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IC Medications & Their Use During Pregnancy

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  • #16
    Sorry April, I just read your reply in my e-mail. I just wanted to briefly address your comment about narcotics during labor. I think that sometimes narcotics are offered during labor, but it is not the first choice because it can cause respiratory depression at the time of delivery.

    Comment


    • #17
      All IC'ers need to talk to their MD about what they need and what works for them. I know some MD's do use narcotics and choose the ones they like to give during delivery ( I hear some like regular, some synthetic, blah, blah, blah)- so you need to find an MD that is on the same page which takes a lot of work. Educate yourself, dont' feel bad about what you need. We are all so different. I am in health care and see alot and I can tell you what I need to get through this and it is totally different then my IC penpal I have who is actually on similiar meds etc...and neither one of is is more right or wrong. I am honest in what I can handle, and what my priorities are and so is she.

      I have learned it does no good to see an MD who is "GO Team GO" for like all natural birth or water birht when you would never have that, or see a MD who like doesn't really do that and you want it. It would be a a recipe for disappointment.

      I dont' think anyone is trying to make anyone feel bad. I think we sometimes forget that our ideal of pregnancy and birth is totally different then someone elses. We all get so excited that we forget about how it is recieved. I think we all agree we all want a happy healthy kid, how we get there is our own path.

      Anyone who wants to know more of what I learned in all my MD visits feel free to PM me-

      Cheers
      I am blessed to have an Indiana Pouch now
      IC since childhood, finally diagnosed at 31 yo
      PFD/Pelvic Pain,SI joint and LBP
      Low Back Pain s/p spinal fusion at 19 with more nastiness in back
      Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
      Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
      Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
      Hysterectomy 2/3/12 w one ovary removed
      Dry Eyes
      L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
      Still have issues, still take meds.

      I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
      Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:

      Comment


      • #18
        I had a terribly painful, long pregnancy. My daughter was breech and one foot was right near my bladder so when she kicked I felt like I was going to climb the walls. However, and this is just my two cents, I stayed away from all medications. I just think that there isn't ENOUGH information out there on medications and fetus'. Who knows was x-amount of years down the road will bring? When my grandma was pregnant with my mom in the 1940's, her doctor told her it was okay to drink beer--obviously that's a huge No-No now so who's to say things won't change maybe 20 years down the road?

        Everything you take in goes directly to your baby. To me, I'd rather suffer. But that's just me. I also had the InterStim sticking out of my you-know-what and that was a pain!
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

        Comment


        • #19
          Tetrogenic Site

          Hey guys,

          Just to let you know that the UCSD also has that tetrogenic site online at: http://toxnet.nlm.nih.gov/cgi-bin/sis/htmlgen?LACT. You can search for meds there and see if they are recommended during pregnancy.

          April
          Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

          Comment


          • #20
            Originally posted by melanie626 View Post
            All IC'ers need to talk to their MD about what they need and what works for them. I know some MD's do use narcotics and choose the ones they like to give during delivery ( I hear some like regular, some synthetic, blah, blah, blah)- so you need to find an MD that is on the same page which takes a lot of work. Educate yourself, dont' feel bad about what you need. We are all so different. I am in health care and see alot and I can tell you what I need to get through this and it is totally different then my IC penpal I have who is actually on similiar meds etc...and neither one of is is more right or wrong. I am honest in what I can handle, and what my priorities are and so is she.

            I have learned it does no good to see an MD who is "GO Team GO" for like all natural birth or water birht when you would never have that, or see a MD who like doesn't really do that and you want it. It would be a a recipe for disappointment.

            I dont' think anyone is trying to make anyone feel bad. I think we sometimes forget that our ideal of pregnancy and birth is totally different then someone elses. We all get so excited that we forget about how it is recieved. I think we all agree we all want a happy healthy kid, how we get there is our own path.

            Anyone who wants to know more of what I learned in all my MD visits feel free to PM me-

            Cheers
            A very good post Melanie. I agree.

            Comment


            • #21
              Elavil and Pregnancy

              Hello all- So I'm new at the message board thing and not sure I'm doing it right, but I guess we will see! :o) I am currently on 100 mg of Elavil per night, and my husband and I are about to start TTC. My dr. said it was "ok" to stay on the Elavil during pregnancy, but I am just so scared to cause harm to our future little one, but just as scared to go off the medecine. Can anyone that took Elavil during pregnancy let me know the circumstances and how everything turned out? Thanks so much!!!!

              Comment


              • #22
                Re Elavil question, I really recommend checking out the website April recommneded, I actually got the number to the San Diego Tetrogenic Study folks and called them and they were VERY helpfull. They keep a database of this type of stuff, long term complications reported when meds taken in utero. It might help you make the right decision for you.

                Best of luck.
                I am blessed to have an Indiana Pouch now
                IC since childhood, finally diagnosed at 31 yo
                PFD/Pelvic Pain,SI joint and LBP
                Low Back Pain s/p spinal fusion at 19 with more nastiness in back
                Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
                Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
                Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
                Hysterectomy 2/3/12 w one ovary removed
                Dry Eyes
                L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
                Still have issues, still take meds.

                I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
                Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:

                Comment


                • #23
                  can IC meds possibly hamper ability to conceive?

                  i have been trying to get pregnant for 9 months. i have taken 2 months of Clomid and been to a fertility specialist. nothing. i am considering IUI after one year of trying. i just thought maybe Elmiron, Hydroxyzine, or Alprazolam could make it more difficult to conceive. if anyone else has experienced this issue, please respond. thanks!
                  Lauren
                  Keep telling others about IC! Education is the way to the cure! LAUREN in MEMPHIS

                  Comment


                  • #24
                    I think that many IC patients also have endometriosis or IBS, and it has been suggested that there is some kind of link. I seem to remember some large statistic like 2/3 of IC'ers have either endo or IBS in addition to IC. Have you been tested for endo? I have a few girlfriends who have endo and IBS or just endo, and (with a little help) have all had successful pregnancies.

                    Comment


                    • #25
                      pregancy ended well even with meds

                      i havent been on in a while. Wanted to say my pregnancy went well until i tried to stop my pain meds. ended up in hospital for 16 days. But baby has been here since aug 24 hes fine. 2 more weeks of weening him off phenobabitol because of me using pain meds while pregnant. But one thing i must say 4th c section was a breeze compared to some of the ic flares ive lived thru. By the way the one thing i saw during my pregnancy was no aleviation of symptoms in early stages but it did get a lot worse nearer the end. Im just glad hes here and fine and now i can take all of my meds again. I got to get this undercontrol again. I was just seeing some improvement with nuerontin right before i got pregnant but had to stop that one. so back on it and hoping it begins working again. Thanks for all the times you guys listened to me complain. I have seen in the last few months more happiness than i have in years.

                      Comment


                      • #26
                        Kimberly a big big congrats to you and your beautiful son. :woohoo:

                        Thank you so much for coming and sharing. It's people who are brave and caring enough to share that gives me hope about my own wish to have a child someday. I would be in the hospital if it wasn't for my pain control medications.

                        I pray your IC gets back under control and every single day is a beautiful one for your and your precious little one. So happy to hear he is doing well.

                        Again congrats to you. And the best of luck with the Neurontin. That one is in my arsenal of pain control and helps me every day. I wish the same for you.

                        Comment


                        • #27
                          IC Friendly Prenatal Vitamins

                          My husband and I are TTC baby #1, and I am clueless... so is my OB when it comes to IC. I went in for a preconception check-up this week. She stressed that I NEED to get on prenatal vitamins right away. She handed me 5 different samples and said, "Try these, decide what you like, call us, and we'll write a prescription." I'm scared to even try any of them. I currently do not take any vitamins because they give me IC trouble and abdominal trouble.

                          Please share your experiences and knowledge about prenatal vitamins.

                          Diagnosed in February 2002 at age 17
                          Current treatment:
                          Elavil, Elmiron
                          Ultracet - when needed
                          IC diet

                          Comment


                          • #28
                            vitamins

                            I take flinstones chewable 2 a day, folic acid in its own form 2 a day and DHA fatty acid all alone. Please let me know if you have other questions. I am preggers with #2, on lots of meds and have gone down the dealing with multiple provider highway, so if I can be of help, let me know. Good luck.

                            MElanie
                            I am blessed to have an Indiana Pouch now
                            IC since childhood, finally diagnosed at 31 yo
                            PFD/Pelvic Pain,SI joint and LBP
                            Low Back Pain s/p spinal fusion at 19 with more nastiness in back
                            Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
                            Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
                            Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
                            Hysterectomy 2/3/12 w one ovary removed
                            Dry Eyes
                            L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
                            Still have issues, still take meds.

                            I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
                            Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:

                            Comment


                            • #29
                              Re: vitamins

                              Hi Melanie,
                              I was wondering if you would mind giving me a list of the medication you were talking during your second pregnancy back in 2010 when you made that post.
                              I developed IC when I became pregnant with my husband and I's first child. I still have IC (pretty bad) and we are hoping for another child one day. One thing that helps me live somewhat of a normal life is the pain medications I take. I'm wondering if they would be ok to take if I'm still suffering terribly from IC when I get pregnant again.

                              Thank you.

                              Comment


                              • #30
                                Re: vitamins

                                I have been feeling great for a few months taking Uribel twice a day, drinking lots of water and rooibos tea, yoga/stretching, and watching my diet.
                                I FINALLY convinced my husband that it was a good time to start trying to get pregnant so I started taking some chewable vitamins and began trying to slowly take myself off the Uribel since it's a class D drug and not safe for pregnancy.
                                About 24 hours without Uribel and I backslid into a full out flare that I've been struggling to get it under control. I think since I had been feeling so well I got a little cocky and wasn't working out a fair bit and eating a lot of risky food. I should have known better. I started taking the uribel again and am seeing some improvement.
                                I have an appointment with a new urogynocolgist to talk about my options, but I was wondering if any of you have any tips or advice for stopping your meds? Did you quit cold turkey or slowly stop?
                                Or if there are any questions you wish you'd asked your doctor or things you wish you'd done for your health before you got pregnant?
                                Are you considered a high risk pregnancy when you have IC?
                                And, at what point do you guys go to the doctor when you have a flare to check and see if it's actually a UTI? I hate going to the doctor every time I feel a flare coming on but I'd also really hate to have an untreated UTI.

                                Thanks guys!!

                                Comment

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