something life ending I can deal and move on. Well last week I had the worst flare yet. Started on a Sat afternoon and by Tues night I was in ER after trying everything. Well come to find out that not only was I flaring but had the start of a UTI which never dawned on me because since being diagnosed just assumed it was all IC. For first time since this all started and first time in my life a depression came over me that actually scared me. I think the reality of what we all have and how hard it is and that it is forever no cure hit me. I think when diagnosed I was like okay good know what it is they gave me meds so as long as I am 90-95% better I can deal. Well as we all know it is not that cut and dry. My darling supportive husband has been on computer since flare occured and not only found this great site, but gave me good home help aids ie:baking soda and water....
I know I wrote a book lol sorry, I am a. wanting to fill you all in on my history and road to this point and b. I am sooooo grateful to have found a group of people that not only know what IC is but can relate to me and I to them!!
For meds I am currently taking Prosed ds, as well as just started after er trip ditropan. They did give me amitriptline which I hattttedd how it left me feeling next day so I will only use that if I am in a flare that is a doozy.
I do have ADHD and was recently changed to Adderall last wk which is what I think sent me into the flare, not knowing that it was a big no no for IC people.
Well thanks to this site I found out about Dexedrine that not only could people with IC take this with usually no bladder irratation but that studies are showing it to help us with symptoms. So this is day two on it and though no irratation I think it is to soon to tell IC wise if this is working.
So my hopefully new friends I hope I wasn't to long winded know I had alot of sp errors
, but I was excited and wanted to get it all out, lol
I look foward to sharing learning and getting to know people here
Kiersten
First of all let me say THANK GOD I found a network of people who understand what IC is and I can relate to and vice versa. I am 39 and was diagnosed end of June and it's been rough few months. I have had urinary problems all my life. With frequency, prone to UTI's etc. Around March I assumed I had an aggressive uti that wouldn't go away kept doing rounds of antibiotics to no avail. I went to a new doc, who said that I did not have one however she felt I needed to see urologist. Long story short went had those awful tests done and find out I have this horrid disease. I usually have strong threshold for pain. I have endometriosis(sp?) so my periods are awful as well as I said before countless uti's. However this is by far more dibilitating than I could have imagined. At first I was strong and took it pretty good I was like okay not cancer or something life ending I can deal and move on. Well last week I had the worst flare yet. Started on a Sat afternoon and by Tues night I was in ER after trying everything. Well come to find out that not only was I flaring but had the start of a UTI which never dawned on me because since being diagnosed just assumed it was all IC. For first time since this all started and first time in my life a depression came over me that actually scared me. I think the reality of what we all have and how hard it is and that it is forever no cure hit me. I think when diagnosed I was like okay good know what it is they gave me meds so as long as I am 90-95% better I can deal. Well as we all know it is not that cut and dry. My darling supportive husband has been on computer since flare occured and not only found this great site, but gave me good home help aids ie:baking soda and water....
I know I wrote a book lol sorry, I am a. wanting to fill you all in on my history and road to this point and b. I am sooooo grateful to have found a group of people that not only know what IC is but can relate to me and I to them!!
For meds I am currently taking Prosed ds, as well as just started after er trip ditropan. They did give me amitriptline which I hattttedd how it left me feeling next day so I will only use that if I am in a flare that is a doozy.
I do have ADHD and was recently changed to Adderall last wk which is what I think sent me into the flare, not knowing that it was a big no no for IC people.
Well thanks to this site I found out about Dexedrine that not only could people with IC take this with usually no bladder irratation but that studies are showing it to help us with symptoms. So this is day two on it and though no irratation I think it is to soon to tell IC wise if this is working.
So my hopefully new friends I hope I wasn't to long winded know I had alot of sp errors
, but I was excited and wanted to get it all out, lolI look foward to sharing learning and getting to know people here
Kiersten
and I'm hoping all the meds have kicked in.
to the IC Network and hope you are having a better day today.
I have had symptoms for 4 or so months, maybe longer though. I am waiting to get in with uro.
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