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  • now incontinence...ugh!!!

    This past week I have been an experiencing increases in frequency/urgency and now leakage!! Has anyone else experienced this?! I feel I need to go out and buy some Depends

  • #2
    Hi SuziQ,

    I don't have any problems with leakage, but couldn't read your post without letting you know how sorry I am. This must be very frustrating and frightening. Maybe your doctor can prescribe something to help? Hope you're feeling better soon.

    ((Hugs))
    Pam

    Comment


    • #3
      Hi Suzi.
      I have overactive bladder with constant spasms, but no leakage except the day of my cysto/hydro, probably from the anaesthesia.
      What meds are you on, and have you had any surgery or cathing lately?
      I think it's possible that some meds relax the bladder TOO much, causing leaking.

      Actually, have you figured out when you leak? Stress incontinence maybe?
      Definitely make a visit with your uro asap.
      21 years old
      dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

      ♥ looking for a way or medication to help stop spasms ♥

      Comment


      • #4
        Reply:

        Very sorry, I bet that is very scary. IC is a terrible disease with so many terrible symptoms. What medications are you taking and how are you doing now?


        Molly
        Diagnosed with IC in 2005, since then have been diagnosed with an unspecified autoimmune disease, with inflammation in my bladder, colon, left knee, left ear, left eye, lungs and pericardium. Argh!

        Medical research addict.

        Likes: hot baths and naps with cats

        Comment


        • #5
          I must admit it is very upsetting. If I don't go the minute I feel that pearcing feeling in my urethra I'm in big trouble. I have to sprint! This is only a recent development. For some reason the urgency and frequency has increased. I used to be able to go every 3 hours with good volume (400-500cc) but now sometimes only 260cc. It's discouraging. I've been sticking to the IC diet and I just don't know what to think. I am VERY stressed and anxious about this diagnosis with several very bad nights of little sleep. Perhaps that is the contributing factor.

          I haven't been officially diagnosed. I had an initial consultation with an IC specialist and tomorrow I go for my first cystoscopy. I already had a rescue instillation on Monday at the time of the consultation. The Uro wanted to see if I would respond to it. I felt good for the first 3 hours but had terrible urethral burning (the insertion and taking out of the catheter was incredibly painful!!) the rest of the day. Thankfully, the urethral burning subsided the next day. I actually felt quite good the day after the instill but not the day after that. Don't know what to think. Should I continue with them or not??

          When I get that urge in my urethra to urinate I squeeze the sphincter to hold it in so that I can get to the toilet. Maybe that is irritating the muscle. I dont' know

          Any suggestions???

          Comment


          • #6
            Suzi,
            talk to your uro for sure. There are a ton of reasons to have leakage and most can be treated. Using a Depend to manage this should not stress you. I know its easier said the done but it would be the less of the evils for now. It is just a tool to help manage a problem. If you can get past the stigma you will see its not that bad for those just in case moments.

            Comment


            • #7
              Rope-wrench,

              You seem to talk from experience. Have you had to use a Depends? Oh gosh, I never thought I'd see the day! I'm too young for this and I will be the brunt of my husbands never-ending teasing. Ugh! Thank goodness I have all of you to lend a sympathetic ear.

              Comment


              • #8
                Originally posted by SuziQ64 View Post
                I must admit it is very upsetting. If I don't go the minute I feel that pearcing feeling in my urethra I'm in big trouble. I have to sprint! This is only a recent development. For some reason the urgency and frequency has increased. I used to be able to go every 3 hours with good volume (400-500cc) but now sometimes only 260cc. It's discouraging. I've been sticking to the IC diet and I just don't know what to think. I am VERY stressed and anxious about this diagnosis with several very bad nights of little sleep. Perhaps that is the contributing factor.

                I haven't been officially diagnosed. I had an initial consultation with an IC specialist and tomorrow I go for my first cystoscopy. I already had a rescue instillation on Monday at the time of the consultation. The Uro wanted to see if I would respond to it. I felt good for the first 3 hours but had terrible urethral burning (the insertion and taking out of the catheter was incredibly painful!!) the rest of the day. Thankfully, the urethral burning subsided the next day. I actually felt quite good the day after the instill but not the day after that. Don't know what to think. Should I continue with them or not??

                When I get that urge in my urethra to urinate I squeeze the sphincter to hold it in so that I can get to the toilet. Maybe that is irritating the muscle. I dont' know

                Any suggestions???
                That's a super good thing you're seeing the specialist tomorrow!
                It's really important to tell him/her exactly when the leakage happened, and to tell him/her about
                "When I get that urge in my urethra to urinate I squeeze the sphincter to hold it in so that I can get to the toilet." specifically
                and basically everything you just told us.
                It's possible squeezing/tightening up your sphincter is doing more harm than good.

                I know this is hard, but you really have to try your best to relax.
                S/he will take care of you. Do you know if it's a regular cystoscopy, or a hydrodistention as well?
                21 years old
                dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

                ♥ looking for a way or medication to help stop spasms ♥

                Comment


                • #9
                  To answer your question Suzi, yes I have and do use them. For me though I don't have leakage. I use them to keep from getting up all hours of the night and waking up my wife with bathroom trips and for those times when I know a bathroom trip is not going to be easy to wait. I get terrible urges and cramping if I try to wait for too long. Then for me the frequency goes through the roof.
                  I would assume your husband sees how upset this is making you and I don't think he would make things worse with pointless teasing. They make a kind that is very discrete and can be pulled down like regular underwear. You don't have to use it but you will have peace on mind knowing its there for those just in case moments. Once your uro finds what's wrong, I am sure you will get things back under control.

                  Comment


                  • #10
                    Polygon, thanks. I will definitely mention it to the uro tomorrow. Im having a cystoscopy. I'm really not looking forward to it. He did a rescue instill on Monday and the urethral pain from the catheter was pretty awful. I'll let you know how I make out.

                    Rope wrench, I can't tell you enough how much I appreciate your being so candid. Gosh, if I didn't have you people on this forum I would have lost my mind long ago! I guess I'll just suck it up and go gets some. Thanks for the encouragement. How are you doing these days? Is your frequency/urgency manageable?

                    Suzi

                    Comment


                    • #11
                      Thanks for asking Suzi. My frequency and urgency are still my biggest issues. I am still trying things on the diet I cut out and learning what my triggers are. So far sodas and waitting too long are what hits me hardest. My meds have helped some but the best tool I have found for me are the Depends. After a few weeks of getting use to them I can now get almost a whole nights sleep which I have been needing for a long time. After a lot of soul searching I realized it was the right choice for me and that it was nothing to be ashamed of.
                      I am still learning about this condition and how it effects me. But another thing I have learned about myself is catheters and cystoscope tear me up too. I do not envy your visit tomorrow but it will help you out in the long run. Keep us posted on what they tell you and how you are doing.
                      good luck.

                      Comment


                      • #12
                        Suzi,
                        Got to thinking last night and another option you may have would be to find one of the pads for women used for bladder leakage. I remember seeing on the forum somewhere that some of the women use those. A pad is really not something that would work well for a guy so it is not something I ever think about. If you get a chance, google Poise Pads and you should be able to find out some info on them. Maybe some of the other woman here may chime in and give you some info as well.
                        Good luck today, I will be praying for you.
                        Rope

                        Comment


                        • #13
                          Good morning wrench rope!

                          Thanks for the suggestion of the poise pads. I'll look them up!

                          I've am going to pm you.

                          Suzi

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