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My daughter is so great!

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  • My daughter is so great!

    This week my husband is away on business, so it's just Susannah and me here fending for ourselves (and the animals).

    Yesterday I asked her to feed the dogs before going to bed. About two hours later, she came upstairs from her room to my room, to tell me that Frisco (black and white dog) had had to be let out four times in the past hour bc. his tummy was upset. She confessed that she had given both dogs some of the chili that she'd had for dinner. She woke me right out of deep REM sleep, and I was heavily medicated and barely lucid.

    She told me that since it was her fault the dog was sick (I didn't tell her that, she figured it out), she was going to spend the night on the couch in the room where the dogs sleep, so she could let Frisco out as often as necessary. I said, "No, you can't, you have school tomorrow. I'll do it." Then I tried to sit up. Susannah pushed me back down and said, "No, listen. I know you're still adjusting to your new meds [elavil and klonopin], and I really don't think you should be trying to get up right now. I can manage. I'm twelve years old, I'm not a baby. If I'm tired in the morning I'll just have some chai or something to help get me going. I don't want you doing this."

    I tried to argue and tried to get up, but she pushed me back down, and I fell asleep in the middle of arguing with her. The dog had diarrhea, about every ten minutes until 2 am, and she stuck it out. Every single time, she put on shoes, took a flashlight, and went out with him, to make sure he was done before she brought him in and to make sure he didn't start barking out there in the middle of the night. She said she fell asleep around 2:30 am on the couch with both dogs. Then she got up at 6:30 and went to school.

    I am so amazed, so grateful for this child. Of course, I also feel guilty that she missed her night's sleep. But she was right, I couldn't have done it; I'm sure I would have fallen and either landed in the dog poop or hurt myself, or both (the back door leads onto a deck, so you have to go down stairs to reach the yard). We couldn't just leave the door open because of (a) bugs and (b) burglars -- there have been a couple of attempts recently in town.

    This evening she went to sleep early, and when I apologized again, she said, "Don't worry; I think I really learned something about being responsible. Frisco is my dog, and I made him sick, and so it was only right for me to deal with the consequences. And anyway, now I kind of know what it must have been like for you when I was little, if I was sick in the night."

    I'm so proud of her for her fortitude in sticking out the night, for her compassion in worrying about my well-being above her own, and for her insight about what she learned from the night. I just can't get over it. I feel like, about five minutes ago she was just a little kid, dependant and naive. Now suddenly I'm talking to this strong, wise, and highly empathetic young woman, and I can hardly believe this is my child. She is only in the sixth grade.

    I know she won't be this perfect all the time. I actually hope she regresses a bit, because I am not ready for her childhood to be over. And I'm not sure if she is, either. But in this one moment, I got to see the adult inside her, and she is something else.

    Blame it on IC.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC

  • #2
    awwww... how sweet of her. I would have done the same for my mom. ohh... dont feel guilty she was there to help you.. she knows what you're going through and she feels your pain. please don't overdue yourself I'm sure your daughter will help you in any way.
    Angela aka sleepyangel30


    • #3
      What a SUPER young lady!!!!!!! Thanks for sharing! I really love reading things like this You have done a great job, Mom!

      Hugs and Wishes for Pain FREE days!!,
      Kara ~reducing plastic waste one bag at a time~

      Facebook: Kara Kaiser
      Twitter: Love4Earth

      Me and my Guccigirl... she helps me through those painful hours!


      • #4


        • #5

          What a wonderful story and a great example of how children who have a parent that is sick learn great things and grow up to be great people. Susannah is wonderful and that is due to the great job you and your husband have done with her. She has gained so much as a person by learning to adjust to your good days and bad. I only hope my children when I decide to have them are as compassionate.

          I hope Frisco is feeling better now. It is interesting sometimes how foods affect an animal that likes to eat just about anything.

          Thank you for sharing your story.



          • #6
            Wow Carolyn, that really is amazing! It is obvious that girls mature faster than boys, lol. My stepson's are 15 and 17 and I don't know if they would have done that on their own w/o being told. You should be very proud of her.

            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus


            • #7
              Sounds like you're doing a top notch job of mothering! You have a right to be proud.

              Stay safe

              Elmiron Eye Disease Information Center -
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              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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              Diet list:

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              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Anyone who says something is foolproof hasn't met a determined fool


              • #8
                Sounds like a wonderful young girl.


                • #9
                  For Susannah... *Applause...Applause* What a kind and wonderful thing to do for her mother. You have the right to feel proud of her.

                  Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                  Where I can be found most days.

                  Link to the ICN Patient Handbook:

                  Link to the IC Diet:

                  IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                  • #10
                    How sweet! Your story about made me cry!

                    I remember when I was a teen and my mom had laser surgery, my younger brother and sister and I made sure that the house was clean and that mom was taken care of. She didnt tell us to do it, we just did it because it was the right thing to do.

                    Sounds like you have raised a wonderful young woman
                    Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

                    I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

                    Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

                    I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!


                    • #11
                      Thats was very sweet of her.. You have been blessed to have a child that has so much compassion and understanding ...

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

                      Link to Patient Handbook:

                      Diet Reference Sheet:

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                      • #12
                        Susannah you're a legend well done :woohoo: :woohoo:

                        You give me encouragement that my kids aren't going to be damaged because they have a sick mum.


                        • #13
                          way to go mom, you have raised one teriffic little girl.
                          'The will of God will never take you where the Grace of God will not protect you.'


                          • #14
                            She sounds so sweet and compassionate.
                            You are doing such a good job in raising her. I know you are so proud of her :woohoo: :woohoo: :woohoo:
                            Miss Bessie

                            Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                            Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                            Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life


                            • #15
                              Carolyn that is awesome. Very loving and caring person, sounds just like you.

                              Sending hugs, Trishann