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  • Ic with no Pain Just Super Frequency

    Hi to all those that have IC with little to no pain but lots of frequency, what meds or naturals do you all use to decrease frequency. My frequency is something over 30 times a day and 5 times during the night that keeps waking me up.

  • #2
    Are you following an IC diet? That can help a lot. Sometimes antispasmodics can be the answer --- the one I take is hyoscyamine --- it helps with frequency. I have pain when I'm having frequency --- diet and hyoscyamine help me with both.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Roughly same boat

      I am on VESIcare and Uroxatrol for the frequency and Atarax at night. Oh, and the IC diet. Normally little to no pain but if I eat or drink the wrong thing, I will feel it later. For example I found Coke will tare me up bad.

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      • #4
        I have no pain either/ Frequency sucks though when it is acting up!. The diet helps me, and emiron... but when I am having a bad day ill take a pyridium and an antihistamine...and drink a load of water. Usually passe the next day.

        Jenn
        28 yrs old,

        I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

        What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

        Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!



        Me in my graduation gown!

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        • #5
          Originally posted by nobleking View Post
          Hi to all those that have IC with little to no pain but lots of frequency, what meds or naturals do you all use to decrease frequency. My frequency is something over 30 times a day and 5 times during the night that keeps waking me up.
          Seems that our conditions are alike. The best tip that I can give you is that it's all in the head. Sure, I will not knock the the fact that we suffer from (what seems to be a diagnose of) IC but let me ask you this. Do you go that often when you are at work or hanging out doing your hobbies and activities? When I am at work I dont think about it and even though I feel I may have to go I can tame it...more or less. In the comfort of your own home we may feel like "ah who cares" and go often because we simply think about it. For instance I went out to the bar last night and white russians, beer and smurfs and something else my friend ordered (trying to push my limits) and I didn't have to go nor thought about it till I came home and then ofcourse popping my cork I was like a running faucet. Today the same thing because I didn't do much and stayed at home thinking about it...and since I am thinking about it now I may as well go to the bathroom again LOL.

          *thinks* maybe a shrinks > urologist in these cases? Could it really be all in the head?

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          • #6
            Interstitial cystitis is not "all in the head." It is a real disease that can have a variation of symptoms in different patients. It doesn't make any difference where I am or what I am doing, I still urinate more frequently than those around me. If I go to the mall, I will go at least twice during a short shopping trip. I don't like going to movies because I miss parts going to the restroom (I prefer to wait for the DVD so I can hit the pause button). When I was working, I was given an office with its own restroom and permission to leave meetings for restroom breaks.

            Sometimes if I stop drinking after dinner I can sleep through the night with only one or two bathroom trips, but it's usually at least three.

            Back in 1975 my gyno suggested my bladder discomfort was all in my head. I got up from the chair and walked out of his office and found a different doctor.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Definitely the diet first, as everyone said. Elmiron or Cystoprotek (Elmiron didn't work for me, and Cystoprotek is available without a script) can help. An anti-spasmodic could help, and I've found that hydroxyzine (atarax) cuts way down on night frequency. Please don't think IC is all in your head. It sounds like stress is getting the best of you. I flare too when feeling overly anxious or stressed.
              ----------------------
              -Amanda
              34 years old, bladder symptoms all my life
              diagnosed with PFD and VV October 2009; IC May 2010

              Current meds:
              Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
              Other past treatments:
              IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
              Tried and didn't work:
              Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

              Comment


              • #8
                Do you stop drinking a few hours before bed? I found that helps with the nighttime frequency. Taking a med before bed can help too.

                It has made me extremely angry when people have hinted that this has been in my head. My ex made me hold it and swore at me when I begged and pleaded for him to stop the car to let me pee. (I almost peed my pants) No one would beg and plead to stop a car and pee on the side of the road if they didn't have a serious REAL medical problem. Even my own father wouldn't stop the car for me when I asked. I had to be almost in tears and yell at him to get him to stop and let me pee somewhere. Heck, if it's in the head, the solution should be more simple, shouldn't it.

                Anyway, I hope you can find some solution. It definitely wouldn't hurt to try the diet and see a specialist. Also, is there some medication you are taking that could be increasing urgency? I used to take Allegra D and is has a decongestant. I can't take decongestants or Tylenol or I'll most definitely be in the bathroom all day long. Just a thought...
                Frances

                Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                Other conditions: Migraines, allergies, mild IBS.


                "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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