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  • #1

    I don't know what to do!

    I'm in a crisis, ladies. Today I got the list of infertility drugs I'll be on for the next 4+weeks. They are Follistim, Menopur and Ganirelix.

    Tomorrow I see my urologist because I've been trying to wean myself off Enablex and Depakote which I must not take during pregnancy. I tried to slowly wean myself off both drugs last week and my pain came back full blown. But must I be off them also during the treatments? I'm going to ask my Uro to be brutally honest with me about how he's going to manage my IC pain (my biggest problem is pressure). I trust my Dr.; he's taken care of me for 13 years and controlled my symptoms. But pregnancy is something different.

    I don't have the will power to endure a pregnancy with full blown symptoms so I'm considering cancelling the infertility treatments and forget about getting pregnant. Of course, this hinges alot on the assumption that I can conceive at age 44 with my chances being slim according to my fertility Dr. I told my husband and he urged me to wait until the appointment with my Dr. tomorrow to get his game plans and insist on a Plan A, B and C on how to control my pain.

    Thanks for letting me vent, ladies. I'm in despair!
    Current Treatments: Enablex 7.5/day

    Previously Treatments: Elmiron 300mg/day, DMSO instillations, Elavil 12.5mg/night, Detrol LA
    4mg/day

    Other ailments:
    Migraines: Imitrex, Treximet
    Anxiety/Depression: Klonopin 3mg/day
    Mood Swings: Seroquel 300mg/night
    Tags: None
  • #2
    Melissa don't give up. I am in then process oaf coming off all my meds and I agree it's tough. I have meet with a ton of specialists and they have all assured me that they will b able to manage the pain through pain killers where necessary under their supervision.

    Although it seems hard and overwhelming it's doable. I have had six weeks of IC flares but I know it's going to b worth it in the end. Fingers crossed we r like those women whose IC goes into remission whilst they are pregnant.

    I don't know about your meds it depends on how long u have been on them and how severe the withdrawals are on your body so it's best u ask your doctor. I am sure he/she will have a plan.

    Melissa I know it's hard, I am in the same boat as u and it's scary and overwhelming but if u want a family it will b worth it in the end.

    Good luck, I am here anytime you want to chat.

    Good luck, believe in your strength, U have the strength to manage IC u have the strength to do this.

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    • #3
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      • #4
        I'm with your husband --- wait until you talk with your doctor tomorrow before making decisions.


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5


          I agree with talking with the doctor. So sorry you are suffering like this.
          Frances

          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

          Other conditions: Migraines, allergies, mild IBS.

          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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          • #6
            I totally agree wait and speak to your doctors. We met with quite a few specialists when making decisions to fall pregnant and it really helped. U just need to find doctors that trust and feel safe with. Good luck

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