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Patient Stories


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Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 4 Posts: 56
4 56
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,632 Posts: 46,042
6,632 46,042
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 14 Posts: 55
14 55
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,168 Posts: 56,949
7,168 56,949
Share your Interstitial Cystitis Success Story Here
Topics: 1,174 Posts: 12,710
1,174 12,710
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 14 Posts: 80
14 80
Are you a newly diagnosed man? Meet others here!
Topics: 463 Posts: 3,469
463 3,469
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 413 Posts: 5,024
413 5,024