Wanting a baby...

[Phoebe]

We were planning to start trying for another baby when I was diagnosed. My Uro told me to do the 6 weeks of DMSO then if I can make it through the summer without a flare we could go ahead and try in the fall. The DMSO helped somewhat, but what has really helped is the Elmarin (Sp?) What my question is when can I start cutting back on the meds to see if I am better. I tried cutting back a week ago and spent the morning in bed with pain killers. It was so unbelievable. Now this week I've been waking up in pain and having some during the day. I spent yesterday on the couch. I am discouraged because the summer is half over and I am not feeling much better. Any advise? I was also wondering if you stay on the diet really strictly when you go off your meds. I haven't been really careful lately, but it hasn't seemed to cause too many problems...maybe that is why things are flaring up again. So I was wondering how careful I need to be once I don't have the meds controling the pain. I would appreciate any help you could offer. Thanks!

[Teri]

What works for one person does not mean it will work for another. What ever decision you make, please talk it over with your dr.

tons of hugs

[jaime15]

Mimmy,
I hope you can find a way to deal with the pain. Teri is right though. You need to discuss with your doc and see what alternatives there are. I also took elmiron for a year and went off it for my pregnancy. I've only been w/o for a month but so far I can handle it. I hope everything works out for you!!
Tons of support,
Jaime

[Phoebe]

Thanks for all your advise. I did say something incorrectly. I am on Amityptiline which is also called Elavil. I thought it was also called Elmiron...sorry about that mistake. I went to the dr yesterday because things were really flaring up again. We decided together to increase the dose of the antidepressant and I'll have two more treatments of DMSO. The first one will be tomorrow. My husband was wondering what would happen if we just increased the meds and skip the treatments. I didn't think it would help enough because I feel like things are so inflamed again. None the less, the Dr said that pregnancy is not an option at this point untill we are able to get things under control. I feel like we are no where near having things under control, so I need to accept it as that. I wouldn't want to risk the health of a baby or my well being. I am only 26 so that isn't a problem to wait for a while, we had just wanted out kids to be closer together than what this will turn out to be. I realize that it would be foolish to have another baby now when I wouldn't be well enough to care for my family. I just hope that things will work soon, and I'll be feeling better. When you go into remission, do you get to stop living day to day wondering if it's going to be a good day or a bad day?!

[Cindy]

I just wanted to warn you that when the time comes to try to conceive, please have all of the Elavil out of your system. I do know that a side effect is cleft pallet in the fetus. I know that it isn't a life-or-death situation, but avoiding it in advance could save alot of trouble.
Cindy