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  • Question for the nurses

    Okay, I mentioned Griffin was sick yesterday. Fever, tired, cranky, stuffy. Well he got up this morning and had maybe half a dozen little red spots on his face. I asked my hubby what he thought, he has three kids from his first marriage. He said it looked like chicken pox to him. At first I thought that he couldn't have chicken pox because he got the vaccine for it.

    Then I go to webmd and it says that some people still get it even though they've had the vaccine but usually it's a lighter case. They also said one study showed that if a child got the vaccine before 15 months then their immunity could wear off after a year, he got the vaccine at 12 months.

    So my question to the nurses is have you seen this happen? Is it usually a mild case?? Hubby says that he doesn't think that he had it as a child or had such a mild case that he could get it again, so now I might have to worry about him getting it. As of right now they are only on his face, I couldn't find them anywhere else on his body right now but I have hubby on red spot checking duty for the day.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  • #2
    Christine,
    I am not a nurse but know quiet a bit about kids and diseases. I worked in a daycare for 10 years..Does the bumps look like blisters? Chicken pox are small blisters..If not it could also be fifth disease but if its that then it would be like a rash and can appear on the face and back..And with both they will run fever..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      He's running a fever, or he was last night, it was 99.6 when I took it this morning but it tends to get higher as the day goes on. They honestly almost look like little pimples. They don't look like blisters but I thought that the blisters took some time to form. I thought that the pimple looking rash was what showed up first. I can't imagine how it would be fifth's because I think that only young children get that and he hasn't been around any young chilrden lately just his much older brothers and sister.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #4
        Hi there

        I have just spoken to my mum as she is a nurse and she said it does sound VERY much like chicken pox and even though he has had the vaccine you can still get it.
        Children tend to get milder cases of chicken pox anyway and should only last up to ten days. He will be contagious until the spots dry up and scab over.

        Do they look like little blisters? It may also be german measles which is common amongst children but slightly different spots.

        good luck
        Started with symptoms 2004 after a severe infection.
        Was diagnosed with IC Feb 2006 after cystoscopy.
        Diagnosed with vulvodyina and PN in july 2006.
        Dignosed with ME and IBS Oct 2006.
        Currently taking Amytriptaline 50mg, regular pain killers and birth control!
        Also doing IC diet and regular use of heat packs.
        Still struggling with IC and controling my symptoms so looking for some help

        also recently had abnormal pap, CIN III and just had LEEP done 2007

        Comment


        • #5
          Christine,
          Being that its questionable about what he has.. I would take him to the dr esp if hes runnibg fever, thats a sure sign something is wrong.. Keep my informed please.. I hope he starts feeling better soon...(((((((hugs))))))))) to both of you..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            I agree that you need to call your doctor. If he has chicken pox, they can prescribe something so he won't itch with them.

            I'm not a nurse --- just a "seasoned" mother & grandmother.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Hi Christine,
              Sorry Griffin is not feeling so well. It does sound like the chicken pox, but I think you should have his doctor see him just to make sure. My son also had the shot when he was little, but I believe he did get a very mild case anyhow. I remember his doctor at the time telling me that the shot will make it less likely for him to get them, but that he could still get them, just a mild case likely. I hope he starts feeling better soon.
              Jen

              Comment


              • #8
                Note to mum43 from ICNDonna

                Your post was duplicated so I deleted one; apparently at the same time someone else was deleting the other --- so here is a copy:

                Today, 06:40 AM
                mum43
                IC Friend




                Join Date: Sep 2006
                Location: united kingdom
                Posts: 107 Ahh Poor baby!!
                Bless him he must be so itchy.
                Over here in the UK , we use Calamine lotion for the itchy spots.
                We use it for Chicken pox, Measle's and burn's etc.
                You dab it on with cotton wool balls and leave it to dry.It's pink and dry's white.
                It does' help.If he scratche's too much it will leave scar's.
                Not sure if you can buy it over in the states, but over here it is very cheap to buy.
                You
                I hope Griffin is better soon.
                Give him a hug for me xxx
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  Thanks everybody for the advice and the comfort. Hubby just called and the spots on his face have multipled and they are turning into blisters and he is getting lots of bumps on his chest that aren't red yet but they are everywhere. Seems it is chicken pox. He said he isn't running much of a fever right now and seems okay. I called the dr's office and got him in with the NP at 11:30am. We want to get him in and be seen just to verify that it's chicken pox. I'll be leaving work at 11:00 to have time to get home and grab hubby and Griff and get to the dr's office. I think this may be the longest hour of my life. I know he doesn't feel bad yet but I still want to go home NOW! lol, I'll be sure to post pictures late of my chicken pox covered baby.
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

                  Comment


                  • #10
                    Poor Baby...
                    I had chicken poxs at the age of 15 the doctor said it was the worse case he had ever seen and he had been a doctor for 20 year.. I was even put in the hospital because I couldnt eat.. They were all in my throat...What the doctor said when your younger you do not get them as bad..So I guess its a good thing in a way that he is getting them now and not later in life. But they still are annoying no matter what age they are.. I do know this Do not give him
                    aspirin.. Not for sur why but I have always heard not to.. Im sure a nurse on here can tell you why.. But anyways please let us know how hes doing..

                    Ronda
                    Hugs
                    Ronda

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                    Link to Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Diet Reference Sheet:
                    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      I hope he doesn't but it sounds like he does! Hope he and Mom gets better!! (hey, Mom worries-we know this from experiences). My eldest had Chicken pox 3 (yes 3 times--the first 2 times were light cases and the 3rd time was a big case); my youngest had it the same time (or about a month before my eldest had it the last time) and Mom who never ever had them got them at age 32!! Believe me, you don't want them as an adult!! I was in bed for 7 days - my poor husband had to take off work and take care of me and watch the kids - make sure they were up and ready for school, etc.) It was what you would call a "family affair".

                      Comment


                      • #12
                        My son got it at 15 months, then my 3 yr old got them 2 weeks later, so almost a month with staying inside YUCK! They didn't have immunizations then, so I wouldn't know about that. I took my son to the Doctor, I didn't even think of chicken pox at 15 months old. I thought it was a fever rash. It started on his stomache, and then spread all over... poor kid. At least they got it over with at young ages. I hope Griffin feels better soon.
                        ~Diane
                        dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

                        Medical History:
                        c-sections: 1988, 1991, 1997
                        Viral Arthritis 1998 (Like RA, but went away!! )
                        Pterygium & Dry Eyes since 2005
                        Hysterectomy (Fibroids) 2006

                        ~~~~~~~~~~~~~~~~~~~~~~~~~

                        Me & Jerry ~ Sammy & Ryan
                        ~~~~~~~~~~~~~~~~~~~~~~~~~

                        Comment


                        • #13
                          Alright, well I took him to the NP and as usually hubby overstated how bad Griffin was. The red spots on his face are a little bit bigger but on his chest is what the NP called a sandpaper rash. She doesn't think that he has chicken pox just thinks it's a virus but she said to keep an eye on it, it could still be chicken pox, if it is he'll get more and more of the bumps. She said that the red bumps that he has now look more pimple like and chicken pox are more blister like. Guess we'll just watch him and see. I'm sitting home feeling guilty because I really should go back to work but my bladder started bothering me probably from the stress and I feel completely exhausted all of the sudden.
                          Christine



                          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                          I have tried every oral medication as well as rescue instills and DMSO.

                          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                          Also proud mom to the best Bullmastiff on earth, Claus

                          Comment


                          • #14
                            Hugs, glad you found out what it was.

                            Comment


                            • #15
                              I think that we moms suffer just as much as our kids do, when they're sick, then we have additional stress because we feel that we should be able to do something to make it better, but we can't do anything. I'm not surprised at all that you're flaring! I hope that Griffin and you both feel better soon.
                              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                              Wishing you happiness and good health, and all the best out of life.

                              Peace, Carolyn
                              ___________________________________________________

                              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                              On the Beach with IC

                              Comment

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