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  • It’s back

    I was diagnosed with IC in 2015. I was diagnosed with Pelvic Congestion Syndrome in 2020. My IC symptoms disappeared when I had PCS. I had vein embolization done 3 months ago and although the PCS is better my IC has come back full force. I’m in so much pain. I’ve never been on pain meds but I think I really need to be. I have an appt with a holistic pain specialist in a few days. I’m not super hopeful about that but what are you on that has helped you the most? I need help.

  • #2
    I think it's good that you will see a pain specialist. Are you currently on any medications? The medications that have helped most to relieve my IC pain are smooth muscle relaxants.

    Sending well wishes,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Thanks for the suggestion Donna! I will ask the dr about that. I was on amitriptyline but went off of it a month ago because I hadn’t had IC symptoms in such a long time. Bad idea I guess. Thanks for the input!

      Comment


      • #4
        If it helped it might help you get back in control. What was your dosage?

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          I started at 35mg and kept going down till I was at 10mg. I’ll probably go back up to 35mg again. Maybe more if needed. I cannot find a dr to prescribe me tramidol which is what I really want to take. No one will give me any type of pain medication. I’ve never been on any but with all the conditions I have I really think I need to be.

          Comment


          • #6
            I hope the pain specialist will be able to help. My husband took 10 mg for arthritis pain control and it really helped him. His doctor told us that it helped by interfering with the pain receptors in the nerve system.

            Hugs,
            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Hi,
              The best effective method which I could recommend to you for your problem is chiropractic care. In this treatment method, a professional chiropractor performs certain hand-on adjustments and uses many ligament release techniques. He will also advise some exercises which need to be performed that can strengthen your muscles. So I would recommend you to consult a chiropractor at the earliest for fast relief.

              Comment

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