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  • Wondering about remission

    Hi,

    I guess my last two posts have really been about baby stuff. My husband and I have been talking alot about it. I have no idea why, but I really feel that Mommy-feeling. I guess because I am almost 27, maybe and I have the best husband who will make a wonderful father.

    Anyway, I am wondering how many had a lot of problems with pregnancy? How did you manage IC? Were you able to do instillations? I guess I should see a high-risk OB-GYN before we EVEN consider this.

    Thanks again.
    April
    Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

  • #2
    My children were born before I developed IC, but there have been ICers posting throughout their pregnancies with IC. Some have experience remissions during this time, others have had a pretty tough time. The one commonality is that once that baby is here, I've never seen anyone express regrets.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      My daughter was born before symptoms of IC/PBS. my son is 19 months old, but I did not give birth to him. I am sure the gals that are pregnant or postpartum will give you great advice and tell you there stories.
      'The will of God will never take you where the Grace of God will not protect you.'

      Comment


      • #4
        HI there!

        With my DD I had not found my great doctor I have now yet. My IC was horrid and unchecked with little meds. It pretty much stayed the same through out my PG. I got a nice little "babymoon" for 2 months after I had her. It was awesome! Then everything came back full force. I started med and PT. I was in almost full remission for 2 years!!! My bladder felt great when I got PG with my DS. My IC stayed the same like that during my PG even though I was off ALL meds. I went right back on them after he was born. I had a great 8 months and am now in a flare, don't know what caused this though. So if you can get your IC under control and in a good place when you get PG it will most likely stay that way. Wishing you good luck.
        Mom to:
        Ella~born 10/14/03
        Travis~born 5/8/06

        Meds:
        Elmiron~2pills 2X a day
        Elavil~50mg at bedtime
        Had great results with this for almost 2 years. Currently in a flare since 1/9/07 Trying Urised, lidocane cream, Cystoproteck and now Benadryl at night to try and stop it.

        Comment


        • #5
          Hey Dodgewoman,

          Are you breastfeeding, if you don't mind my asking? One of my concerns was whether after a baby was born if a woman can resume her IC meds such as pain meds, etc. IF she IS breastfeeding. I know that less is better on meds when breastfeeding, but I really want to breastfeed when we do have a baby. I am so envious of one my good friends. She does not have IC, but was a cocaine addict..and I stood by her, helping her through her addiction when all her other friends pretty much abandoned her.

          Anyway, she's expecting in April around Easter and she has had the easiest pregnancy...no morning sickness, no sore breasts, not really any tiredness..she has been exercising. She told me all that was different was in the beginning she had a little constipation.

          Doesn't that really make you sick??? Anyway, I also asked about the breastfeeding question because when I am in a flare, I do instillations of heparin and lidocaine via catheter at home...with my wonderful husband's help (he woke up at 4am and did one this morning because I was in SO MUCH PAIN...and he NEVER complains).

          Since you DID experience IC symptoms while you were PG what did you do for pain management? I have been told that during pregnancy, you can take limited quantities of Percocet...but not Methadone, of course. I just would not want to do anything that would hurt our baby...so please tell me what you have heard.

          I also have the severe case of IC with Glomurelations and Hunner's Ulcers...so my pain is much, much worse.

          Anyway, thanks for the thoughts and prayers...

          April
          Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

          Comment


          • #6
            April, you might want to read Lesa's pregnancy diary at http://www.ic-network.com/pregnancyjournal/lesa.html She did an excellent report on her pregnancy as it progressed.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              No I did not breastfeed. It just didn't feel right to me. I know I took pryidium during my PG. Also if you are doing instills I believe those would be safe to continue b/c you are putting things into your bladder not your blood stream.
              Mom to:
              Ella~born 10/14/03
              Travis~born 5/8/06

              Meds:
              Elmiron~2pills 2X a day
              Elavil~50mg at bedtime
              Had great results with this for almost 2 years. Currently in a flare since 1/9/07 Trying Urised, lidocane cream, Cystoproteck and now Benadryl at night to try and stop it.

              Comment


              • #8
                Dodgewoman,

                I would LOVE to breastfeed, but I guess it depends on a lot of things like how long after our baby is born that I can stay off meds that hurt the baby and are excreted through breastmilk. Plus, I am already a stay at home wife and will continue to stay home because we're applying for my disability.

                Last Monday was the MOST HORRIBLE day at work and what really made me take a leave of absence with no return date listed. I worked for a temporary agency as a substitute teacher. Well, I thought teaching at the high school's family/career/parenting class should be easy so I accepted the assignment.

                The first two blocks of classes went well, but the third was horrid beyond your imagination. You see, Mississippi is A LOT behind when it comes to getting metal detectors as you enter into a school. And, I have often wondered why down here they have not caught up with other schools up North...oh, wait! It's Mississippi. My husband and I can't wait to move someplace else.

                Please keep us all in your prayers because if he gets one of intel positions at Wright-Patterson AFB in Ohio. That would so totally rock to get out of the South at least for three years.

                Sorry if I offended Southerners and anyone from the North....but we must all agree that there are, how shall I put it...eccentric people who are not weird, BUT DIFFERENT from us in every place. Moving to a new region of the country won't change this, but for sure, it would do TWO important things:

                1) Further my husband's career. At Wright-Patterson he could be paid his full salary to go through his Master's there.

                2) We can buy a house, finally. It's not that we can't now...and we live in a NICE apartment, but we're running out of space, fast! We hope to get fairly new construction and about 3-4, but probably more like 3 bedrooms {one being a LARGE master quite w/ whirlpool tub (us ICer's know that soaking in the bath helps alot). It will be a nice change because we live in one of the nicest complexes in South MS since Katrina but our apt. is only 900 sq. ft. Who knows, maybe I just need to do some Spring cleaning...hmmm...depending on what's going on, that might be mu plan for Monday!!!!

                And, one more question: If you stay at home and don't work and have no children, what do you do to NOT become insane?

                TV gets old after a while though I really like Y&R and B&B, then a nap. Man, naps are great. It has become a habit...a good one for now. I don't want to become too lazy though, but it seems with IC, I need more rest....or my body is telling me so.

                Thoughts?
                Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

                Comment

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