Does this sound familiar to anyone?

[heybrej]

I'm so perplexed. Over the past several days I've realized that my bladder pain is worse in the 1-2 hours after voiding...although I feel no pain WHILE voiding. Unlike most IC patients, I don't have the frequency. Sometimes I feel like I need to go, but I know that I don't actually, so I just try to quit thinking about it. Today I went pee at 5am and not again until almost 4pm. My family and I were at Disneyland and it was HOT. I'm pretty sure I sweat out all of the water I drank. I was careful not to chug, but I was sipping ice water all day long. I won't lie, I didn't want to have to urinate because I wanted to avoid the discomfort while I was at the Happiest Place on Earth.

So, I was feeling some irritation and had a couple of spasms this morning and on the drive to Disneyland. I took an Ativan to calm me down (I was getting really anxious) and some Azo with breakfast. I was 100% symptom free for the entire day at the park.

I said to my husband, "I sometimes wonder if some of this is in my head....I was happy and distracted today, and so I felt no discomfort" and he replied that he agreed, but I was careful to remind him that there is NO WAY that ALL of it is in my head. No possible way. I know that this is real for me, I know my body and I know when I am in actual pain or discomfort. I just wonder if it's possible FOR ME (I know I'm a lucky one) to fight this off mentallly. Heck, maybe I'm just having a good day and it's a fluke and tomorrow I'll be miserable again. Maybe it was the combo of the meds that made me feel better today. Who knows. I just wanted to put it out there to see if anyone was in a similar boat.

Also, why could it be that the longer I go without voiding the BETTER I feel? That's the opposite of most IC patients. I feel like after I void my bladder is smasming and shrinking or something, and that's when I feel pain. I do also have constant (although not today...) urethral pain.

Sigh. This disease is such a mystery.

Oh, and excellent news!!! I am now insured, effective Sept 13th!! What a great weight off of my shoulders.

[TinkerBell32]

Hating IC

I am having the same issues with the pain after voiding. It lasts extremely too long and I am running out of ideas to stop the pain. I'm drinking spring water and smart water; I'm taking elmiron, atarax, cystex, and prelief. I've given up everything that I know to be acidic. I don't know what else to do.

[Judy Gee]

Pain after urinating

Hi, I read your post and hope this will be of help to you. I was experiencing the same thing along with a flare. I would occasionaly have this but it would come and go. When I was in my most recent flare I asked my uro some questions about it and he told me that it was a circulation problem. He told me that every night before I go to bed to elevate my legs high with the rest of my body flat for one hour. I thought "Oh yeah, right!. Well, I didn't think it would hurt to try and after 4 or 5 days I noticed a big difference. It's been about 6 weeks now and every night weather I want to or not I have a wedge that I even prop up more and stay in that position for an hour. Sometimes I hate it but it has taken the pain and uncomfortableness away after I urinate so I'd have to say it works. Hope this helps you too. I might add that I am 65yrs. of age, don't know if that's an issue but I don't have any other circutlation problems, heart etc. Again, hope it's helpful for you too and if so I would like to hear back. Good luck, Judy G