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  • Bad day @ hospital w/daughter

    Yesterday, I took Logan to the hospital for her kidney test. As someo f you know she was born with kidney and heart problems. It started bad and went so down hill.

    We left home at 545 for the 2 hour trip there. 8AM we started in the lab with tons of u/a's and labs that were all fasting. I ask the lab to have someone come and put a Hep lockin as her tests required an IV and to avoid all the sticks with 1 pok, ok the lab tech missed the first vein and had to stick her again and the kid almost passed out. The lab tech assured me that the test would not need and IV ok whatever. We head to nuclear med for the MAG 3 renal scan and guess what, here they come to insert and and IV. She just about flipped out and then procedes to throw up on the lady inserting the IV. This lady looks at me and ask "Didn't you prepare her for this?" Well yes until your lab assured her differently. She then goes on to explain that they require a cath for this now and the kid was a complete nervous wreck and stands up to go to the waiting area and almost passed out on me good thing mom's have good reflexes. We go to the waiting area and this older RN comes to get us to cath her and starts prolonging this by trying to explain cathing to her like she was 21, using medical terms way above her head. I have to look at this woman and get blunt and interupt her and tell Logan that she was gonna insert a rubber straw and drain pee for the 45 mintues test. She tells Logan to frog leg it and the kid is so tense and almost passes out again because she was so worked up. another glare to this lady and she finally gets the hint to get with it. She cleans her off and inserts the cath and then the kid did pass out, smelling salts in hand they all came running. The tech finally got the rude nurse out of there and the kid calmed down and got the test done. We then had to have a kidney U/S.

    By the time we got to the Dr and seen and her fed at 130PM she was exhausted. Her bad kidney is do about 25% of the work it should be and her good one is picking up the slack. The bad one is very atrophic but not enough to warrant any surgical intervention as of now. Her BP has been elevated the past 3 months and we are monitoring that for a few more weeks at home where she is comfy to see if the BP meds are needed again.

    By the time all this was over and I finally got home, I wanted to rip everyone a new butt for her trauma and my bladder out from the flare.

    Thanks for listening!!!!!!!!

  • #2
    that sounds awful

    I'm so sorry you and your daughter had to go through this!! It sounds like a nightmare, poor kid. You sound like a good mom and she is lucky to have you. I hope she (and you) get to feeling better real soon. Much love! L
    Lee Ann
    Current Rx Meds:
    Atarax, Ditropan, Elmiron
    Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
    Hooray for babies!
    Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
    Didn't work for me:
    Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
    IC (Mod-Severe) since 1996

    UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


    My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

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    • #3
      I am so sorry you and your girl had to go through all of that. My daughter who is 19 now had to have so many test when she was younger, kidney test like the one you mentioned. She has a seizure disorder and was always wetting herself. Luckily that worked itself out, but as a mom I would sit there and cry because my baby was being hurt, I knew that she had to have these test, but it didn't make it any easier.

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      • #4
        Leslie...Please give Logan a (((hug))) from me. I am so sorry she was treated so badly. You, my dear are one great mom. Here comes a (((hug))) for you, also.
        Sharon

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.



        Link to the ICN Patient Handbook:
        http://www.ic-network.com/handbook/

        Link to the IC Diet:
        http://www.ic-network.com/diet/


        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          When someone treats our children bad we want to rip hair, throw punches and then some. I am so sorry she was treated so bad. I hope she is not so frightened of the hospital now. (((((((((((logan))))))))))))))
          God grant me the serinity to withstand the days ahead!!!

          My myspace link...
          www.myspace.com/patricia_luvs_matt


          Patricia

          In Memory of My Father (Lawerence) 1/25/2007

          Procedures:
          Interstim Sept 2001
          1st InterStim Removal May 2005
          2nd Interstim Implanted May 2005
          2nd InterStim Removed March 2007
          Hysterectomy 1999
          Tubes Tied 1997
          C-Section 1996


          Me and my kids


          Taylor (my daughter) Me and my daughter My son Cody and Taylor

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          • #6
            Leslie,
            You know my feelings on yesterday!! I am just glad she is better!

            Hugs,
            Barb
            (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

            [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
            :angel: IC Angel Volunteer Coordinator :angel:
            :) Contact me via PM or e-mail if you would like to help
            I have learned all about life in 3 words: It goes on! :D--Robert Frost
            PCOS 7/85
            RSD 7/94 :headbang:
            Endometriosis 9/98 :toilet:
            Antiphospholipid antibody syndrome 9/99
            Kidney stones--too many to count
            Factor V Leiden mutation 10/02
            IC 6/03 :evilsmile
            Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
            "Spirit is an invisible force made visible in all of life"--Maya Angelou
            "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

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            • #7
              If she has to have tests in the future, I suggest you talk to your doctor about giving her a relaxant prior to all the testing.

              Sending gentle hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

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              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                Thanks, everyone

                Donna, I did ask for some sedation or relaxant then once she had calmed down to procede. They told me NO! They were behind schedule already.

                Patricia, Thanks, I can't imagine having to have this test again.

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                • #9


                  This sounds horrible! I'm sorry it happened. I bet you are glad it is all over now!!!
                  ****
                  Jen

                  *Diagnosed with severe IC in 2004
                  *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                  *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                  *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                  **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                  • #10
                    I'm with Donna--she needs something to make the day go smoother. The tests she went thru are not fun at any age but so hard when your a child. You need something too us moms can not stand to watch our babies suffer.

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                    • #11
                      Oh My. I can't even bear to think of that being done to my little girl. I think we would both be passing out. What dreadful treatment from that nurse.
                      hugs,
                      Janie

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                      • #12
                        I am so sorry to hear she had to go through that! As a mom myself I would rather go through anything than having to see my kids in pain. I hope she feels better today and won't have to deal with insensitive people like that again! Nurses should know better when they are dealing with kids. Even if they don't gave the best bed side manner, children usually bring out a tender side in people who are supposed to be healers!
                        Rachel
                        DX's:
                        IC; PFD; possible Fibromyalgia; IBS;

                        Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                        I've Tried:
                        three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                        Currently using:
                        Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                        Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                        I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

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                        • #13
                          OMG Leslie... I am so sorry..
                          Poor child, I bet is was so hard on both of you... ((((((((((hugs)))))))))
                          Hugs
                          Ronda

                          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                          Link to Patient Handbook:
                          http://www.ic-network.com/handbook/

                          Diet Reference Sheet:
                          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                          Meds I have Tried:
                          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                          Lexapro< Bad reaction to this med!
                          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                          Dx With IC in Nov 2006 with Hydro/Cysto
                          Hydro/Cysto Caused Bladder to Rupture.

                          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                          • #14
                            Hope your daughter feels better soon!

                            Diana
                            (\__/)
                            (o.O )
                            (> < ) This is Bunny. He's on his way to world domination.

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                            • #15
                              OMG Leslie,
                              I remember how upset I got when they had to stitch up Griffin's head when he busted his head open and that was over much faster than what you had to go through. I think I would have kicked or punched one of those nurses with all of those problems. I hope Logan's feeling better now, I love that name, my oldest step son's name is Logan
                              Christine



                              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                              I have tried every oral medication as well as rescue instills and DMSO.

                              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                              Also proud mom to the best Bullmastiff on earth, Claus

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