Announcement

Collapse
No announcement yet.

Does anyone feel like they are ripping their kids off?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Does anyone feel like they are ripping their kids off?

    Does anyone feel like me and think their kids are ripped off because their mother has to say I can't do that I am to sore, or honey can you fill mummies water bottle and make me a cuppa? The poor little things! my husband keeps saying it will turn them into considerate loving people, I hope so, I just feel like they are missing out sometimes.

    I have a 9 year old boy James a 7 year girl Aimee and 3 year old Chloe (who also has bladder problems).

    PLease give me some idea what you all do

  • #2
    Oh I feel like this alot.. With my kids and my husband..I am just very thankful I have a understanding husband that always tries to do for the kids when I cannot..I hope everything will get better for you.. ((((((((hugs))))))))))))
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I know what you mean. I worry that my little boy will grow up thanking mommy was all ways sick like it is an excuse to get out of stuff.
      I am 28 and have been married for 7years. I have two boys one is 6 and the other 2. I have worked at the same job for 10 years.

      Comment


      • #4
        My kids are adults now and here's what it did to them....

        My oldest son is described by his wife as gentle, caring, and not afraid to help around the house, especially if she doesn't feel well.

        My younger son married a girl who has migraines. She says she doesn't know what she would do without his understanding and compassion. She lost her dear mother to cancer last November and I am very proud of the caring my son showed to her when she was ill.

        And my daughter, who is not married, is one of the kindest, caring persons I know.

        I also have four caring step-daughters.

        Maybe they'd all have grown up the same without my illness, but it certainly didn't effect them negatively in any way.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Thank you for your replys it's nice to hear others go through the same and to hear about grown up children turning out to be caring people.

          I"m having a shocker today even started crying in the pharmacy an hour ago because my medication which I ordered a week ago didn't come in, so those of you who pray I would appreciate your pray.

          Comment


          • #6
            I have to mimic Donna's comments. I thought being sick was making me the crummiest mom on the planet.

            I learned to prioritize very quickly. I also had a lot of motivation to find ways to get better (and a lot of that is due to the wonderful support here on ICN).

            My kids are now 25, 22 (girls) and 20 (a son). They are all wonderfully compassionate. They know when I am not feeling good before I do many times. They are also the first ones to buy funny little gifts for me like the little silver toilet I have on my desk, and goofy "potty" talk greeting cards. Way too funny..............
            Julie Beyer, MA, RDN
            IC Dietitian, Patient Advocate, Speaker, & Author


            Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

            Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

            You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

            ........ ........


            Other IC Diet Resources:

            IC Diet Webinar
            IC Diet Website
            For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
            Free IC Diet Booklet: What Can I Eat?
            Confident Choices IC Diet Blog
            IC Diet Newsletter


            *Let's Connect!*

            Comment


            • #7
              I feel this way too sometimes but I try to make-up for my down time with great up time. When I'm down we lay in bed and talk/watch TV. I also let them have friends over--I just make it clear I can't drive. (son 15, daughter almost 12). When I'm up we go shopping, out to eat, they can have friends over and they don't have to clean their rooms first. I'm creating spoiled children but their good and loving and compassionate. What more can you ask for?
              The one thing I'd like to get a handle on is how short I am with them when I'm in pain. I have zero patients--if someone knows how to fix that I'd love to know?

              Comment


              • #8
                One thing I learned with my kids is that if I was having a bad day I would tell them I was having a bad day. I would also tell them sometimes that I was having a grouchy day or that I was feeling cranky. Their usual response to that was a hug! It's hard to feel cranky in the middle of a hug....

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  I feel that way a lot, My daughter is 18 now, and she actually knows by looking at me or how I talk if I am having a bad day. She helps me out a lot. Hubby is just now catching on.. it only took 9 yrars
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment


                  • #10
                    I have the same problem. i think that is a big issue with women with this. my kids ususlly can tell how i feel when i walk threw the door. i do feel useless at times because i am either to tired or in to much pain to do anything. i get agravated because i cannot take them to their soccer practices or go out side and jump. That is why when i have a good day i tend to overdo it which is bad, but i don;t know how else to cope. good luck
                    Wendy Cowan
                    [email protected]
                    http://www.myspace.com/wendyistheworld

                    IC since Oct 2005
                    Endometriosis since Feb 2007

                    Comment


                    • #11
                      I felt like this too, my kids are 18 and 23 (both boys) and my oldest I never knew how he felt about me till the other day, when I was in his room cleaning it up (found a piece of paper with his feelings on it -made me cry!) but he really never did anything for me without complaining. My youngest always did and still does. I think as my husband says that one of these days it will make them into strong and helpful men.

                      Comment


                      • #12
                        YES! I posted about this a while ago, I think I called it "Wheel Out the Bad Mother Award." That was the day my daughter got hurt in the kitchen. I heard her crying and ran (well, it was a fast hobble) down the two flights of stairs to get there from my bedroom. She had slammed her head into a cabinet door, or something. So I was giving her tylenol and ice, and helping her up the flight of stairs to her room, and she apologized to me for making me get up to help her. I felt absolutely awful. She was only 11 at the time, and she felt guilty for getting hurt because it interrupted my rest time. I felt like I was being stabbed in the heart.

                        BUT -- all these other, more rational mothers on the boards responded, telling me my daughter is showing maturity and compassion. Just like they did for you. And I have to believe they're right, because other people often tell me how kind and helpful Susannah is -- she stands up for kids who are getting picked on, she opens doors when she sees people with wheelchairs or strollers struggling to navigate, she started working with the littlest kids on the summer swim team, helping them not to be afraid, when she was ten. She is the reason we adopted a puppy from a kill shelter and a dog who was taken out of an abusive home. She knows how to do laundry, make simple meals, and sort and bundle the recycling (we have mandatory recycling of seven items in our town, so this is no small job!).

                        What I'm trying to say is, I think that everyone is right. Our kids do suffer, but that suffering makes them stronger, more compassionate, more self-confident people.

                        And as we feel our way along this journey of illness and parenthood, we've come up with things she and I can do together, even in my bed. Sometimes she brings her homework up, and props herself next to me while she works. Sometimes she cuddles up to me and we invent word games. Recently she has been very interested in improving her French, so we work on that. Or if I'm really out of it, we can always watch a movie together.

                        I'm very fortunate that my husband understands and tries to spend time with her, but he's the CTO of his company and he works a lot of hours. I'm also lucky that my parents live in the same town as we do (well, that was planning, really), and that they are nearly always willing to drive her to practices and friends' houses, or to keep her with them when things are bad with me. And my friends have come through, too. I'm friendly with most of the parents of her friends (it's a small town), and they're generally willing to have the playdates at their houses, or to do the driving both ways, if I ask them to. It took me some time to work up to asking, because I felt that I was imposing, but people have been so kind, and even offered to do more than I asked.

                        So, anyway, that was way too long, but the main point is, I think you should trust in what Donna says. They will turn out fine. I do think it's important to communicate with our kids about our illness, at whatever level is appropriate for their ages. I know my Susannah feels much more in control, less worried, when she knows what the situation is (bad pain day, adjusting to new meds period, whatever).

                        So I've put the Bad Mother Award away in the closet as I think we all should, and just keep doing our best. Just the fact that you are concerned about the effects on them, shows how much you care. They know you do. Love is the most important thing.
                        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                        Wishing you happiness and good health, and all the best out of life.

                        Peace, Carolyn
                        ___________________________________________________

                        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                        On the Beach with IC

                        Comment


                        • #13
                          omg YES i feel exactly the same way and it KILLS me. i feel like *I* got ripped off in life...and now my 6 month old will be ripped off my ME.

                          i'm sure my husband feels ripped off as well sometimes...
                          (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                          Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                          I'd like to be on House, MD as a medical mystery.

                          Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                          Connor & Mommy by the tree:


                          Connor with Santa...so happy!


                          I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                          Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                          I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

                          Comment


                          • #14
                            I have to say the same thing that Donna is saying, I have a wonderful, compassion, loving daughter, and none of my illness caused her to feel left out.

                            Then I started to worry about my grandchildren, especially when I can't go places on a bad day or something. But then I would just color, paint, puzzles, or do something I can do. One day my 5 year old granddaughter did see grandma in pain and trying to walk. She wrapped her arms around me and said, "Grandma I will help you." I think worry is natural for us to do but most of the time the children will be fine.

                            Sending hugs, Trishann

                            Comment


                            • #15
                              Thank you all for so much incouragement it really has made me look for the positive for example, My daughter won an award at school the other day (they go to a catholic school) called St Josephs award(Josephs was a very compassionate person with patients trust and love, after all his wife was the virgin Mary and he still took her as his wife and belived her word) My Aimee got this award I was so impressed. Yesterday my son came home from school and told me his friend and him had saved an injured birds life by taking it to the principle who took it to an animal shelter WOW:woohoo: So I'm not stuffing up all together hay!

                              Loving your children listening and spending time.

                              Comment

                              Working...
                              X