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Hello...and birth announcement

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  • Hello...and birth announcement

    Sorry to be away for so long but it's been rather busy the past few months!

    My daughter Ahleia Rose was born on April 9 at 8:09 p.m. via c-section. She weighed 7 lbs. 8 oz. and was 20 in. long.

    I went through quite an ordeal with her labor, delivery and post-op. I was in labor for 36 hours and never progressed past 7 cm. Ahleia's head did not descend enough to move things along, and my waters had been leaking/broken for over 24 hours, so the decision was made to do the c-section. That was very disappointing for me, since I had planned on a natural birth, accompanied by my husband and doula (who were both amazing the entire time! I could not have kept going without them!) I actually went 32 of the 36 hours with no pain meds. However, towards the end, I requested some Phenergan to take the edge off what I later found out was back labor!

    It turned out the c-section was the right and only choice because not only was Ahleia sunny side up, she also had the cord wrapped around her neck, and my sacrum protruded too far into my pelvis for her head to descend properly. But the biggest complication was that the placenta had adhered to my uterus and gotten infected. I suffered a postpartum hemmorhage and ended up needing 5 pints of blood transfused over the next couple of days. My vital signs were up and down until my condition stabilized. I didn't find out until I was home that there was a crash cart parked outside my room for several days! Pretty scary! Frankly, I don't remember all of what happened when I was in the hospital. It was very traumatic and the worst part in retrospect is that I really didn't get to bond properly with my daughter until sometime after I went home. I remember some things about her birth, like the doctors holding her up over the drape and my husband bringing her over to me so that I could see her, but I don't even remember holding her for the first time in my room. I didn't even get out of bed for about 4 days and was too weak to breastfeed properly most of the time (although, amazingly, I was able to do it enough to start my milk supply) so we had to supplement with formula until I got home.

    All in all, I was in the hospital about a week. It has taken a long time for my uterus to shrink, even with regular breastfeeding. My OB ended up having to give me Methergine for a few days to help the process along. I'm doing a lot better now, but I still have some lingering soreness in my uterus (I feel it more later in the day if I've been active and after breastfeeding) and of course at the incision site. The area around the incision site and along my left hip are actually numb from having superficial nerves cut during the surgery. They seem to be regenerating some by the incision site though.

    Oddly enough, my bladder is doing better than I had ever expected, although my pelvic floor still spasms from time to time. It tends to affect my rectum and bowel movements, though. I made sure they gave me an indwelling pediatric Foley when I was in the hospital, so I didn't have any irritation afterward although I did get a mild UTI once I was home because I was experiencing a lot of retention and distention. Part of that was due to all the IV fluids I was pushing out and also because the whole pelvic floor area was still kind of numb. I couldn't tell when I had to pee - I just felt kind of full and figured I probably needed to go. Then I'd go and it was like someone had turned on the faucet! It was really weird, especially since I've always dealt with OAB and IC symptoms, and when you have to go, you KNOW it!

    Anyway, my daughter is beautiful and healthy and although her birth was a very scary experience, it was worth everything I went through to have her with me now.

    I hope all is well with you!!

    "You must be the change you want to see in the world." - Mahatma Gandhi

    "The most important medicine is tender love and care" - Mother Teresa

    Proud mother of Ahleia, born on April 9, 2007

    Diagnosed with:
    IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

    Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

    Health treatments/practices:
    Kripalu yoga, Chiropractic, Massage therapy and Reiki

  • #2
    Glad your home and doing well. I had the same thing with my first one and didn't have the strength to bond with her until I came home. I love the name.


    • #3
      I am so sorry you went through such a hard time. Scary is a light word compare to what you just went through. It is such wonderful news that you have a healthy baby daughter.

      Just sending hugs, Trishann


      • #4
        Thank God your ok! That is so scarry! I got goose bumps when I read the part about the crash cart! I'm truly thrilled you and your beautiful little girl are ok. Its so noce to have you back!

        IC diagnosed officially via cysto/urodynamics 1/26/07

        Grade II Endometriosis diagnosed via lap 12/11/07

        "Fall down seven times, Stand up eight."

        "Life is a tragedy for those who feel and a comedy for those who think."

        Current Treatments:
        Interstim Since 5/25/07!
        Birth Control


        • #5

          Ahleia Rose...I am so glad you are here.

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.

          Link to the ICN Patient Handbook:

          Link to the IC Diet:

          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


          • #6
            Congrats....I am so happy everything turned out ok...

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

            Link to Patient Handbook:

            Diet Reference Sheet:

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


            • #7
              congrats to you. I am sorry that you had been thru so much. I hope you contiue to feel better, and stay that way.
              can't wait to see pictures
              'The will of God will never take you where the Grace of God will not protect you.'


              • #8
                Congrats and glad that you and babe are ok. I love the name. I wish nothing but awesome memories from here on out.

                (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                :angel: IC Angel Volunteer Coordinator :angel:
                :) Contact me via PM or e-mail if you would like to help
                I have learned all about life in 3 words: It goes on! :D--Robert Frost
                PCOS 7/85
                RSD 7/94 :headbang:
                Endometriosis 9/98 :toilet:
                Antiphospholipid antibody syndrome 9/99
                Kidney stones--too many to count
                Factor V Leiden mutation 10/02
                IC 6/03 :evilsmile
                Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                "Spirit is an invisible force made visible in all of life"--Maya Angelou
                "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]


                • #9
                  So sorry to hear you had to go through such a rough labor and delivery. Glad to hear that you're home and doing well now. We would all love to see pictures of the beautiful little girl when you're feeling up to it.

                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus


                  • #10
                    I'm also happy you are doing better now. What an ordeal! But the end result was worth it --- and what a beautiful name you chose.

                    Sending gentle hugs,
                    Stay safe

                    Elmiron Eye Disease Information Center -
                    Elmiron Eye Disease Fact Sheet (Downloadable) -

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help:


                    Diet list:

                    AUA Guidelines:

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Anyone who says something is foolproof hasn't met a determined fool


                    • #11
                      Congrats to you! The name you chose for you daughter is beutiful one! Sorry you had to go though all that, but it was all worth it and you have so many days and years to bond with your little one! Have lot's of fun!



                      • #12
                        That's wonderful that everything turned out ok in the end! I want to see pictures show off your beautiful baby girl!
                        current meds:
                        cytotec 200mcg twice daily

                        ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

                        dx: hashimoto's thyroiditis 1998
                        dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
                        dx: endometriosis 2003
                        dx: innapropriate sinus tacchicardia 2005

                        meds tried but failed:
                        elavil (6months)- severe tachycardia
                        elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
                        a bunch of others

                        Me and my best friend's baby (also my Godson!)


                        • #13
                          So glad you are OK and so happy your little girl is finally here!
                          Congrats! Can't wait to see her pictures! I bet she is beautiful!
                          IC; PFD; possible Fibromyalgia; IBS;

                          Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                          I've Tried:
                          three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                          Currently using:
                          Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                          Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                          I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!


                          • #14
                            Congrats on the little bundle of joy. :woohoo: I was wondering about you and when you would have delivered her. That sure was a scary thing to go through but glad it all turned out well in the end.


                            • #15
                              Congratulations and best wishes on the safe arrival of your beautiful baby girl.