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My 10yo's bladder has more capacity than mine..

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  • My 10yo's bladder has more capacity than mine..

    Hmph. Sigh. We both ended up in the bathroom sometime in the middle of the night... she beat me to it (stinker!)... and peed for what seemed like an eternity. I had to go so bad it hurt, and went maybe half as long. Never realized how low my capacity must be until I got a real-life comparison to a 10yo!

    Just venting a little. I texted all my friends saying this is IC Awareness month and if you go through each day not thinking about the fact that you have a bladder, consider yourself lucky.. and if you have a friend with IC, show her where your bathroom is!! lol

  • #2
    Well if it is any consolation I go more times than my 3 month old puppy at the moment....
    TMJ Dysfunction 2009
    Vulvodynia and/or PFD 2010
    IC, based on symptoms alone 2010.
    PCOS March 2012

    8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

    Currently using: IC Diet...pain meds as needed
    Medications / treatment tried and discounted:
    Fluconazole 150mg 1 per week for 6 months (yeast)
    Endep 25mg - 4months
    Lyrica 75mg - 2 months - FLARE
    Oxytrol patch - I think this caused retention.
    Countless creams, lotions and potions.
    Cystoprotek - no change in symptoms
    PT - for 1 year
    Various herbs and supplements


    • #3
      My 14 year old daughter can hold her pee the entire school day! I was shocked when she blurted that out one day. She hates using public restrooms. My gosh, I'd be passed out by that time. Or more likely I'd have peed my pants like 5 times! Luckily neither of my two daughters have bladder issues at this time. I'm already starting to pray that they never develop issues.

      I, like you, have a very low capacity. I also have a tiny bladder.

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.

      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)


      • #4
        My daughter is 2 and a half and I hope that she NEVER will have bladder problems . Now she is very well potty trained and the only problem is that she can't hold it during the night and her bad is often wet , but I guess this is due to her age. I often catch myself counting how many times she wants to pee and how much is there . Sometimes I also think how I am going to explain to her why I am going so often .
        Symptoms since 2005
        Diagnosed with IC october 2009 via PST


        • #5
          My son's (when they were small and I was either taking them into the womens bathroom) or even noticed that if we are in the car together and going long distance they can hold it all day meanwhile Mom has to stop (if everyone is lucky) 3 times in 3 hours.
          When I am at work I sometimes can I hold it most of the day without even thinking and then all of a sudden I have to go really bad (but I have noticed that it might take me awhile to go or that the other person in the next stall has started and finish going even before I can start a flow! At work its also a big (joke) that if they can't find me to look in the bathroom.


          • #6
            My bladder only holds 1 cup and that was when I had the cysto/ tiny bladder--Longest I can wait is maybe 2 hours at the most.during the day.. If I take a sleeping pill I can wait a bit longer at night...
            God brought me to it, He will bring me through it!!!

            Diagnosed 2003
            by cysto/hydro
            Elmiron took almost a year- made me sick, caused diarrhea
            Pyridium -Made me sick
            Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
            Tried DMSO instill- had 5 out of 6
            Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
            Cysto/hydro April 6th 2011-- on expansion only hold one cup
            IBS/ IC
            High blood pressure meds and Crestor
            Metformin (prediabetic)
            Sinequan (depression)


            • #7
              I experience what I like to call "bladder envy" like this quite often. My capacity might be up a little bit now, but when I was diagnosed, it was about 3-4 ounces.
              34 years old, bladder symptoms all my life
              diagnosed with PFD and VV October 2009; IC May 2010

              Current meds:
              Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
              Other past treatments:
              IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
              Tried and didn't work:
              Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture


              • #8
                This just happened to me! My daughter (an adult) was using the toilet while I was putting on makeup recently (it is a split bathroom)....She went and went and went.............every time I thought she was done, she kept going! I finally said, is that normal for you? She said she only goes to the bathroom three times a day....before work, after work, and before bed. Even after all these years working with IC patients, I was stunned to hear what a "normal" day is for someone.....and "hear" what a normal void sounded like. Crazy................I obviously have always had bladder problems way back because I truly never knew this.......
                Julie Beyer, MA, RDN
                IC Dietitian, Patient Advocate, Speaker, & Author

                Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

                Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

                You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

                ........ ........

                Other IC Diet Resources:

                IC Diet Webinar
                IC Diet Website
                For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
                Free IC Diet Booklet: What Can I Eat?
                Confident Choices IC Diet Blog
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                *Let's Connect!*


                • #9
                  Same boat

                  I am a guy and I have a four year old son. We live out in the sticks so if we are outside and he says he needs to go I just take him off to the side and let him do his thing. When I help him go it normally sets something off in me and I need to go and find not only did it seem like he peed more then I did, at 4 y/o he can pee 2 times if not three times farther the I can. I have never messured how much I can hold but I would have to say it is only about 3 or 4 oz.


                  • #10
                    Julie B................I obviously have always had bladder problems way back because I truly never knew this.......

                    I can totally relate to this, I too must have always had bladder problems, just didn't realize other people only went a few times a day, the longest I have ever been able to go between pees is an hour, unless I restrict fluid intake, even then with retention problems I still have to go frequently, as my bladder never empties unless I get cathed or I am really nervous and pee ever 5-10 mins till what I am nervous is over, eg a medical test I scared of.

                    My son as a bady unsed to get UTIs, not normal for baby boys, but no one wanted to investigate as he was so young.

                    Then as a toodler he potty trained himself at 16 mons, which was a bonus daytime, he still wore a diaper's to bed and for naps. He went to stay at a freinds house for a few days, when I got back (son was about 3 byr this time) she asked if I realized that he would go all day without peeing that he only peed when told too right before bed. I guess I wasn't a great mom I had to admit I hadn't noticed this. I did know everything we tried to help him make it through the night didn't work. We would get him up multiple x's per night to pee but he was always wet in the am.

                    I took him to a few uro's figuring something wasn't right after he started having episodes of screaming in pain when he peed. Still no one would take me seriously that I thought there was a problem.

                    He also lots of pressure when he peed, he had a cousin 10 days younger, as young boys they would stand side by side and pee off the sidewalk, (we lived in the sticks) his pee would land 15 feet away, his cousins at his feet, anyone who ever saw him pee commented on how far he could pee.

                    Anyway he continued to wet the bed at night, and I got him into a routine of at least peeing before each meal.

                    Around the age of 7 a pediatrition realized the hole in his penis was too small, hence the painful peeing, the pressure behind it, and the bed wetting.

                    He sent him to a peds uro who agreed, who said he could fix it, but it would be very painful, and there were good chances he would out grow it with a year or so. We chose the wait and see option, it worked out and he did out grow the problem.

                    I of course with all my bladder problems worried about him quite a bit, but as a young man now he doesn't even remember most of it, and has no bladder problems.

                    Just thought I would share my story.

                    My are with you all. May you all find a way to peace and joy in your lives.


                    • #11
                      I am laughing at this post

                      About 10 days ago one of my couple friends came over to my house. They had driven an hour to get to my house and then arrived around 3:30. They stayed at my house until 10:00PM at night. At 9:30 after I had been to the washroom at least 8 - 10 times since they arrived and felt like I needed to go again after just leaving the washroom, I asked them, "So have either one of you used the washroom since you've been here." They looked at me and said, "No, but I might use it before I go and travel back." I laughed and looked at them with a glare and said, "Are you really serious? You haven't used the washroom in nearly 8 hours and you might not use it until you get home which is another hour. I am sitting here thinking I need to go again right now and what did I go 20 minutes ago." At that point my friend says - "You haven't even used it 20 minutes ago - you might have been out of the washroom for five minutes topped." I laughed and giggled and said, "Thanks for rubbing it in... LOL!"

                      Just thought I would share for a laugh

                      Blessings all,

                      Current Meds:
                      1 Elmiron 100mg 3x a day
                      1 Cimetidine 300mg 2x a day
                      4 Gabapentin 300mg 3x a day (3600mg)
                      1 - 2 Atarax 25mg at bedtime
                      1 baclofen 10mg 3x a day as needed
                      200mg of Pyridium 3x a day (usually do in cycles - on for a week or two as needed) - I am very careful about this.
                      2 belladonna and opium suppositories as needed for pain daily.
                      Bladder instillations (Lidocaine, Heparin, & Sodium Bicarbonate)

                      I have tried but failed -
                      lidocaine instillations, heparin instillations, oxybutynin by mouth also called ditropan, tylenol 3s with coedine, cyclobenzaphrine, Ativan, vesicare, Oxytrol patches worked for 3 to 4 years and then failed, I tried Uracyst and had some success but my urologist felt that it was not successful so we moved on to trying something else. .