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    I was wondering if there is anyone who lives in Nothern, MA that knows of or uses a Dr. specializing in IC. I did go to a IC site and found some suggestions but if there is a chance that someone is near me that has first hand knowledge that would be great!!

    Thanks
    Kier

  • #2
    which IC site did you check?

    You might try writing to the IC Association to see what doctors they list, and also try writing to ICN too (they gave me a customized list). Also, I found a bunch of doctors in my area using the Elmiron website. I don't think these people are vetted by anyone, but it's a starting point. Good luck!

    Comment


    • #3
      I'm in Northern Mass. (east) I recently went to a Uro that deals with IC but I was not happy and wanted another opinion. So I'm going to a Urogynecologist in the Boston area in two weeks. I can let you know how it turns out or if you want the name I'll gladly give it to you. I chose a Urogyn because I heard about that type of specialist here on this site and thought it would be convenient to go to someone that deals with Uro issues AND gynecological issues in one office. I called beforehand to make sure they dealt with IC, treatments and surgeries. I found the doctor by googling Urogynecologists.

      I'm not sure if I helped or not. Personally I feel it's tricky finding the right doctor. I went to a doctor years ago at a major hospital (Urology dept.) that is one of the best in the country, and they said I was hopeless and would not be helped by ANYTHING but Interstim surgery. They never even tried any meds with me or gave me other options. So I left. What I learned is that a second opinion, or even a third (if that's what it takes), is not a bad idea, especially when doctors throw out surgery right away without at least trying other things.
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.


      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment


      • #4
        http://www.ic-network.org/forum/showthread.php?t=36229

        I'm not sure how to direct you to another post here on this site. But if you click the above, or past it in your browser, you might be connected to the post and find some useful info.
        Frances

        Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

        Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

        Other conditions: Migraines, allergies, mild IBS.


        "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

        Comment


        • #5
          krissy83 and toto

          Thank You soooo much! Toto def get back to me how you make out. I have made a appt with a dr. in Springfield ma that I found on ICN network, they supposedly specilaize in this. I was tempted to go the gyno route too, but got nervous not sure they would be experienced enough. So pls let me know how you make out.

          Thanks again guys xo
          Kierd

          Comment


          • #6
            I felt the same as you do and worried about their experience. But then again, the places I first went to would assumably have a lot of experience, but I just didn't have good feelings about them, and sometimes you have to go with your gut.

            I'm surely let you know how things turn out. What I liked about the place I'm trying out is that they list IC on their brochure and have a list of treatment options. (numerous ones) Keeping my fingers crossed.
            Frances

            Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

            Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

            Other conditions: Migraines, allergies, mild IBS.


            "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

            Comment


            • #7
              I know what you mean, that is what drew me here that they are a clinic and all their specialists are trained in IC. We will see. Just want someone who is caring and knowlegdable

              Comment


              • #8
                I hear ya! It sounds like a good place. Hopefully Springfield is not too far for you to drive.
                Frances

                Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                Other conditions: Migraines, allergies, mild IBS.


                "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                Comment


                • #9
                  Ugh it is a hr and half away.....but if they can get me on right path it is worth it

                  Comment


                  • #10
                    One and half hours is not so bad if it's the right place.
                    Frances

                    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                    Other conditions: Migraines, allergies, mild IBS.


                    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                    Comment


                    • #11
                      Hi Kierd and all,

                      Just wanted to say hello..I'm new to this site. I was diagnosed with IC about 15 yrs ago but have experienced bladder problems ever since I can remember...I have been in a real bad flare-up since beginning of May, and am currently trying some homeopath remedies.. I just wanted to let you know that I live on the North Shore in Massachusetts and did see a specialist at NE Medical in Boston.. I was not thrilled with my experience so I made an appt. to see a specialist at Beth Israel. His name is Dr. Ayer (not sure of spelling) but I have a nurse friend who works with him and says he's excellent. My appt. is next week... I am so tired of being in pain and so desperate for some relief..it helps to know that I am not alone..even though it's such a lonely disease.

                      Comment


                      • #12
                        Hi Kitty,

                        I am not far from you at all. I used to go to school on the North Shore. I am closer to Boston nowadays. If you need a friend I am available and close by.

                        Thanks for sharing your information. If my new doctor doesn't work out I am glad to have another option.

                        If you want my email let me know. Maybe you can find it here on this site on my profile. I am still getting used to this site and how to use everything.

                        Actually, I am quite happy to meet anyone who is from the Massachusetts area who may want a friend or someone to talk to. And I'm open to emailing as well. Not sure how much help I can be but sometimes it's just good to know someone is nearby.

                        Frances

                        Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                        Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                        Other conditions: Migraines, allergies, mild IBS.


                        "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                        Comment


                        • #13
                          Hi Toto;

                          Thanks so much for your supportive post. I would absolutely love to talk to you!! I think one of the worst things (besides the pain) of having this is feeling so alone. If I ever mention it to my husband or kids (2 boys; 12 and 16) they look at me like I have 6 heads or something. Nobody understands!! Even my primary care doc is stumped..he has prescribed amitriptyline and it hasn't helped.. I really feel like I am at the end of my rope and it would be so nice to have a friend to talk to who understands and also I am a good listener as well. I am really not very computer savy...it literally took 3 months to figure out how to activate my acct. and post a comment..so I will leave you with my email..please write to me anytime...

                          [email protected]

                          Comment


                          • #14
                            kitty and toto

                            I live in Dracut Ma I am soooo glad to hear that people are near by that have this for it makes you feel sooo isolated. I am lucky to have a husband that has been very proactive in helping me and doing research. Though no one understands the pain and despair of this like one going through it. I too would love to be there for either one of you who may need it. I am new to this disease (june) but if I can help in anyway I will..
                            my email is [email protected] if either of you need me. Kitty I may try your dr seeing how the one I found is in springfield looonng way away. I also have appt with dr in Andover,ma in sept on the 7th I would be happy to let you guys know how it goes. It is so comforting knowing there are people so close by that can relate.

                            Kierd

                            Comment


                            • #15
                              Kitty...I will email you this evening! Thank you!

                              Keird...my girls' father lives in Dracut! (I used to live there and am originally from Lowell) I am in Cambridge nowadays. We are all very close to each other! This actually makes me feel great!

                              I feel truly blessed today. I am so glad I've met two people close by whom I can share my struggles with. Perhaps we will be of some help to one another in some way.

                              Here's my email. It's open to anyone who needs it to vent, ask questions or just say hi. [email protected]
                              Frances

                              Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                              Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                              Other conditions: Migraines, allergies, mild IBS.


                              "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                              Comment

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