Announcement

Collapse
No announcement yet.

Potentially Diagnosed with Questions!!!???

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • ICNDonna
    replied
    I'm glad you're feeling better --- but please do follow up with your doctor.

    Donna

    Leave a comment:


  • Melaniebennett
    replied
    Yeh I need to go back.. Ive always peed a lot when it first came on I was peeing lots pressure on bladder and like uti when peed. That arrrhhh moment.. But nothing tha bad now..

    Leave a comment:


  • ICNDonna
    replied
    Originally posted by Melaniebennett View Post
    Hi in knew here.. Had uti syptoms in Aug gave me 3days antibiotics no urine test at tha time...eased off but pain changed from uncomfortable when I was peein.. An once bladder emptyed it was OK.. Was goin on hols so rang nurse an explained.. She asked me to go take urine sample an she would give me more antibiotics, which I did.. Rang docs while I was on hols but no infection.. Now to cut long storey short I'm still aving bladder pain.. But scared to go docs as I have a cancer phobia.. I do stress a lot.. It comes an goes now.. But more when my bladder fills up.. An eases off wen I pee.. Please anybody else like this
    to the IC Network.

    I encourage you to see your doctor so you can learn what is causing your pain. In the meantime, I suggest you give the IC diet a try to see if that helps. At any rate, I think it's important to have a diagnosis. I have a cancer diagnosis, NOT RELATED TO MY BLADDER, diagnosed NINE YEARS AGO. There are many, many new effective cancer treatments and the earlier it's caught, the better.

    Yes, many IC patients find the pan relieved when it's emptied. How frequently do you urinate? About how much each time? I suggest you keep a voiding record to take with you to your medical appointment.

    Sending warm healing wishes,


    Donna

    Leave a comment:


  • Melaniebennett
    replied
    Hi in knew here.. Had uti syptoms in Aug gave me 3days antibiotics no urine test at tha time...eased off but pain changed from uncomfortable when I was peein.. An once bladder emptyed it was OK.. Was goin on hols so rang nurse an explained.. She asked me to go take urine sample an she would give me more antibiotics, which I did.. Rang docs while I was on hols but no infection.. Now to cut long storey short I'm still aving bladder pain.. But scared to go docs as I have a cancer phobia.. I do stress a lot.. It comes an goes now.. But more when my bladder fills up.. An eases off wen I pee.. Please anybody else like this

    Leave a comment:


  • SharonA
    replied

    Leave a comment:


  • crystilclear
    replied
    I think it is hard to say what will happen because we all react differently to IC. I hope that you find a treatment that will help soon. Try not to stress that usually will always make my symptoms worsde. I would watch what you eat, and try taking some prelief which may help you as well. There are lots of different things that help us and you can always try and se if it is something that will work for you. There is a list of self help remedies that Katrina helped compile together. Maybe try some things off of there? I hope you will be feeling better soon. Take care - Chris

    Leave a comment:


  • donutgirl
    replied
    Another Newbie

    Meredith,

    Glad you found this site. I was just diagnosed the end of May after 3 weeks of intense pain and numerous ER & Dr's office visits. My pain was increasing worse during that time. I've been on Elmiron since then, but the Uro. I was going to is not very "versed" in IC, so he said he was glad we finally diagnosed it and to come back to see him in 6 months. I couldn't believe my ears. Anyway, each case seems to be different...all we can do is share and hope to learn from each other. I did a lot of research and found out that one of the top IC specialists in the US is near me in Greensboro, NC. He is on the board of the IC Assn. and people come from all over the US to see him. Anyway, he is wonderful! He listened and actually heard what I was saying. He added several prescriptions to my treatment and set me up for instillations 2x a week for 6 weeks. This week will be my 4th week. I was able to return to work for a couple of weeks with a pain level of about a 5 (on a 1 to 10 scale), but my pain has returned to a 10, and maybe sometimes a 12. I am back out on disability. I have the same questions you do about whether this will subside for me and what I can expect, but like I said, it seems each case is different. My hubby and step-son went to a church reunion today, which I was unable to go to. He met a lady there that had a 2 yr. flare where she was in a good deal of pain and could barely function, but has been pain=free for about 2 yrs now. I think if we can just post and email others and know that we are not alone, that will help tremendously. It's tough when we don't know exactly what we are facing. Please feel free to pm or email me at any time.

    Prayers and warm thoughts for a better week for you.



    DIANE

    Leave a comment:


  • Sarojini
    replied
    to the boards!! So glad that you found us

    My IC waxes and wanes... sometimes I feel almost normal, and other times I'm in pain and peeing all the time. I think this is normal, and that with the right treatments most of us feel pretty good most of the time.

    If your uro is willing to work with you, then that's a great start!

    Leave a comment:


  • vm
    replied
    Hi, Meredith, and welcome. I can really only speak for myself - but my symptoms hit me suddenly - one day I was fine, the next - miserable. BUT, they never got worse than they were initially. And now a few years later and on the right meds for me, I feel great most of the time.

    Sounds like you have a good uro!

    Leave a comment:


  • Katrina
    replied
    My IC developed very slowly....for those that it comes on fast you may get worse for a while ...depending on how well you respond to treatment and if you find treatment that works for you.


    Welcome to the family.
    http://www.ic-network.com/handbook/ this link is very informative and a great place to start with IC. I hope you feel better soon.

    Leave a comment:


  • Babs RN
    replied
    Welcome

    Meredith,
    Welcome to the boards. There is a ton of love, empathy, and open arms to provide you with a shoulder to cry on when things seem hopeless and to celebrate with joy when things are better. I had multiple "UTI's" after about with kidney stones and spent a year feeling like a nut case until I got diagnosed. Please PM me or e-mail me if you want to vent, talk, or need a friend. Good luck as your journey begins.

    Hugs,
    Barb

    Leave a comment:


  • rosealee
    replied
    Don't despair

    Dear Meredith welcome to the site, there is alot of information and support for you if they do find you have I.C.. You sound a little scarred right now and any normal person would be. I remember feeling a little overwhelmed myself when I was first diagnosed 4 years ago but that can change and you probably will feel differentially as time goes on. There may be a support group near where you can share your story and conserns. This web site is very helpful if you do find out you have I.C.. I am still hopeful for you that you may not have this so don't lose hope yourself and remember there are others that can support and help you.

    Leave a comment:


  • Meredith
    started a topic Potentially Diagnosed with Questions!!!???

    Potentially Diagnosed with Questions!!!???

    Hi! I just saw a Urologist yesterday for the first time. I had a UTI in Oct 2003 (1st ever), and have had nothing but problems and pain since then. My Primary care's office kept putting me on 3 day antibiotic treatments even though 3 of the 4 UTI's really had no bacteria. The Urologist went over my symptoms, asked lots of questions and says that she is leaning towards IC. She has given me a 30 day antibiotic, and a food list of what not to eat to see if there is any relief. The pain I have seems to have gotten worse over the last 2 weeks or so, and my biggest question is, if I have IC, once symptoms start coming on do they tend to get worse, like, could I be in a lot more pain another 2 weeks from now? Sorry if this is kind of a weird question, I am just trying to prepare myself I guess. Thanks a lot for taking time to read this, it's great that there is a forum like this out there.
Working...
X