Announcement

Collapse
No announcement yet.

Please Read! - Drugs & Fetal Complications

Collapse
This is a sticky topic.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    wow opiods are considered more dangerous now hope im not getting pregnant anytime soon then...
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.

    Comment


    • #17
      Originally posted by Sbg View Post
      Anyway my husband and I are about start a family and I am so scared and confused but also so so excited. I am just co fused about the medication. I am currently on gabapentin and they are advising that I will b able to take this. Has anyone been pregnant and taken gabapentin? I am live in Australia so we have access to different medications. I also take digesic for break through pain
      doesn't anyway else use this medication?

      If anyone has any advice bot IC and pregnancy I would really appreciate it.

      Thanks everyone
      First of all, welcome here-- I'm not on a lot but I use it for info. I also came to look here about Gabapentin.

      After my bff just had her second child, and I'm getting information about getting preggo myself with IC, I'm beginning to freak out about having to go off of Neurontin aka generic Gabapentin. It's been the ONE med that I have taken for years, and it keeps me in remission. I have barely had any flare ups since my IC Doc put me on it, and I'm literally FREAKING out about Gabapentin. I'm thinking that a new thread is necessary to get the attention this needs, Sbg. And please, if you learn anything, PM me!!! I want to know what you find out. Here in the US, the FDA calls Neurontin a Class C for pregnancy, so that worries me-- meaning that it does get into Breast Milk.

      Comment


      • #18
        Pleas do not take this as full medical advice as this is my own opinion, and stuff I learned in Fetal Alcohol spectrum disorder class.

        Some drugs can cause spontaneous miscarriage.
        some can cause some body limbs not to grow.
        some can cause lung malfunction.
        some can cause major organ failure.

        A child can be born addicted to drugs, and it will take days or weeks for them to become drug free, and will probably have developmental delays.

        FASD, A child born with FASD will always have mental problems, possibly brain damage like my son, that will not go away! People ESPECIALLY DOCTORS do not believe this exists. They say a glass of whine wont hurt you or a glass of beer. Jumping off your roof wont hurt either... making a point here.
        the physical act causes the mental defect, I live this life every day, my niece chose to take my sons rights away when she drank pregnant. A child has the right to be born with a sound body and mind. please please remember do not to drink, and discuss and research or call the pharmaceutical company's about medications, also call your local pharmacist, that is their profession and probably know more about a drug then a dr..
        Last edited by tigger_gal; 07-25-2011, 03:32 AM.
        'The will of God will never take you where the Grace of God will not protect you.'

        Comment


        • #19
          Hi Alidee81,

          I just saw your response, I had no idea someone had responded. I am so glad to hear someone else was in the same boat as me. I have felt so alone and your message lifted me up. Gabapentin gave me my life back as well so like you I was and i am Terrified of coming off it. Since my last post I have seen quite a number of specialists and unfortunately they all advises that Gabapentin is unsafe. It's actually more the fact they don't know what will happen so they recommend you come off it. They say it could affect your unborn child's development both in the womb and when they are born. Scary i know. After careful consideration and discussions with my husband I decided to come off it and manage the pain under the guide of my specialists as pain killers are safer to take then Gabapentin. I know it's crazy right. Pain killers only live in our system for a few hours therefore there are limited risks to the fetus.

          I was on a really high dose of Gabapentin and I have been coming down 100mg per week. I am down to 500mg from 1200mg. It has been quite difficult some weeks are harder than others. In 6 weeks we can start trying and fingers crossed we fall pregnant quickly. the withdrawals have been difficult and unfortunately my IC has been quite bad but I am getting through it. It's hard but definitely achievable. I never thought I would get so low so I am pretty happy with the progress and I know the end result will make it all worth while.

          How are going? I would to here any feedback if you have from the doctors at your end. I know it seems scary but I am over half way now and I can tell you it's achievable just make sure u prepare for some discomfort and come down slowly as this has definitely helped. In saying this everyone is different and this is just my experience.

          Good luck. Hopefully u get this message and r able to respond as I would love to yr experiences.

          Hope your going well and thanks so much for responding that alone helped me.

          Comment


          • #20
            sbq I have read studies that show that the drug that you mention prevents the formation of nerve synapses in the brain. This can be a problem particularly during gestation, when the fetus's brain is developing very rapidly. Here's a link to the study:
            http://www.wellnessresources.com/stu...rain_synapses/

            Good luck to you. I hope you and your doctor find some alternative ways to manage your symptoms.

            Comment


            • #21
              Thank you yes i know that's why I am coming off it prior to getting pregnant. Thanks the link though.

              Comment


              • #22
                question in regards to IC and pregnancy

                Hello-
                I am new to this board and am hoping that some of my anxieties about my possible IC can be relieved by using this open forum. I've been to so many urologist had a cysto done etc. and two Doctors just told me I had a sensitive bladder and needed to put a heating pad on it or that the burning will just go away, well guess what it hasn't. I've finally found a good doctor but heres a bit of my history. I was pregnant about a year ago and had horrible burning in my urethra and bladder. It started off about 2 weeks before I found out I was pregnant as sharp burning pains similar to feelings of a UTI. I went to the DR and she gave me Cipro, at the time i didn't think i was pregnant so I took it(later to find out its not a safe drug when pregnant). I was then on Macrobid, Ampicillin etc during the pregnancy for it to only end in miscarriage. Ever since this time I have gotten UTI's on and off and then sometimes the test results will show no uti but I have horrible burning. My burning sometimes makes me not want to get out of the house. This burning sensation is so hard to deal with. Does anyone have any natural remedies they can suggest to get rid of this burning sensation? The burning happens after I urinate. I'm not trying to get pregnant again and every time I feel the burning it makes me nervous and I think I have a UTI. It's also hard to try and have a baby when your in this much pain. Has anyone been pregnant and experienced bladder burning, how do you deal with this and get through it? Is this burning feeling a symptom of IC?

                Comment


                • #23
                  Wants to have children

                  Hi,
                  I'm 27 and married to my wonderful husband. Ive been trying to get pregnant for 4 years but since been diagnosed with IC feb 1st 2012 I haven't been trying again yet because I've been trying to feel better first. But I do want children badly. My question is what do I need to do to go about conceiving a child? I really don't want to be on medications but if im not (ill be in pain?) and what does everyone take instead of prenatal vitamins? Im just starting to figure all this IC stuff out but would love to know what to do to be able to try to concieve one day.

                  Thanks
                  Michelle
                  ~Michelle~

                  I can do ALL things through Christ who gives me Strength! Philippians 4:13 (He never gives us more then we can handle, even though it feels like we can't handle it He gives us continued strength to keep going.)

                  Short view of my story:
                  Trying to learn as much as I can. I'm 27 and married for 5 years and have Been trying for children for 4 years. Have never had health issues or infections before all this. I was diagnosed with a puitary tumor (non cancerous) 2 years ago found out by high prolactin levels and MRI. I took dostinex to shrink the puitary tumor for a little over 6 months it made the tumor smaller but didnt work with my body and caused alot of pain so I stopped that. Then last year in march 2011 I was diagnosed with a large cyst on my right ovary and had the cyst removed through laparoscopic surgery. And ever since then I've had these painful symptoms of infection, acidic burning pain, bladder spasms, frequent urination then I had a cystoscopy with hydrodistension and now newly diagnosed with IC Feb 1 2012 Also now diagnosed with Pelvic Floor Dysfunction. And currently in Physical therapy for that.

                  What im trying:
                  Elmiron 100mg 3 times a day
                  Vesicare 1 a day
                  Acidophilus pills 2 times a day
                  baking soda baths
                  IC diet
                  Prelief when needed
                  Muscle relaxer once a day

                  What Ive tried and no longer on or didnt work for me:
                  Reclipsen birth control for yeast infections... it helped that go away but caused me to get ovarian cysts.
                  Estrace for vaginal dryness didnt work for me caused me to be in pain.

                  Havent tried or been disgnosed with anything else yet. Still in waiting process of healing. It seems when my stress levels are down and I follow the diet very well it helps me alot. Im taking things one day at a time and trying my best.

                  Comment


                  • #24
                    Pregnancy (two of them) has been a blessing for me. Still in remission since 2007 due to multiple pregnancies and breast feeding I just had several flares in last 5 years but otherwise IC free

                    Comment


                    • #25
                      Hi Sweetpea85,

                      I know this can seem overwhelming but trust me its definatley possible and its all worth it. I came off all my meds to fall pregnant and it was a very tough few months (possibly the toughest of my life) but it was so worth it. Dont forget having IC makes you strong so dont doubt how strong you are and will be surprised.

                      Sweetpea85, when i wanted to try for a baby i went to a medication specialist and they advised what was safe and what wasnt. Strangely enough narcotics are reasonably safe. I know it sounds full on but i saw a heap of specialists and they all advised the same thing. In saying this i am unable to take any of my good IC medication. They dont have a great deal of information but becuase they dont know the affects on a baby they advise you not to take most medications.

                      I came off all my medication and battled through. Then after only trying for 2 months we were lucky enough to fall pregnant. I had prepared myself for the worst with my IC and being pregnant but it hasnt been too bad. I actually feel better now that i am pregnant than i did a few months ago. I still have bad IC days but they are better than before and there are definately a few good days in there as well.

                      It was a tough journey to fall pregnant but now that i am i am over the moon and i have all but forgotten but i had to do get here.

                      Sweetpea85, just access your medications with a doctor and they will be able to tell you what you can and cant take. They will also give you programs to reduce and eventually cease any dangerous medications. I never had any trouble with the prenatal vitamens.

                      Sweetpea85, i really hope this helps, feel free to contact me anytime.

                      I know it seems tough but when that little baby starts growing inside your tummy it makes it all worth it.

                      Good luck.

                      Comment


                      • #26
                        Originally posted by Sbg View Post
                        Hi Sweetpea85,

                        I know this can seem overwhelming but trust me its definatley possible and its all worth it. I came off all my meds to fall pregnant and it was a very tough few months (possibly the toughest of my life) but it was so worth it. Dont forget having IC makes you strong so dont doubt how strong you are and will be surprised.

                        Sweetpea85, when i wanted to try for a baby i went to a medication specialist and they advised what was safe and what wasnt. Strangely enough narcotics are reasonably safe. I know it sounds full on but i saw a heap of specialists and they all advised the same thing. In saying this i am unable to take any of my good IC medication. They dont have a great deal of information but becuase they dont know the affects on a baby they advise you not to take most medications.

                        I came off all my medication and battled through. Then after only trying for 2 months we were lucky enough to fall pregnant. I had prepared myself for the worst with my IC and being pregnant but it hasnt been too bad. I actually feel better now that i am pregnant than i did a few months ago. I still have bad IC days but they are better than before and there are definately a few good days in there as well.

                        It was a tough journey to fall pregnant but now that i am i am over the moon and i have all but forgotten but i had to do get here.

                        Sweetpea85, just access your medications with a doctor and they will be able to tell you what you can and cant take. They will also give you programs to reduce and eventually cease any dangerous medications. I never had any trouble with the prenatal vitamens.

                        Sweetpea85, i really hope this helps, feel free to contact me anytime.

                        I know it seems tough but when that little baby starts growing inside your tummy it makes it all worth it.

                        Good luck.
                        Hi,
                        Thank you so much for your advice! When that time does come I will deffintly ask my dr. Right now all im really on is Elmiron. But I believe I can do anything that im ment to go through. It just worried me. Im not pregnant yet but really want to be able to try for children. One thing my urologist told me is (say I do become pregnant) he said to just stop taking elmiron when i know im pregnant. "Is that good advice?" I would hate to miscarry or something like that you know. Ive never had children before but since dealing with all these things I just want to do the best thing possible. I do pray I get pregnant one day. Thank you fo your advice!
                        ~Michelle~

                        I can do ALL things through Christ who gives me Strength! Philippians 4:13 (He never gives us more then we can handle, even though it feels like we can't handle it He gives us continued strength to keep going.)

                        Short view of my story:
                        Trying to learn as much as I can. I'm 27 and married for 5 years and have Been trying for children for 4 years. Have never had health issues or infections before all this. I was diagnosed with a puitary tumor (non cancerous) 2 years ago found out by high prolactin levels and MRI. I took dostinex to shrink the puitary tumor for a little over 6 months it made the tumor smaller but didnt work with my body and caused alot of pain so I stopped that. Then last year in march 2011 I was diagnosed with a large cyst on my right ovary and had the cyst removed through laparoscopic surgery. And ever since then I've had these painful symptoms of infection, acidic burning pain, bladder spasms, frequent urination then I had a cystoscopy with hydrodistension and now newly diagnosed with IC Feb 1 2012 Also now diagnosed with Pelvic Floor Dysfunction. And currently in Physical therapy for that.

                        What im trying:
                        Elmiron 100mg 3 times a day
                        Vesicare 1 a day
                        Acidophilus pills 2 times a day
                        baking soda baths
                        IC diet
                        Prelief when needed
                        Muscle relaxer once a day

                        What Ive tried and no longer on or didnt work for me:
                        Reclipsen birth control for yeast infections... it helped that go away but caused me to get ovarian cysts.
                        Estrace for vaginal dryness didnt work for me caused me to be in pain.

                        Havent tried or been disgnosed with anything else yet. Still in waiting process of healing. It seems when my stress levels are down and I follow the diet very well it helps me alot. Im taking things one day at a time and trying my best.

                        Comment


                        • #27
                          Hi Michelle,

                          Sounds like a good plan. Just follow your doctors advice and you will be fine. I spent have my life stressing about having a baby with IC and i am doing it now and its totally worth it. I have a bit of pain today but i look down at my growing belly and i would endure any amount of pain to bring this bubba into the world safe and healthy. Its so worth it, no matter how much pain i am in but to be honest my IC hasnt been too bad and i have pretty servere IC when i feel pregnant.

                          Michelle, i wish you all the luck in the world and please dont hesitate to contact me if you wanna chat.

                          All the best.

                          Comment


                          • #28
                            Originally posted by Sbg View Post
                            Hi Michelle,

                            Sounds like a good plan. Just follow your doctors advice and you will be fine. I spent have my life stressing about having a baby with IC and i am doing it now and its totally worth it. I have a bit of pain today but i look down at my growing belly and i would endure any amount of pain to bring this bubba into the world safe and healthy. Its so worth it, no matter how much pain i am in but to be honest my IC hasnt been too bad and i have pretty servere IC when i feel pregnant.

                            Michelle, i wish you all the luck in the world and please dont hesitate to contact me if you wanna chat.

                            All the best.
                            Hi,
                            Thank you for your helpful advice Also I was curious what you do for medications? Like the pricing on them... My one perscrition for elmiron (including insurace from my husband) is $55.00 alone I have an elmiron card that made it go to 20$ a month but I see the card expires at the end of this month and I was just curious what everyone else does about finances for perscritions. especially elmiron...
                            ~Michelle~

                            I can do ALL things through Christ who gives me Strength! Philippians 4:13 (He never gives us more then we can handle, even though it feels like we can't handle it He gives us continued strength to keep going.)

                            Short view of my story:
                            Trying to learn as much as I can. I'm 27 and married for 5 years and have Been trying for children for 4 years. Have never had health issues or infections before all this. I was diagnosed with a puitary tumor (non cancerous) 2 years ago found out by high prolactin levels and MRI. I took dostinex to shrink the puitary tumor for a little over 6 months it made the tumor smaller but didnt work with my body and caused alot of pain so I stopped that. Then last year in march 2011 I was diagnosed with a large cyst on my right ovary and had the cyst removed through laparoscopic surgery. And ever since then I've had these painful symptoms of infection, acidic burning pain, bladder spasms, frequent urination then I had a cystoscopy with hydrodistension and now newly diagnosed with IC Feb 1 2012 Also now diagnosed with Pelvic Floor Dysfunction. And currently in Physical therapy for that.

                            What im trying:
                            Elmiron 100mg 3 times a day
                            Vesicare 1 a day
                            Acidophilus pills 2 times a day
                            baking soda baths
                            IC diet
                            Prelief when needed
                            Muscle relaxer once a day

                            What Ive tried and no longer on or didnt work for me:
                            Reclipsen birth control for yeast infections... it helped that go away but caused me to get ovarian cysts.
                            Estrace for vaginal dryness didnt work for me caused me to be in pain.

                            Havent tried or been disgnosed with anything else yet. Still in waiting process of healing. It seems when my stress levels are down and I follow the diet very well it helps me alot. Im taking things one day at a time and trying my best.

                            Comment


                            • #29
                              Oh, slukic, this makes my day! So glad things are going well for you IC-wise. Makes me have so much more hope if I ever get the courage to combine pregnancy and IC!

                              Comment

                              Working...
                              X