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  • ELMIRON

    I have been on Elmiron for 6 months,the last month I increased my dose to 600mgs. I have mild to none pain. Although my problem is frequency. Is there anyone who has been on the drug and notice improvement with there frequency? I also heard that it usually helps with pain first and frequency later.
    I am getting very discouraged.

    JOJO

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  • #2
    First of all, I'd like to welcome you to the IC Network family. You'll find a lot of support and information here.

    I suggest you look at the Patient Handbook at http://www.ic-network.com/handbook/ --- There's information there on Elmiron.

    I had to stop taking it because I'm one of the few who develop side effects from it, but I have heard that some ICers who benefit from taking it feel like they have normal bladders. It doesn't work for everyone, however. I hope you will be one of the fortunate ones.

    Sending warm welcoming hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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