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Would LOVE advice, please!

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  • Would LOVE advice, please!

    Hey everyone! I am new to this board and haven't officially been diagnosed with IC yet. I am about 99% sure that I have it. Here is my story: For the past 2 months I have had urethral pain, it hurts especially after I urinate and is the most painful in the morning after my first void of the day.

    I have been on four antibiotics with no avail and have had three urine tests, one of which was a urine culture--all negative. I was tested for STDs and again, negative. I haven't had a single day where I haven't had some sort of pain. Some days are worst than others. Often times, I don't notice it much during the day.

    I have a cystoscopy scheduled in 2 weeks but my urologist really hasn't been any help. He just gives me prosed and tells me to drink water. I do not really have much frequency, maybe like 3 times more than I used to.

    My question is, does this sound like IC? I know you can't diagnose me but based on your experiences, what is your opinion? Any advice would be much appreciated.

  • #2
    It's possible that what you have is interstitial cystitis, but not necessarily so. One thing you can do while you're waiting for a diagnosis is to give the IC diet a try. You'll find a link to the latest food list in my signature below.

    The fact that your doctor is scheduling you for testing tells me that he/she is looking for a diagnosis. It can take a while to be diagnosed. An IC diagnosis is made at least partially based on ruling out other possible problems.

    Another thing you can do is to keep a voiding diary for a week or so before your appointment so you can let your doctor know how frequently you are urinating and how much each time. I hope you get an answer soon. For me the time before diagnosis was the worst.

    Warm hugs,
    Stay safe

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    • #3
      You might try to eliminate like known irritants like Soda and Coffee and see if the pain gets better.. Hope you feel better soon


      • #4
        Urethral Pain

        Hi -

        You might want to go and read the posts on the Board under Urethral Pain to see what others are doing for that problem.

        Hope this is helpful to you.



        • #5
          Your symptoms are pretty much the same as mine, hopefully you will get a diagnosis (of something!) soon. It took me a while, because the first urologists didn't believe urethral pain was a serious problem! But I was diagnosed as soon as I had the cystoscopy.

          It can't hurt to eliminate the big bladder triggers: tomatoes, citrus, coffee, soda, alcohol, chocolate, and caffeine. Cutting out caffeine was REALLY hard for me, but it has helped.
          Medications and Supplements:
          D-Mannose powder

          Lacto-ovo-vegetarian and IC diet
          Positive mental attitude!