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  • Need help with ultra-sound advice!

    Hello All!

    I'm getting myself really worked up over this, so I'm hoping that those of you have done the "IC and pregnant" thing can help.

    How do you handle the later ultrasounds? I'm freaking out over the idea of having to sit for 30-60 minutes with a "full bladder" while they do this scan.

    I'm worried I won't even be able to do it right. Per the results of my cysto w/ hydro I only have 60-70% "normal" capacity. I'm getting super panic-y that I'm going to be asked to sit there for an hour, in pain, flare after, and still have them yell at me for being "full enough." Can you tell I'm spazzing? My Drs office is not effecient, I alway have to wait...I'm so worried about having to sit there in pain and have nobody understand how excruciating it can be.

    I do home instillations and I'm even considering asking them exactly how many cc's they want... I can take my supplies, empty my bladder if I need to and fill it back up with sterile water at the appropriate time.

    The reason I'm freaked right now is that I'm 35 and would like to request the "nuchal scan" u/s as a downs screen. I'm 10 1/2 weeks along and would need to do this particular test in the next 1-4 weeks.

    Please help!
    Aly
    Dx: 3/05
    Symptoms: Pain, urgency, frequency, insomnia

    Treatments: Neurontin, Ultram, Elmiron, Detrol LA, Ambien/Sonata, Prilosec/Prevacid (for GERD), brisk walks, cold packs, hot pads, meditation.

  • #2
    Aly,
    Please don't be so freaked out. I didn't know that I had IC when I was pregnant but I have always had what people would call a "small bladder." First of all have you ever had an ultrasound done at this office. My gyn may make you wait a little for an office visit but if it's an ultrasound, which they do there in the office they run RIGHT on time, never late. I would check on this. If they are in fact going to be running late then I would say start drinking water as soon as you get there or a little after. If you are anything like me, you can drink way less than what they suggest and start drinking it way later than they suggest and still be plenty full for the ultrasound. I have been pregnant once and I have endo and have had cysts. I have had my fair share of ultrasounds and I learned after the first couple if I followed their directions I would be dying (mind you this was all before I knew I had IC I just knew I couldn't hold that much water). I never asked anybody, I just knew my body well enough to know that I could alter the instructions some and I would be fine and I always have. I have to get ready to leave work, if you have more questions feel free to PM me
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment


    • #3
      I know what you mean! I'm so nervous about that too (hubby and I are TTC). Does your dr know about IC? Surely he could help you figure something out that will help you have the scan done, or at least make it more comfortable for you. The instill thing doesn't sound like a bad idea.
      Have you had any remission with your pregnancy? I'm really hoping for that. I'd been doing really well, but I'm going med-free so I'm kinda getting a little nervous, especially since they say pregnancy makes you pee more-like I need to pee more!!!!

      Comment


      • #4
        Nope. No remission. I'm not flaring any worse than normal... but definitely not anything I would begin to call a remission. I actually have to watch my diet more strictly than before pregnancy; more foods are causing flares than before.

        And I'm NOT drug free. Drs and I determined it would be better for my state of mind and for the baby's health to have the IC under control - thus staying on some meds. Several actually.

        I had a trasvaginal ultra sound at this office a few weeks ago (which REQUIRES you empty your bladder - YEAH!) and that one was OK.

        Part of why I'm freaking (I suppose) has to do with mental trauma from when I first had IC symptoms. They did an u/s to see if I had endo (which you can't always see via u/s, but whatever) or cysts or something... my bladder hurt SO BAD and I couldn't hold it any more. I was crying I was in so much pain... and the tech yelled at me and told me that the scan was useless because I couldn't hold it any more. I'm scared of that happening again.

        Of course... that was at the beginning of my IC journey.. I had little pain control and was already freaked out from not knowing what was wrong. I'm in a MUCH better baseline state than I was back then...so maybe it need not be so traumatic.

        Aly
        Dx: 3/05
        Symptoms: Pain, urgency, frequency, insomnia

        Treatments: Neurontin, Ultram, Elmiron, Detrol LA, Ambien/Sonata, Prilosec/Prevacid (for GERD), brisk walks, cold packs, hot pads, meditation.

        Comment


        • #5
          Oh my gosh Aly, that ultra sound tech sounds like a nightmare! I would have complained. The ones at my gyn's office have always been really nice and if I told them my bladder was really full and it hurt they would try to get what they needed and get it over with. I'm sure you'll be okay, maybe try the less water and closer to your appt, I hope everything goes okay. I loved my ultrasound.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment


          • #6
            Sorry for the confusion. The u/s tech for my IC was NOT the same person who works for my OBs office - the person I would see now (thank god!). Entirely different states even.

            So the lady I would see in a couple weeks, may not be as bad. I hope. She seemed very nice for the first one.

            Aly
            Dx: 3/05
            Symptoms: Pain, urgency, frequency, insomnia

            Treatments: Neurontin, Ultram, Elmiron, Detrol LA, Ambien/Sonata, Prilosec/Prevacid (for GERD), brisk walks, cold packs, hot pads, meditation.

            Comment


            • #7
              I had three ultrasounds when I was pregnant and was never asked to come in with a full bladder. They did a vaginal probe on the first one (at only 10 weeks) but had no issues with the other two. Drinking water before I came in was never even mentioned. I honestly thought they had quit doing that, since none of my friends who have had babies in recent years have had to do the full bladder thing -- it seems like it was much more common several years ago. I'd call and ask if it's necessary at all (and if they say it is, I'd ask why). Good luck!

              Comment


              • #8
                it isnt important that you have a FULL bladder....there just needs to be something in there so the tec can clearly see where the uterus ends and the bladder begins.

                so drink a bottle of water on your drive into the OB's office so your bladder won't be empty but at the same time it wont be soo full that you're in pain during the scan.
                Erika
                wife to Jeremy
                mom to Emma (3-8-05)
                and Natalie (7-23-07)


                Meds i'm currently taking:
                Lortab as needed for pain


                Meds that did not help:
                Detrol LA
                Lexapro (caused urgency)
                Amatryptaline 10mg once a day (helped IC but made me feel like CRAP)



                Comment


                • #9
                  First let me say congrats to you on ur PG. With my daughter we did all the US in the office and I did not have to have a full bladder.

                  With my son...who is now almost 8 months I had to go to the hospital to have it done and I had to have a full bladder. I'm pretty sure I had IC when I was PG with him. I won't lie to you it was hard to have a baby on ur bladder and then to have it as full as u can get it.

                  This is what I did and I am not doc or anything ok. But right before I went to the appt and while I was sitting there I drank on some water. I already knew that if I had my bladder FULL like they wanted that I would be in Pain....didn't know why at the time. So when they started the scan of course the tech says is ur bladder full and my response each time was "It's as full as I can get it"

                  This way there was something in there but not really FULL. They were able to see whatever they needed.

                  I also had bad miagraines during all 3 of my PG's.

                  With my last PG he was so low that he was pushing my bladder out....litterally you could see it. Kind gross!!!

                  I hope all goes well for you and ur hubby. Please remember this lil bit of advise.......as u will get so much about what to do with babies.

                  YOU ARE THAT BABY'S MOTHER......TRUST TRUST TRUST YOUR GUT. If you think something is wrong with ur baby ie ear infection or tummy ache whatever.....TRUST WHAT UR GUT SAYS If u feel that all is well then cool, if u feel like u should have him/her checked out then PLEASE DO THAT.

                  My oldest almost died just because I was listing to the doc and they could not figure out what was wrong with my 4 week old baby. I had a nightmare that he died....and so his daddy and I had him transfered to Texas Childrens and at 5 weeks old he had surgery and now he is 10 years old and weighs in at about 115 or so and stands at 5 1 or so and wears a size 10 mens shoe.

                  congrats again
                  Live your life to YOUR best, and Love to YOUR best!!!



                  DX in 03 with Shingles
                  Removal of Left ovary due to Cyst in 2005,
                  I have had cyst since I started my period as a child age 12
                  Hysterecotmy December 06
                  IC DX March 07 by PST
                  2 "rescue" instills in March 07
                  Cyco May 07 confirmed IC
                  Uro study June 07
                  1st Pain Block July 17,08
                  Hydro/Cysto Nov 11, 2008
                  12-11-08 was told I had alot of inflamation

                  Meds: Allergic to 6 things
                  Premarin......taking the gen cause I get it at Walmart for 4$$
                  Presique for my drepression :woohoo:
                  Abilify for my depression
                  Adderall ...found out I'm ADD...makes sense now
                  Kolopin for anxiety
                  Noroco for my pain
                  Valtrex for my shingles as needed

                  Sorry if my spelling is off on the meds [/FONT]


                  http://community.webshots.com/user/s...host=community

                  Comment


                  • #10
                    When I was pregnant, I also never had to drink the water, but when you are having the ultra sound when not pregnant and for a diagnostic procedure, you have to have a full bladder. Gosh, I have to see my gyne tomorrow for some issues I am having and am afraid I will have to have an ultrasound and worry about the 32 ounces of water you have to drink. Heck, when I did not even have IC had to do the ultrasound, it was bad, I cant imagine having one now with a full bladder like that.
                    But I really dont think you need to drink the water as you are pregnant. Also, you could just ask if you can do the trans vaginal ultrasound, that way you dont need to drink anything.
                    Jen

                    Comment


                    • #11
                      I had vaginal U/S in the beginning and later your bladder is usually full enough anyway that the drinking thing isn't a problem.

                      Comment


                      • #12
                        Thank guys! And keep the advice coming.

                        Yes, I did ask, and yes it is necessary to be "full" - the "some, but not totally full" advice may work. It is because they "cannot properly visualize some of the structures and get clear messurements with out it." And as you exit your first trimester, they apparently can't be sure of getting accurate messurments via a trasvag u/s either (sigh.).

                        I feel I need this scan - to check for the downs markers. I would like to avoid having an amnio if possible, but need to know of other indicators are pointing to higher risk before I can make a firm decision. I'd rather be in pain from the u/s that increase my risk (all be it low) of miscarriage with an amnio, if I can help it.

                        I asked the doctor about it yesterday, explained about the IC, and he said "um, yeh... that's going to be a really uncomfortable day for you. I'm sorry." But that's pretty much where he left it.

                        I'm still worried, but it's not for 3 weeks, so I'm going to try and calm down for now. On the up side, I was able to hear the heart beat via doppler (at only 10w 3d). Yeah! It was "in the 160s." Yippy! :woohoo:

                        Thank you all again!
                        Aly
                        Dx: 3/05
                        Symptoms: Pain, urgency, frequency, insomnia

                        Treatments: Neurontin, Ultram, Elmiron, Detrol LA, Ambien/Sonata, Prilosec/Prevacid (for GERD), brisk walks, cold packs, hot pads, meditation.

                        Comment


                        • #13
                          160's means a girl!!! everyone always told me that boys would be on the lower end(120's)and girls on the higher end(160-180"s)and i never truly believed it,but then my girls heartbeat was always in the 160's and my son was always around the 120's!so now i always believe in that.good luck

                          Comment


                          • #14
                            http://www.obgyn.net/english/pubs/fe...se/ehr-age.htm

                            They've pretty much disproven the whole heart rate/gender thing. It also depends on WHEN the heart rate is taken.

                            At 6w 3d it was 112, at 7w 3d it was 140, and yesterday (10w 3d) it was "in the 160s) - all durring this pregnancy. It varies quite a bit as the weeks progress.

                            I would LOVE to have a girl, but there is NO WAY I'm going to start buying frilly little dresses based on that alone.

                            Aly
                            Last edited by shvlnose; 05-04-2007, 10:22 AM.
                            Dx: 3/05
                            Symptoms: Pain, urgency, frequency, insomnia

                            Treatments: Neurontin, Ultram, Elmiron, Detrol LA, Ambien/Sonata, Prilosec/Prevacid (for GERD), brisk walks, cold packs, hot pads, meditation.

                            Comment


                            • #15
                              did somebody take my post off that i just posted awhile ago??? it seems to have disappeared

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