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  • #1

    Nurse thought I was an idiot!!!

    So, I had my first baby dr appointment Tuesday!!! :woohoo: We aren't pregnant yet, but my Uro wanted me to meet with her to see how long I needed to wait to start trying with all the meds I'm on.
    So, we're sitting in the room and the nurse says something about us being there for fertility issues, which I guessed was kinda right, so I didn't say anything. But then she pokes her head back in and says "you're not still on the Ortho-Novem Birth Control are you?" and I said "yes". And she says "How long have you been on that?" so I told her about 10yrs and she says "and how long have you been trying to get pregnant? " The way she said it she must have thought that I was an idiot trying to get pregnant on the pill for the past 10yrs!!!!!!
    I explained it to her that yes, I know that BC keeps you from getting pregnant that I was waiting to see this dr about going off of it. I'll bet that for a minute there she felt like she'd just cured me!!!!! "I know this chick's problem, she can't get pregnant because she's still on the pill!!!!"
    Dr. gave us the go ahead!!!!! Told me to try Folic Acid and see if it makes me flare or not. Anyone else tolerate it? If so, how much? Thanks!!!!!!!
    Tags: None
    • #2
      That is hysterical! I almost think I would've had to let her believe she cured me, just so she'd have a fantastic story to tell for the rest of her life.

        Comment

        • #3
          OMG Leah!!! That was just the laugh I needed for the day!! I was literally laughing out loud.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

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            • #4
              That is a story you could tell you kid when he/she gets older! I feel bad about it being funny at your expense, but I hope you are laughing too. The nurse needs to get a brain transplant.

              ads

                Comment

                • #5
                  You should have told her you thought you could get pregnant while still on the pill. Congrats on the green light!! Good luck to the both of you.

                    Comment

                    • #6
                      lol I agree with Mary,
                      'The will of God will never take you where the Grace of God will not protect you.'

                        Comment

                        • #7
                          lol thats funny...Yea I bet she was thinking you was a little ..
                          Well congrats on the go ahead and good luck
                          Hugs
                          Ronda

                          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                          Link to Patient Handbook:
                          http://www.ic-network.com/handbook/

                          Diet Reference Sheet:
                          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                          Meds I have Tried:
                          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                          Lexapro< Bad reaction to this med!
                          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                          Dx With IC in Nov 2006 with Hydro/Cysto
                          Hydro/Cysto Caused Bladder to Rupture.

                          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                            Comment

                            • #8
                              You should have told her you thought it was a fertility treatment... boy, people just don't think things through sometimes.

                              I called an IT helpline once to find out what the error code on my computer's monitor meant, and the guy on the helpdesk said, "Ma'am, is your computer plugged in?" Uh, yeah, that's how I'm able to see this message on my screen... same mentality as your nurse. Assume everyone is an idiot.
                              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                              Wishing you happiness and good health, and all the best out of life.

                              Peace, Carolyn
                              ___________________________________________________

                              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                              On the Beach with IC

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                                • #9
                                  There was a gynecologist at the hospital where I worked who said he always tells his patients at their six week post-op check that they can now have intercourse --- because of another gyn who told a patient immediately after surgery to not have sex --- and two years later this same patient reported at her check-up that her husband really doesn't like the no sex routine!

                                  Yup! There are ditzel-brains out there! More than we know......


                                  Donna
                                  Stay safe


                                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                                  Have you checked the ICN Shop?
                                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                                  Patient Help: http://www.ic-network.com/patientlinks.html

                                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                                   [3MG]

                                  Anyone who says something is foolproof hasn't met a determined fool

                                    Comment

                                    • #10
                                      Haha! Thats Hilarious! Those are one of those "Here's your sign" moments (for the nurse that is). Well Congrats on the green light!
                                      Kat

                                        Comment

                                        • #11

                                            Comment

                                            • #12
                                              Thats funny Donna...
                                              Hugs
                                              Ronda

                                              ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                                              Link to Patient Handbook:
                                              http://www.ic-network.com/handbook/

                                              Diet Reference Sheet:
                                              http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                                              Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                                              Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                                              Meds I have Tried:
                                              Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                                              Lexapro< Bad reaction to this med!
                                              Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                                              Dx With IC in Nov 2006 with Hydro/Cysto
                                              Hydro/Cysto Caused Bladder to Rupture.

                                              Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                                              ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                                Comment

                                                • #13


                                                  Leah...You asked about Folic Acid. I have been taking it for years before IC and now with no problems. Hope we see a preg announcement very soon.
                                                  Sharon

                                                  Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                                                  Where I can be found most days.



                                                  Link to the ICN Patient Handbook:
                                                  http://www.ic-network.com/handbook/

                                                  Link to the IC Diet:
                                                  http://www.ic-network.com/diet/


                                                  IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                                    Comment

                                                    • #14
                                                      Just so you know...Im living proof that the pill doesnt always work:woohoo:

                                                      Im also on Folic acid and do pretty good with it
                                                      Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

                                                      I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

                                                      Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

                                                      I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!

                                                        Comment

                                                        • #15
                                                          Folic Acid

                                                          Your story was funny!

                                                          I am 11+ wks pregnant and I take a generic of flinstones multivitamin that has enough folic acid, I tolerate it better then most other "adult" vitamins. Hope that helps. PM me if you have any preconception questions, I have sooooo been through it with interviewing 4 MDs, then picking one, then having to change as she was clueless etc. I have learned ALOT so far.

                                                          Good luck-

                                                          Melanie
                                                          I am blessed to have an Indiana Pouch now
                                                          IC since childhood, finally diagnosed at 31 yo
                                                          PFD/Pelvic Pain,SI joint and LBP
                                                          Low Back Pain s/p spinal fusion at 19 with more nastiness in back
                                                          Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
                                                          Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
                                                          Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
                                                          Hysterectomy 2/3/12 w one ovary removed
                                                          Dry Eyes
                                                          L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
                                                          Still have issues, still take meds.

                                                          I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
                                                          Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:

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