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  • #1

    Do you have variations in frequency in one day?

    I have posted so much this week and feel like a baby. Sorry for posting umpteen times. I guess I am a baby. I cried today out of severe frustration.

    Here's why...

    I've been flaring on and off. And so last night I slept well surprisingly. However, I woke in the morning with my period and suddenly and was peeing every 15 to 30 minutes. (The last time I drank something it was last night at 8pm!!) I can't believe I could even pee. And when I peed it was clear! Go figure! It doesn't make sense to me. I seriously went about 12 hours without drinking. Anyway...I was in so much pain. Then it calmed down and I was dying of thirst but afraid to drink. So I drank a cup of tea (Roastaroma) and BAMM!!! I was hit again with a flare. I then went every 5 minutes for at least an hour! My friend wanted to take me to lunch today at that time. (I work from home mostly). So we got in the car and I had to tell him I couldn't go because I was in pain. (I know...I probably shouldn't have gone.) The flare was killing me and I couldn't make the 10 minute ride to the lunch place. HOW HUMILIATING!

    Do any of you have these sorts of ups and downs with flares in the course of days or even hours? I know my period has something to do with it. But the variations I've experienced over this past week have made me crazy. I can't plan to do anything within 15 minutes of my home for fear of an unexpected flare. My flares seem to be the same regardless of drinking water, rice milk or tea. Water makes me pee more! But then if I don't drink, my urine burns more! UGH!

    I'm going to the doctor in a couple weeks and am afraid she won't believe me when I tell her about these weird symptoms.

    I've been downing Tums all day (took eight), as well as the Prelief. I'm not sure if it's taking the edge of or not because as soon as I think I'm ok I'm hit with another flare.
    Frances

    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

    Other conditions: Migraines, allergies, mild IBS.

    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)
    Tags: None
  • #2
    Totally.

    I think stress is also a major factor with me. If for some reason I am more so thinking about how much I have peed or like, 'Hey I haven't peed in 2 hours' I can screw myself up. For some reason when I want to take a nap I will have to get up 2-3 times to pee first. I think it's all psychological for me. I don't know how per say but I know my attitude can affect how much I feel like I have to go and do go. Like you I can have no liquids for a few hours and still have to pee the same amounts I would if I had just chugged water.

    Unfortunately I don't have the copping skills (yoga, meditation etc.) yet to help soothe my mind. I have heard exercise can work wonders on clearing your mind.

    EDIT: And the week before my period? Forget it. No matter WHAT I do I will flare. I am working on getting on BC so I can avoid these weeks as much as possible.

    Comment

    • #3
      Oh gosh nineteenwinters, you are just like me! I have an IC twin...LOL... Kidding. Seriously, when you wrote about the psychological stuff I laughed because I thought that I was the ONLY person who thought like that. The other day I had to meet a friend in the early morning. Just worrying about the meeting and having to pee, made me pee. I had to stop at a Port a Pottie that I sighted because I was dying while driving. (It was only like a 15 min. drive) I hate those Port a Potties! Anyway, I flared for like an hour because of the worry! I have no idea how to control the worry. On other days, I could have SEVERE anxiety and not have a single symptom of IC. DOESN'T make sense at all.

      And I'm the same with sleeping also. If I'm not in a deep sleep I will get up until I'm convinced I have emptied my bladder and that it's safe to drift off. Some nights it's torturous and I seem to have to go more! Forget it if I wake in the night and can't fall back to sleep. Then I'm doomed.

      I'm glad to know I have a twin...
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.

      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment

      • #4
        Yay I have a twin!

        No, I remember people telling me, 'It's all in your head'. I totally agree with them but for different reasons. LOL I think the mind is SO powerful it can totally affect all your bodily systems. 2 years ago I came off of anxiety drugs (for social anxiety) and it was a yearlong battle. If it wasn't for that I think I would try some anti anxiety meds to be honest. Though, with all the drugs I am on now I probably don't need any more. I know I am on Elavil but it doesn't do much for the anxiety feeling for me it just helps my bladder.

        But with IC it could be really hard to totally not have anxiety. I mean with other things you could say, "OK it's really not that bad just get over this." but it really CAN be that bad whether I am making it up in my head or not the pee is there.

        *hugs* Hopefully we'll both get through this!

        Comment

        • #5


          Yes...it really can be that bad. But I totally hear you about the mind controlling the body. I'm working on making my mind stronger. Gosh it's a slow process...
          Frances

          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

          Other conditions: Migraines, allergies, mild IBS.

          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

          Comment

          • #6
            I hear your pain..

            I have the same as you guys, pee pee and more pee. I am seeing physical therapist and she is having me do a diaphram breathing techinque which is really helping me, I do it 5 times a day to relax. When I was diagnosed 3 months ago I freaked out went into depression and was taken over by anxiety. I am on pristiq, xanax and a sleeping pill at night, (hopefully not forever) and it seems to be helping me handle it all better. If I could just figure out the foods that trigger my flares I could handle it. God bless everyone going thru this.

            Comment

            • #7
              I really wish I could find a therapist somewhere who specialized in counseling people with this condition. I've been doing really well for a good while now and I still can't shake the feeling of any moment it can return, or wondering if or when a bad flare will come up. Seems I'm always on edge over the whole thing. It's the unpredictableness of this that drives me crazy. I'm constantly monitoring how many times I go a day, how many times I get up at night, what foods I ate that day etc. It's like this condition has taken over my mind and I'm obsessing over a body organ. I wonder if I'm the only one who does this or if I am truly going nuts.

              Comment

              • #8
                Earthlady, I posted about a recent doctor's appointment. I got some answers about my strange symptoms and the fluctuations and variations. It finally makes sense to me!

                I, like you, go crazy from the fluctuations in symptoms and am always fearful of a sudden flare. Makes me more stressed, which therefore adds the already difficult problem. But I feel there is hope. After my appointment I felt that this is not so scary and horrible and that there are solutions. My doctor told me she sees so many women with bladder issues and for me that was helpful to hear.
                Frances

                Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                Other conditions: Migraines, allergies, mild IBS.

                "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

                Comment

                • #9
                  The strange thing about all of it is that I'm not even having bad flares anymore and have felt well for a pretty long time now and I still obsess over when or if it will return. I guess the pain I had at one time was so bad I still have the fear of it returning.

                  Comment

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