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Mono Update

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  • Mono Update

    Thank you so much, to everyone who posted or PM'd me to express sympathy and ask how my daughter is doing with the mono.

    Well, I'm happy to report, she must have the lightest case on record. She is already well enough to be bored; today she has a friend come over to watch a DVD with her, and she is down to about one nap per day. Our doctor said she might be able to go back to school as early as next week. I don't know about that, but tomorrow we will start trying to get her to do some schoolwork.

    Thank you all again for you concern and well-wishes.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC

  • #2
    :woohoo: :woohoo: :woohoo: :woohoo:

    What a blessing! I'm so glad she is doing so well. I will continue to pray for a speedy recovery! Thanks for keeping us updated, I was very concernd having had mono myself.

    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control


    • #3
      haha.. good luck with the homework!

      That is so cute, and such good news to hear. When they are bored, you know everything is going to be just fine! Now the homework on the other hand, well best of luck with that one. warmest of regards to you all... may the best of health, wellness, and peace of mind... be with you and your loved ones from now and til forever. P.L.U.R.
      Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

      Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

      Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.


      • #4
        So happy to hear that she is feeling better. Very lucky that it's such a mild case.

        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus


        • #5
          That is great news! I agree...when they are that sick, boredom is a good sign! I hope she continues to get stronger every day. I know you have been very, very worried. I am sure the great care you have shown her has helped her improve so quickly. I hope she continues to feel better!



          • #6
            I am so happy to hear she is feeling better.. sending her big hugs and well wishes.
            'The will of God will never take you where the Grace of God will not protect you.'


            • #7
              WOW... that is quick. When I was in high school, a good friend got mono and also had the same quick course. She was pretty ill for a week and a half, but then was able to return to school and everything! I'm so glad your daughter had that same kind of luck

              *Diagnosed with severe IC in 2004
              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


              • #8

                I was gonna have all the mommies in the house help with a get well basket if she had been hospitalized. So glad she is feeling better. Give her more hugs from all of us


                • #9
                  Thanks, everyone. It's amazing to think that so many people all over the country have been thinking about her! Wow. Now we have to make sure she doesn't push too hard, too fast.

                  As for homework, she is looking forward to finishing her book report because she was really excited about it (Gone with the Wind), and is a little nervous about falling behind in Algebra, so she'll be okay about getting back to work. She's a great student. She is lucky in a way because this week is Spring Break, so she really didn't miss much. Except the break, I guess LOL

                  I read her some of the posts about her, she would like me to tell you all, "Merci mille fois!" (a thousand thanks).
                  Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                  Wishing you happiness and good health, and all the best out of life.

                  Peace, Carolyn

                  Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

                  On the Beach with IC