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My second pregnancy with IC

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  • My second pregnancy with IC

    It's been a long time since I've been active on the boards (due to my IC being pretty stable) but I really wanted to do an update post for any other pregnant or hoping to be pregnant moms with IC. I had a pretty rough time with my first pregnancy from about 5 months on. I'm currently 7.5 months pregnant with baby number 2 and happy to say this pregnancy has been alot easier IC wise. I do suspect alot of my pain is due to PFD and the fact that my pelvic muscles and all the ligaments in general have already been stretched from preg #1 likely helps. Overall this pregnancy has just been less painful even in my back and stomach muscles. I'm in the home stretch now and I've remained on all my medications including Elmiron and Ambien throughout my pregnancy. I'm having to be a bit more cautious than normal with what I'm eating these days but overall I have been pleasantly surprised this time! I'm also a SAHM now and I think that's been better for me versus working in an office full time and sitting in front of a computer all day. I'm really hopeful this post gives someone else hope if they had a rough first pregnancy.
    The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
    First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
    Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
    Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
    Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
    BABY GIRL 10/28/08 *** BABY BOY 7/8/11

  • #2
    Congratulations on your soon to be new arrival.
    <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


    • #3

      Thanks for sharing Charisse! I'm in my 4th month (first pregnancy) now and my IC has been up and down. I was pretty stable before pregnancy and knew it was going to be a roll of the dice. Of course I hoped for the remission you hear about, but I'm grateful that at least it's not really bad. My frequency and pain level have increased, but both not to such an extreme that they are unbearable. I'm glad to hear you're doing better this time around, it gives me hope this might improve!


      • #4
        Congrats on #2 I also am having my second since being diagnosed w/ IC. I havent been on the boards myself either due to having it pretty much under control. Im glad to hear Elmiron has worked someone and while pregnant too, thats good to know, my body couldnt handle it, the side effects were triggering worse IBS and migraines and I was losing my hairfor real.
        Anyway congrats and I hope your delivery goes well too. Im in the home stretch myself, so ready!!! This one is very low and has been making things very rough this time around. Not even born yet, and already a pain in my butt(literally lol)I guess thats boys
        Mrs. Ridings

        I was on...
        Loestrin 24(to prevent period induced flares)
        Elmiron since Feb.'07 for a year and half
        Atenolol for Migraines(caused by elmiron) since June '07(Had to have the amount doubled)
        Tried Prevacid didn't work.
        Tried Axert for migraines didn't work.
        Tried Frova for migraines made worse.
        Atarax Feb.'07-Feb'08
        Used to take IBS meds of all kinds, now I use Yerba Mate guayaki drinks, eating lots of fiber and flax seed, and taking probiotics and added magnesium. My probiotics help w/ flares too.

        Now for the occasional flare related to stress, I take probiotic eleven and marshmallow root and it will make it stop and Im fine again. Otherwise I dont have many problems w/ my severe IC like I used to.Thank God!

        Find the good in all things and then
        anticipate the good so that you may enjoy it.

        (KJV)Psalms 37:
        3 Trust in the LORD, and do good; so shalt thou dwell in the land, and verily thou shalt be fed.
        4 Delight thyself also in the LORD: and he shall give thee the desires of thine heart.
        5 Commit thy way unto the LORD; trust also in him; and he shall bring it to pass.