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Hey mom's Tell us all 3 of your favorite flare stratogies when you MUST still be mom

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  • Hey mom's Tell us all 3 of your favorite flare stratogies when you MUST still be mom

    I just got to wondering what others do to cope with your kids while flaring and home with them.

    1. We blow up the air mattress and watch movies in the living room floor. My 2 year old loves this and thinks he is on a ship and can't touch "the water" or the floor LOL

    2. Recrute the older 2 for a couple bucks to help out

    3. I tell Colten that that heating pad only helps if he is holding my hand. He will watch movies, color, or do whatever holdong my hand to make me feel better. He also likes to water color on me with only water and a brush. He paints my hands and nail.

    Whats your helpful hints for flare survival with children

  • #2
    GREAT idea, Leslie!

    * One that I can think of, that I've not used myself, would be to go to the dollar store or somewhere cheap and buy a bunch of stuff that you can put into a rubbermaid type box for those flare days or moments. Only let the kids use the things in the box during those times when Mommy or Daddy needs a break.

    * Another would be to play a board game in bed or from the couch.

    * Get a big plastic tablecloth and spread it out on the bed or on the floor and play Play-Doh.

    * Have a couple of special videos/DVDS that the kids only get to see when Mommy or Daddy is flaring.

    * Get a nice lawnchair or hammock that you can relax in while the kids play outside or on the patio, screened in porch, etc.

    * Those Magic Wonders books/papers and markers are wonderful for kids to use in bed with you - again only used during those flare times so they are super special for the kids.

    * Have the kids put on a puppet show for you.

    * Legos are good for older kids to do with you in bed.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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    • #3
      Whoops! Just saw you asked for 3. LOL
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

      Comment


      • #4
        One thing we started at a very early age and continue now is hanging out in the bed or on the sofa and reading my 5 year old's favorite books.

        He's writing now, so I get him to write everyone's name....which can take awhile but it keeps him busy.
        Tons of support,
        Jaime

        IC angel helping families in need for the holidays. [email protected]

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        • #5
          LOL Kim the more the better. Those are great ideas!

          Comment


          • #6
            Those are all great ideas! I also do the "treat box" only for when I am sick and go to the Library once a week for videos and books and hold some out in case I need a few hours of peace. Lastly, I try to make double and triple batches of things when I cook and freeze the extras, that way if I am flaring, I can just pull something out and throw it in the oven and we have something homemade.

            I love all those ideas so far! Keep em coming!

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            • #7
              My children are all adults now, but when they were grade school age, I let them climb in bed with me and watch scary movies --- and they would cover their heads in the scary spots. My youngest was my "water" boy --- he learned in school that it's important to drink enough water so he was certain that I got plenty to drink. Sometimes we had reading sessions, taking turns reading to each other.

              One thing I learned is that my children grew up with an understanding and compassion for others that they never would have developed if I had been healthy during their childhood.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                Im not a mommy yet, but I gotta tell you these are some great ideas. It never even crossed my mind the reality of having children during a flare! This is a real eye opener for me. You ladies and gentelmen who have kids are my heros! Thanks again for the great ideas, hopefully someday I will be able to experience the joy of having children.

                Erika
                IC diagnosed officially via cysto/urodynamics 1/26/07

                Grade II Endometriosis diagnosed via lap 12/11/07

                "Fall down seven times, Stand up eight."

                "Life is a tragedy for those who feel and a comedy for those who think."

                Current Treatments:
                Interstim Since 5/25/07!
                Birth Control

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                • #9
                  I don't really have any special tricks. The older step children help out more when I'm flaring and I usually put Griffin's favorite shows on ON DEMAND, that thing is a life saver! Sometimes if I can find something he really likes to watch he'll even let me take a little cat nap on the couch and he'll just sit next to me. If I'm really flairing I also take a nap while he's napping, of course this only work with toddlers that actually take a nap.
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

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                  • #10
                    Such great iedeas!

                    I am so glad to get new ideas from others, especially for young kids (mine are 2 and 7)

                    I try to give them little "jobs" to do, sometimes things that are helpful, sometimes things that are fun: putting my slippers on my feet (they actually like it, I swear!), getting my heating pad for me, finding soft pillows, picking out a movie or book, etc. My oldest does like to get bottled water out of the fridge like Donna had suggested.

                    My 7 year old has ADHD and some sensory issues, so when I really hurt we often practice some of her relaxation exercises her Occupational therapist gave us. These include lying still (me on my side) and letting all of our body parts starting with our toes up to our heads slowly relax. I usually only give it 2 to 5 minutes because she can't hold still for much longer! Another quick one we both like is taking 10 slow breaths with our eyes closed.

                    Tonight we took the dress up clothes and put them in the livingroom. I laid on the couch and relaxed and they put on a "dress up show" with singing and dancing for me! It might even work for boys, just depends on what you and they are comfortable with.

                    Thanks for the treat box idea! I love it! I had never thought to have something fun set aside for when I don't feel well. It always felt like a time to trudge through and try to survive.
                    So nice to get some helpful solutions!
                    Last edited by RAS6; 03-09-2007, 03:53 PM.
                    Rachel
                    DX's:
                    IC; PFD; possible Fibromyalgia; IBS;

                    Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                    I've Tried:
                    three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                    Currently using:
                    Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                    Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                    I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

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                    • #11
                      I call the direct connect line...
                      Have Ash watch him for me to lay down, if Jake won't nap
                      Watch cartoons lol
                      drag out tmx elmo
                      'The will of God will never take you where the Grace of God will not protect you.'

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                      • #12
                        Hey tigger gal, is the TMX Elmo for Jake or for you? That things cracks me up! Our 2 year old loves hers, but I think my husband and I play with it more than the kids!
                        Rachel
                        DX's:
                        IC; PFD; possible Fibromyalgia; IBS;

                        Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                        I've Tried:
                        three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                        Currently using:
                        Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                        Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                        I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                        Comment


                        • #13
                          OMG I hate that TMX Elmo. HE was so fun the first 30 minutes then it has been all down hill LOL

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                          • #14
                            lol ras.. I still play with him
                            'The will of God will never take you where the Grace of God will not protect you.'

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                            • #15
                              Don't forget to ask for help. Grandparents are wonderful when moms don't feel good.

                              Ginny

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