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  • My daughter has mono

    My daughter, champion athlete and boundlessly energetic 12 year old, suddenly turned into a wet noodle -- couldn't even make it up the stairs without help, it was as if someone had unplugged her power source. So, off to the pediatrician and guess what? Yup, mononucleosis. This should be a lot of fun for my husband, with both she and I pretty much down for the count. I keep trying to remind myself that it's only a virus and it will pass; things could be much worse. But still, it's heartbreaking to look at this pale, gray shadow of my daughter, asleep half the day and half asleep all day.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

  • #2
    oh no poor baby, once you have the virus you have it for life, it lays dormant in your system until something triggers its ugly head. it can take a month to 6 weeks for her to be back on her feet.. sending big hugs your way.
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      One good thing is that it may take a while, but she will recover. I know it's so hard to see our babies be sick. And it doesn't get easier when they are all grown up and living away from home either. Maybe the two of you can hang out and watch a movie or two together.

      Sending warm hugs,
      Donna
      Stay safe


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      • #4
        Ugh. I had mono in high school and its so draining. You just can't hardly do anything. Make sure she gets all the rest she needs. When I got mono we didn't find out right away and I got strep throat on top of it. My body didn't fight it off properly so now I have chronic fatigue. Hopes she gets to feeling better soon.

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        • #5
          Just wanted to tell you again how sorry I am your daughter has mono. It kills me whenever Collin is sick with anything. I am a total, blubbering, basket case even when he has a cold, so I would be inconsolable if he had mono!

          She is lucky to have a Mom who understands what the exhaustion is like and who is so nurturing. I know you will take good care of her.

          I just hope that you dont overdo it and wear yourself out! I hope that you let your husband take over when he is home so you can get YOUR rest!

          Just a few ideas to make her as comfortable as possible:

          1) If you have old baby moniters, put one in her room, and the in your pocket (or beside you in whatever room you're in.) That way, if she needs you, she wont have to yell and yell, tiring herself out more.

          2) If she doesnt have a nitestand that is very big, (or if it is too full with other things), place an ironing board beside her bed to use as a table to hold tissues, snacks, a water pitcher and cup, meds, reading materials, and anything else she needs or wants nearby.

          3) If she has a tv in her room, but no vcr or dvd player, consider moving the one from the Living room in there while she's sick. Then, go to the library and rent videos for her. It will be easier for her to watch those than reg tv shows right now, b/c with reg shows, it will be hard for her to stay awake for the whole time. But, with videos, she can pick right back up and watch the remainder, if she falls asleep. (It would also be a thoughtful thing to tape her very, favorite shows for her, while she is sick.) If you go to the library to check out videos, you can keep them for 2 weeks, (at least in our town). And our library lets each person check out 10 DVDs and 10 videos per visit. So, that's alot for free!

          Also, most libraries have a website so she can "shop" for her own books and videos. Then, she can put a hold on them, and have you (or your husband) pick them up for her.

          4) You could also go by a beauty shop and ask them to save the mags for her, when the new month's mags come in, instead of throwing them away. She will enjoy having the variety. (I have never known an teenager...or 13 year old who didnt love magazines!) Plus, mags may be easier for her to read right now than books, since she will be too tired to read very much at one sitting.

          5) You might also consider springing for some new pjs for her, since she will need the extras, as she wont be feeling up to getting dressed for a while.

          6) A new set of sheets would also be thoughful right now, (and easier for you, since you will be having to change hers more often, with her spending more time there.

          7) It would also be nice to get her a nice spring plant to help bring the outdoors inside for her, since she wont be able to get out much to enjoy the spring flowers.

          8) If you have to leave her to go to the Dr. or store, or if you will be gone a while, it would be helpful to put a small cooler by her bed filled with drinks and a sandwich and snacks. (When I had mono, I was SO tired, that the simplest tasks would exhaust me, like going to the fridge for a drink.)

          9) If she has a phone, turn the ringer off in her bedroom, so it wont wake her when she is sleeping. (If you have caller-ID, she can always see who called and call them back if she feels like it, after she wakes up.)

          10) Since she doesnt drive, it would be thoughtful to offer to go and pick up one of her friends (and offer to take her home) for a short visit. I am sure she misses them terribly and at 13, her biggest fear is that they will make new friends and forget about her when she goes back to school. So, anything you can do to keep their bonds strong, is a good thing and will help calm those fears.

          11) Just one more...if she is hurting, and falls asleep, it is much kinder to her to wake her up in the middle of the night and give her her meds, than it is to let her sleep and wake up hurting worse. Same thing for fever. (Others may disagree with me, but when I am hurting bad (like today), I set the alarm to take the meds around the clock, that way, I dont wake up with rebound pain. It is easier to keep pain and fevers down than it is to bring them down.
          That's about all I can think of, but I am sure you have probobly already thought of most (or all of them). But, just wanted to mention them, just in case.

          I hope she gets better soon. As you can see, I have a soft spot for sick kids. I also hope you remember that just like they tell people on airplanes, "You have to put on your own oxygen mask first to be able to help others."

          Hugs,
          Amy
          Last edited by ihurttoo; 03-30-2007, 01:05 PM. Reason: typo

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          • #6
            2 years ago my daughter had a 105.2 degree fever, went by ambulance to the ER and turned out to have mono and pneumonia. I was FREAKED out....but the worst of it was she missed 14 days of school because they wouldn't allow her back before that. Just help your daughter by giving her the abx, lots of fluids, tepid baths, and get in touch with all of her teachers. It's HARD on us parents, and it's not too much fun for the kiddos either. I've been there, and I'm sorry!
            *IC-- Summer 2004; PFD--October 2005
            *Fibro--Fall 2000; CFS-- Fall 2000
            *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

            Total Abdominal Hysterectomy--adenomyosis--9\08

            04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

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            • #7
              I was 12 when I got it too, I have always been real athletic and caught it from sharing water bottles. All of Amy's tips are great ideas and I know if those thing were done for me, it would have been 100% easier for me to cope and heal. You are also so compassionate which will help, I got tough love. She will be fine.
              Hang in there, I know if you could take it all away you would.

              Erika
              IC diagnosed officially via cysto/urodynamics 1/26/07

              Grade II Endometriosis diagnosed via lap 12/11/07

              "Fall down seven times, Stand up eight."

              "Life is a tragedy for those who feel and a comedy for those who think."

              Current Treatments:
              Interstim Since 5/25/07!
              Birth Control

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              • #8
                Poor thing, I know how she feels. I had mono about 10 years ago right after I had my baby and the first week I didn't know if I was coming or going. The more rest she can get the better. Hope she feels better soon.

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                • #9
                  So sorry to hear about the mono. I've never had it myself but one of my friends in college had it and that was one of the sickest people I have ever seen. He was a 20 year old man laying in bed crying, so I can only imagine how it makes you feel. I'm sure that you'll nurse her back to health in no time though.
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

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                  • #10
                    Im another one with bad mono memories. I got it when I was 16. I got it mothers day weekend and missed the rest of the year of school. I ended up in the hospital for a weekend because I was dehydrated and my throat almost swelled shut. Not fun! I remember being sick during the OJ trial. I timed my naps (I was sleeping 20 hours a day) so that I could watch the verdict. (I know..weird, but at the time, there was nothing else on tv)

                    I will be thinking of your daughter and praying that she gets better soon.
                    Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

                    I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

                    Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

                    I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!

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                    • #11
                      Thank you all for your good wishes, and special thanks to Amy and Erika for specific suggestions. Amy, you are SO good at that!

                      She has a million pairs of flannel pants, oversize t-shirts, and sweatshirts, because that's what all the girls wear to swim practices and meets. And she has her cell phone with her, so she can call the house phone if we don't hear her yell. So I think we're okay on those counts. She does not have a TV in her bedroom (nor will she ever ), but we have her settled on the sofa bed in the family room, with the TV and DVD player. Granddaddy rented a couple of DVD's for her yesterday, and she owns quite a few. Usually when she's sick she just wants to watch the same things over and over.

                      Now, the problem is, she's supposed to drink lots of fluids, and she isn't cooperating. We have been offering alternatives, but it's harder because she has Type II Diabetes, and she can't have any sugary drinks, including fruit juice, bc. they make her insulin levels go insane. But she doesn't even want the diet ginger ale, or anything. I'm going to try to get her some sugar-free popsicles, and maybe she'll suck on them and get some fluid in her that way. All suggestions welcome!

                      She is not in pain except for headaches, but she is one of the lucky 10% to get the accompanying rash. So the doctor advised giving her benadryl for the itching. I guess it is okay, since she's sleeping all the time anyway.

                      It's just so hard to see her suffer. I would rather have the mono myself than have her go through this. I actually have had it, and I was down for about four weeks. My understanding is that the virus has to run its course, but the time that takes can vary a lot. Nurses, is this correct?

                      Fortunately the upcoming week is the school vacation, so she won't miss anything, and then we'll just have to see how she is. She's a good student, and Jack and I can certainly tutor her for her schoolwork, but right now there is no possibility that she could do any work. She can't stay awake. She fell asleep at the dinner table yesterday.

                      Oh, Amy, we have a wonderful bed tray, it works a lot like the ones you get in the hospital, that go under the bed and roll, you know? We found it in my grandparents' attic when we were preparing to sell their house. It's adjustable in height and angle, and it has a rim on the bottom so things won't slide off. Just what she needs. It's probably 60 years old, but it works perfectly.

                      OK, sorry to go on and on about this. I know I'm not the only mother in the world dealing with a sick child, and I know there are much worse things that could happen to her. I know that intellectually, anyway, but in my heart...
                      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                      Wishing you happiness and good health, and all the best out of life.

                      Peace, Carolyn
                      ___________________________________________________

                      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                      On the Beach with IC

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                      • #12
                        Carolyn:

                        The virus does need to run its course as far as I know(im not a nurse though) But when I had mono my doctor said that 12 yrs old is on the "brink" meaning she could have it for less time than an adult. I had it for only 2 weeks, however my spleen stayed inflammed for almost a month. Make sure when she gets better the doctor checks her spleen before she gets back into the pool. I will pray that she only has it for two weeks like I had. Your doing s great job and she is lucky to have you as a mom. I also refused drinks, I can remember I had streep on top of it and my mouth and throat was covered in white sores. My mom gave me broth-like soups and sprots drinks to replenish my electrolytes. I know that power aide makes a sprots drink that is sweetened artifically so I think she could have although I don;t know all that much about diabetes. Hope this helps.

                        Erika
                        IC diagnosed officially via cysto/urodynamics 1/26/07

                        Grade II Endometriosis diagnosed via lap 12/11/07

                        "Fall down seven times, Stand up eight."

                        "Life is a tragedy for those who feel and a comedy for those who think."

                        Current Treatments:
                        Interstim Since 5/25/07!
                        Birth Control

                        Comment


                        • #13
                          Don't they make sugar-free popsicles?
                          I remember that and gatorade was ALL I had for a month......talk about great weight-loss.
                          I was 15-16 when I got it. I remember being out of class for three weeks. And when I returned to school, it was for half days only for one month.
                          It's really important she doesn't push herself when she does start feeling better.
                          Your body goes into remission, of sorts, and anything strenous for 6 months could trigger her getting it again. At least that's what my pediatrician told us.
                          I ate off paperplates and cups too. Everyone in our house was afraid to come near me.
                          I hope she gets better soon and you guys get to enjoy a little down time together......
                          Tons of support,
                          Jaime

                          IC angel helping families in need for the holidays. [email protected]

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                          • #14
                            Erika -- Everything helps, and most of all knowing that people care enough to give their time and energy to try to help us. Thank you.

                            Sandy -- I forgot to thank you also, for your suggestions. Then I tried to edit the post but for some reason that kept freezing my computer. So, thank you!

                            Jaime -- Yes, fortunately there are a lot more sugar-free products available than ever these days. It's just that it's hard for me to get out to the store, and my husband has been on a business trip and only got home at 1:00 this morning. He will go out this evening and get a variety of things to try to tempt her. Everyone in the house has already been exposed to mono so we're not too worried about contagion.

                            Amy -- Strange, since you are nearly always right about everything, but Susannah is not 13! She just turned twelve in mid-march; she's in sixth grade. I definitely need another year to adjust to the idea of being the mother of a teenager! Although, there is no such word as 'teenager' in French; she's already an "ado," an adolescent by French standards, and would probably be drinking wine with dinner regularly by now, had we decided to settle there. Fortunately that's one thing we don't have to deal with here; I understand you're not supposed to drink alcohol for some period of time after mono.

                            I guess we'll be seeing the doctor in a week or so, to check her progress and plan what to do. Her spleen is only slightly tender and the doctor thinks it will be a mild case, but he did say he could be wrong, it could get worse. Whopee. No one seems to be able to predict what will happen, so we'll just have to cope with the situation as it evolves.

                            She's too tired to be bored, even, or restless, but once her energy starts to come back, it is going to be very hard to hold her back in swimming. She does year-round, five day a week, two-hour practices, plus dry land training, and she does this because she thinks it's fun. We think it's insane, but it's her life, her choice, as long as her schoolwork doesn't suffer. Oh, well, we don't have to worry about that yet, I'm just borrowing trouble.

                            Again, thank you all for your concern and your helpful ideas, and if you think of any others, please pass them on!
                            Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                            Wishing you happiness and good health, and all the best out of life.

                            Peace, Carolyn
                            ___________________________________________________

                            Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                            On the Beach with IC

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                            • #15
                              Oh, I had mono when I was 14. I was sooooo sick. I also had strep throat on top of it at the same time. I remember the only thing that helped me get better was when they put me on steroids. But I was weak for weeks after that. I hope she gets better real soon. The best medicine for her is total rest. Sending Big Hugs your way.
                              Jen

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