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  • Is there something to help with burning?

    I suffer a lot from a mysterious burning pain. Have been tested numerous times for yeast, etc. But the burning coincides with IC flares and my urethra feels like it's on fire as well. So I know it's due to IC.

    I'm wondering what I can due to relief the outer burning sensation? I've taken drastic measures such as always using laudry detergent free of chemicals, I wear a pantyliner and change it frequently, I use a water bottle and rinse each time I use the restroom (as recommended here). And I wear dresses or skirts during tough times. Are there other things I can do that I might be missing. Does anyone know of some sort of cream or spray that can relieve the outer skin? The burning is worst during times or hormonal change such as ovulation and before my period.

    Thank you.
    Frances

    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

    Other conditions: Migraines, allergies, mild IBS.


    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

  • #2
    My doctor prescribed lydocaine gel for the burning. I can't put it on everyday but I can put it on maybe twice a week. I also get terrible burning. If you are looking for herbal remedies I heard aloe vera works well too. If I were you I would ask the doctor what he thinks could help relieve the burning. When I discussed it with mine he gave me oxycodone and the lydocaine and the lydocaine works wonders sometimes. My doctor also told me that the burning is a combination of my vulvadynia and IC. So maybe if you discuss it with your doctor he/she will be able to point you in the right direction.

    Jessica
    Take: elmiron 2twice a day
    Cymbalta once a day
    Prosed ds as needed
    Lydocaine gel for sex
    Tramadol as needed
    Oxycodone as needed

    Diagnosed with severe IC April 2011

    Suffered for 8 years without a diagnoses
    I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC.

    Comment


    • #3
      Thank you. I will definitely ask about the lidocaine. However, it stinks that you can only use it twice a week!

      Is it ok to put Aloe Vera down there. And how often would it be safe to do so? I can suck it up until I go to the doctor, but would love to go out and get some now if possible!
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.


      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment


      • #4
        Go to this website http://www.*************/node/188 it explains the uses of aloe vera for IC. It also explains what kinds are best for IC patients and what form would work best for you. More and more doctors are telling IC patients to use aloe vera either has a vitamin or as a bladder wash (like a rescue instill). They also say that aloe Vera gel is good to put on the burning site just make sure you get pure aloe vera. (there are a lot of aloe vera's on the market with extra chemicals and additives bad for people like us with IC. Another thing you could discuss with your doctor is cymbalta. I was put on that because it's supposed to decrease nerve pain in IC patients which is what the burning sometimes can be. It's something you can research and see if you want to talk to them about. I tell you the burning is my biggest issue and symptom. I have a very hard time dealing with it. I hope you find relief and I hope this helps some.

        Jessica
        Take: elmiron 2twice a day
        Cymbalta once a day
        Prosed ds as needed
        Lydocaine gel for sex
        Tramadol as needed
        Oxycodone as needed

        Diagnosed with severe IC April 2011

        Suffered for 8 years without a diagnoses
        I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC.

        Comment


        • #5
          Rosechild, I tried to go the website you recommended. But when I click it, it doesn't direct me. Maybe you have to email it to me. Please let me know!

          Thank you!
          Frances

          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

          Other conditions: Migraines, allergies, mild IBS.


          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

          Comment


          • #6
            Sorry it won't let me post the link google aloe vera for Interstitial cystitis and you should get plenty of sites telling you the best way for people like us to use.

            Jessica
            Take: elmiron 2twice a day
            Cymbalta once a day
            Prosed ds as needed
            Lydocaine gel for sex
            Tramadol as needed
            Oxycodone as needed

            Diagnosed with severe IC April 2011

            Suffered for 8 years without a diagnoses
            I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC.

            Comment


            • #7
              No problem. I did some googling and did read it's ok to put on the genitals. Of course I'll confirm this with the doctor.
              Frances

              Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

              Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

              Other conditions: Migraines, allergies, mild IBS.


              "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

              Comment


              • #8
                I used aloe vera 99.9% pure gel and pure vitamin e oil. They both helped but what I found was that as soon as the bladder flare went away so did the urethral and vulvar burning. Have you tried the baking soda sitz baths? They helped me a great deal also along with icing the area.

                Comment


                • #9
                  I don't have a bathtub (stand up shower).

                  I didn't think about ice and will consider that too! And I didn't know hear about vitamin E. I think having the vitamin E and aloe on hand won't hurt.
                  Frances

                  Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                  Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                  Other conditions: Migraines, allergies, mild IBS.


                  "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                  Comment


                  • #10
                    If you don't have a bath tub you can use a regular basin or tub to sit in. Ha Ha I know it sounds funny but they actually make things like that for sitz baths. For the aloe vera you have to make sure there isn't a bunch of preservatives and stuff in it. The vit e oil is rather sticky but it seems to be really good for my skin.

                    Comment


                    • #11
                      Thanks earthlady. Desperate times call for desperate measures, and a small tub to sit it doesn't sound so bad!
                      Frances

                      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                      Other conditions: Migraines, allergies, mild IBS.


                      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                      Comment


                      • #12
                        You got a lot of responses, but I also recommend the lidocaine gel. Also, when I am on my period I take pH pills! They make you more alkaline. This sounds gross but my blood feels acidic. They also make pH tampons which I like a lot!

                        Comment


                        • #13
                          ABliske, this is the first I've heard of PH pills. Where can those be bought? Sounds like Lidocaine is a good remedy. Too bad it wasn't sold in stores.

                          (adorable baby by the way...precious)
                          Frances

                          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                          Other conditions: Migraines, allergies, mild IBS.


                          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                          Comment


                          • #14
                            I've seen an advertisement for ph balanced vaginal cream that is OTC but I haven't been able to find it. I'm thinking it's made by Rephresh to balance the ph in the skin. This seems like it would be good to use when frequency is high as it may help when the skin gets burned from peeing so much.

                            Comment


                            • #15
                              I would caution those that have IC against tampons. It turns out I am extremely tight down there therefore tampons exacerrbate my IC. I am not sure if its because there's limited space down there that it ends up hitting my urethra or what but the burning gets increasingly worse if I use tampons. I already have worse symptoms during my period but tampons make things ten times worse and sometimes it causes me to get an UTI. I use pads during my period. I talked to my doctor about it and he said he cations IC patients about using tampons.

                              Jessica
                              Take: elmiron 2twice a day
                              Cymbalta once a day
                              Prosed ds as needed
                              Lydocaine gel for sex
                              Tramadol as needed
                              Oxycodone as needed

                              Diagnosed with severe IC April 2011

                              Suffered for 8 years without a diagnoses
                              I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC.

                              Comment

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