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  • Yet another ADHD med...

    As many of you know, my oldest, Brianna, has ADHD. We started her on Ritalin, back in December and that was a disaster. She was way too angry and had no improvements in focusing. So then we went to time released Ritalin and that worked great. Her "grades" got better and she went from needing reading help from the special ed teacher to a 2-3 grade reading level, and she is just finishing First grade. The Doctor upped her dose though, b/c the clarity seemed so random; some days she was focusing well in the morning, other days in the afternoon, there wasn't much rhyme or reason to it. On the higher dose she got angry and borderline violent again. This breaks my heart because she is such a loving, sweet little girl.In fact , she just donated her hair a few months ago and it was all her own idea Any ways, today she actually kicked a child because he pushed her and she thought it was on purpose. I am still so shocked. This isn't like her at all.
    So now the Doc has her on Adderall XR. She starts it tomorrow. I work with many kids with ADHD and this seems to be one of the best meds out there.
    Please keep her in your thoughts these next few weeks. Changing meds is rough and she still doesn't quite understand why she keeps seeing the Doctor and taking meds when she doesn't "feel sick". I have found a great support board for parents of kids with ADHD, but just wanted to get some support here too. She and I have both been through so much this past year, me with my IC diagnosis, and her with the ADHD diagnosis (though we suspected it for years) And we have both been medication guinea pigs lately. It is rough some days to keep track of both of our symptoms and reactions with both of us trying new meds constantly, though writing things down does help. And I am praobably going to be starting a new one this week too. UHG!
    Thanks for letting me vent! I would take this away from her if I could and that is probably what is the hardest thing for a parent with a child with disabilities to deal with, the fact that we can't make it go away! I also worry so much that things will get worse, given all the mental illness on my side of the family and her biological father's family as well. But we just have to take it one day at a time!
    Thanks again!
    Rachel
    DX's:
    IC; PFD; possible Fibromyalgia; IBS;

    Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

    I've Tried:
    three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
    Currently using:
    Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
    Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
    I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!


  • #2
    I just wanted to send hugs your way
    Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

    I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

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    • #3
      That this is the wonder med to help her along. Keep us posted. It is so hard when they are little and struggling with meds like we do.

      Comment


      • #4
        to both of you.

        Donna
        Stay safe


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        • #5
          Rachel,
          My daughter was dx'ed ADHD, as you know she is 19. She never had any violent issues. However like your daughter she couldn't "pay attention" nor could she read. I took her to be re-evaluated at 7 and found out she had an extraordinary high IQ. The doctor told her a 3 paragraph story, waited a couple of weeks and asked her about it and she told it back to him nearly word for word. any who what I am getting at here is she is capable of doing the work, but , it just bores her, and it is easier for her to do things orally rather then written. She knows the answer, but dose not know how to word it and put it on the paper. I declined putting her on meds. Once she hit JR High, she excelled, and continued to excel thru High School. Maybe this summer break you can help her out to catch up. I did with Ashley about 30 mins a day.
          The hardest part of all of this, is they think they are dumb, and they are not, they are extremely smart, and it bores them.
          good luck
          Last edited by tigger_gal; 05-30-2007, 02:31 AM.
          'The will of God will never take you where the Grace of God will not protect you.'

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          • #6
            I'm with you all the way. My son was dx with ADHD when he was in 5th grade, he is now 19 years old. He takes Adderall-XR. He never had any violent epsiodes just couldn't pay attention and focus. He is on a very low dose (20 mg aday again mainly for focusing) -- But I also think it had a lot to do with the schools that he went to. His grades were d's and f's till we moved out of the Austin schools-- when we moved to the school district where we are now (Georgetown) his grades went to B's (he graduated last year without any problems.
            Again good luck with your child. Hugs to both of you.

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            • #7
              Thanks

              I appreciate all the support and sharing. With Bri she didn't get violent until being on ADHD meds, so that is why we are trying a different one. We were warned by the diagnosing developmental specialist that beacuse of her bi-polar tendencies (she doesn't have enough symptoms for a diagnosis, but certainly enough to be concerned along with family history) traditional ADHD meds could make her angry, which is exactly what happened. We are trying to make her responsibale for her actions though. She was punished at school (had her card turned) and at home (doesn't get to go with her sister on a boat ride with Grandparents this weekend) because I want to make sure she realizes kicking or hurting other kids in any way is not appropriate. Even if it is the meds, I do not want her to grow up blaming people/things/ situations/ etc. for her mistakes. I think that is key, even when dealing with mental illness and ADHD.
              I will let you know how she did in school today.
              I am so thankful she goes to a great public school. Her one to one aid is actually a certified teacher pursuing her Master's degree, she has done many papers on things pertaining to Brianna to help her more. She gets lots of support and so far I haven't had to fight the special ed commitee to get her any of her supports like I did at her last school where she started Kindergarten. Plus these teachers rarely get the princepal involved, they really know how to deal with behavioral issues without having to call me everytime she misbehaves. That has been a relief. They communicate VERY well with us, which is key. She is so smart, and everyone there is aware of it, just another reason why we all try to hold her accountable. She can be very manipulative when she wants to get out of doing work that is hard for her, but she does get bored easily too. It has been rough for all of us to see her score mildly MR on testing when she is reading at a second grade level, and uses 6th grade vocabulary when she talks. (this is what the teachers are telling us)
              Well I have to get back to my day now!
              Thanks again for your posts!
              Rachel
              DX's:
              IC; PFD; possible Fibromyalgia; IBS;

              Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

              I've Tried:
              three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
              Currently using:
              Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
              Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
              I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

              Comment


              • #8
                I wasn't diagnosed with ADHD until I was in my first year of college. I left high school after 10th grade so that I could start college 2 years early. People with ADHD are not stupid, we just learn differently. I have tried Concerta, Adderall, Adderall XR, Desoxyn, and combinations of different ADHD meds. If your daughter doesn't have much success with Adderall XR, try Desoxyn. The downside to Desoxyn is it has to be taken at least twice a day. I take Desoxyn 3 times a day and Adderall XR once in the morning.
                The school your daughter is in makes a difference as well. I was in private schools until I entered college, and now I'm transferring to a private college because I need smaller class sizes. Your daughter needs a lot of one-on-one attention so that she will be able to learn without becoming frustrated. If she can't get the attention she needs at school, try working with her at home.

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                • #9
                  Thanks Catlover for sharing your story. I work with kids with emotional and behavioral disorders and am amazed at just how intellegent the kids with ADHD really are, my daughter included! Yep, she definately needs on on one help next year in second grade. And so far the school hasn't fought us on anything the teacher recommends. I took several disability classes at college mainly to know how to help my daughter and the kids at work more. One class really taught me NYS special ed law, so thankfully I know our rights. Plus, my co-worker who is a family advocate has offered to help me if anything is denied. She knows how to start the process of a hearing and which advocacy agency/lawyers to call. Thanks for letting me know about Desoxyn. That was one I have never heard of before. It is good to know that even after trying several things she will still have options! It is nice to hear from an adult with ADHD too. My husband's cousin's girlfirend (who I am good friends with) was diagnosed during college. It was amazing how well she did after starting the right meds and taking smaller or online classes. But she is the only one I know personally, so I really appreciate you response!
                  Rachel
                  DX's:
                  IC; PFD; possible Fibromyalgia; IBS;

                  Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                  I've Tried:
                  three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                  Currently using:
                  Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                  Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                  I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                  Comment


                  • #10
                    My daughter once took Ritalin but now on Strattera

                    My 9 yr old daughter has ADHD and once took Ritalin for it, but they took her off it because she was not gaining anyweight taking it and she is a fairly skinny child...She is now on Strattera and she is doing much better...

                    Jennifer
                    Interstitial Cystitis(Interstim Therapy)
                    IBS
                    Fibromyalgia
                    Pseudotumor cerebri
                    Type 2 Diabetes

                    Comment


                    • #11
                      Yep,Mine hasn't gained either, but is a little heavier, not really considered overweight due to her height, so they are not worried yet. But Strattera is an option.our pediatrician said you have to try these drugs they way we are with the stimulants first or the insurance we have will not cover it. UHG!
                      She had an Ok day yesterday and a very good day today, but it is too soon to tell if this is the right dosage or even the right drug.
                      Thanks for sharing!
                      Rachel
                      DX's:
                      IC; PFD; possible Fibromyalgia; IBS;

                      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                      I've Tried:
                      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                      Currently using:
                      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                      Comment


                      • #12
                        Brianna is lucky to have a mom who is able and willing to give her so much support, love, and assistance with her difficulties. With you on her side, I feel sure that she will be okay in the long run.
                        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                        Wishing you happiness and good health, and all the best out of life.

                        Peace, Carolyn
                        ___________________________________________________

                        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                        On the Beach with IC

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                        • #13
                          Thanks Carolyn!
                          My best freind (who lives in Florida now) was just telling me that over the phone yesterday. I felt like a horrible mom yesterday, I spent all afternoon and most of the evening on the couch. The pain was just so bad last night, even after I rested. But I know I can be a good mom even when I feel sick. We had lots of reading time and Bri needs all the practice she can get!
                          Think of me on June 11th. That's when her meeting is and I am not sure yet what the plans are for her recommendations next year. She really needs to be in a blended class, with special ed and regular ed students. She also needs a one to one aid. I am hoping it will all be approved.
                          Rachel
                          DX's:
                          IC; PFD; possible Fibromyalgia; IBS;

                          Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                          I've Tried:
                          three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                          Currently using:
                          Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                          Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                          I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                          Comment


                          • #14
                            I will think of you... and I hope you'll let us know how it goes! You know you and Bri have your "second family" here, all rooting for you.
                            Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                            Wishing you happiness and good health, and all the best out of life.

                            Peace, Carolyn
                            ___________________________________________________

                            Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                            On the Beach with IC

                            Comment


                            • #15
                              Thanks Carolyn! That really means alot to me.
                              Rachel
                              DX's:
                              IC; PFD; possible Fibromyalgia; IBS;

                              Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                              I've Tried:
                              three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                              Currently using:
                              Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                              Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                              I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                              Comment

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