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Sigh. I was diagnosed with mild IC in December 2010 via a hydro with cystoscopy after having had symptoms since a UTI in late June of 2010. Anyways, thanks to watching my diet, Vesicare (with occasional AZO and Percoset) and catching any pain early instead of letting it fester, I've felt like a million bucks since the Spring. I would flare for only short amounts of time (never with pain, just frequency) and a lot of triggers wouldn't even affect me.
The only symptom that remained constant and bothersome for me was a slight burning feeling during sex. It would occur to varying extents. Sometimes it was dull enough to ignore, other times it was more intense and I would have to stop. For the most part, the burning was located only in the vestibule.
As of two weeks ago, I now have a 24 hour burning of my entire crotch. It's mild but constant. Inner labia, vestibule, urethra, clitoris, everything (though it's more of a dull ache in the clitoris than a burning). Or actually, it's hard to say for sure it's affecting all those areas. For all I know it could be burning in the urethra radiating out everywhere else and I'm just confused what's what. Who knows. It began with the start of my last period. I do recall using a different brand of tampons. Not sure if that could be related.
My uro is impossible to get an appointment with. I got a referral to two different gynocologists from my family doctor but neither of them have called yet. I've gone to a walk-in-clinic for a pap and tested for std's, bv, yeast, etc and nothing. All negative. Very likely it's pain from the urethra or bladder radiating to the vulva or maybe an allergic reaction to something? Or vulvodynia? Really, I just feel like I can't handle any more problems. The doctor said I looked perfectly normal during the pap but I'm convinced my labia is more red than usual.
And the worst part is that a man I really want to be with is flying in to see me in two weeks. I really REALLY don't want to be a mess when he comes. I actually can't imagine letting anyone touch me, let alone having sex knowing how much worse it will likely make this pain. And it's not like the pain is THAT unbearably bad. I just want to be my best.
I stocked up on MSM/Glucosamine, Calcium Citrate and almond milk yesterday and am downing all three like a maniac trying to get the burning/aching to stop. It's really not so intense but I find I'm unable to tolerate any amount of pain. It depresses me so much. I feel like I shouldn't have to be in any measure of pain over this stupid condition. The frequency I can deal with when it happens but pain? No thank you.
Does anyone else experience this burning/aching of the vulva? Is it normal for newish symptoms to happen after a year and a half of having IC? Like, really? What next?! Sorry guys, so needed to rant. I would love absolutely any suggestions about what to do to make this discomfort go away.
The only symptom that remained constant and bothersome for me was a slight burning feeling during sex. It would occur to varying extents. Sometimes it was dull enough to ignore, other times it was more intense and I would have to stop. For the most part, the burning was located only in the vestibule.
As of two weeks ago, I now have a 24 hour burning of my entire crotch. It's mild but constant. Inner labia, vestibule, urethra, clitoris, everything (though it's more of a dull ache in the clitoris than a burning). Or actually, it's hard to say for sure it's affecting all those areas. For all I know it could be burning in the urethra radiating out everywhere else and I'm just confused what's what. Who knows. It began with the start of my last period. I do recall using a different brand of tampons. Not sure if that could be related.
My uro is impossible to get an appointment with. I got a referral to two different gynocologists from my family doctor but neither of them have called yet. I've gone to a walk-in-clinic for a pap and tested for std's, bv, yeast, etc and nothing. All negative. Very likely it's pain from the urethra or bladder radiating to the vulva or maybe an allergic reaction to something? Or vulvodynia? Really, I just feel like I can't handle any more problems. The doctor said I looked perfectly normal during the pap but I'm convinced my labia is more red than usual.
And the worst part is that a man I really want to be with is flying in to see me in two weeks. I really REALLY don't want to be a mess when he comes. I actually can't imagine letting anyone touch me, let alone having sex knowing how much worse it will likely make this pain. And it's not like the pain is THAT unbearably bad. I just want to be my best.
I stocked up on MSM/Glucosamine, Calcium Citrate and almond milk yesterday and am downing all three like a maniac trying to get the burning/aching to stop. It's really not so intense but I find I'm unable to tolerate any amount of pain. It depresses me so much. I feel like I shouldn't have to be in any measure of pain over this stupid condition. The frequency I can deal with when it happens but pain? No thank you.
Does anyone else experience this burning/aching of the vulva? Is it normal for newish symptoms to happen after a year and a half of having IC? Like, really? What next?! Sorry guys, so needed to rant. I would love absolutely any suggestions about what to do to make this discomfort go away.
I dont know where to start with this diet.
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