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  • #16
    wow thats not good that her meds did that. I really hope they find something that helps her. keep us posted (((((((hugs))))))
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #17
      Update...

      Well poor Brianna didn't respond well to the Adderall. She got very angry and overly emotional again. Tuesday was one of the worst days she had ever had. She threw herself on the floor at school when she couldn't get her own way and threw a full fledged temper tantrum. She also pretended to choke in the cafateria and was screaming at kids when she thought they were picking on her, again out fo the ordinary for her. We haven't heard of her doing this or seen her do this in several years and it was really upsetting to us and the teachers. On Saturday I didn't give her meds to see how she did. She was happy and didn't have any anger that day, but literally could not stop moving all day, tapping her foot, twitching, shaking, hopping up and down, talking non stop about things that made no sense, etc.
      So now the doctor has her on Concerta. We didn't see a big difference today because she had a VERY busy day at school. It was their school picnic and parade and she needs routine, so her hyperactivity was probably due to that. But she didn't get angry or make fists, so that is a good thing. We'll see how her last week of school goes.
      Thanks for thinking about her!
      Rachel
      DX's:
      IC; PFD; possible Fibromyalgia; IBS;

      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

      I've Tried:
      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
      Currently using:
      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

      Comment


      • #18
        Oh, Rachel, I hope you can get her settled in with something that works, over the summer. I realize how hard it must be on everyone in the family, and on Bri herself. I read your wonderful news that your IEP conference went well, so with any luck, she'll have a good school year next year.

        You amaze me. You are such a tireless advocate for her, and you give her such unconditional love -- at such a young age. When I was 25, I was barely ready to think about kids! You are a very strong woman, and your girls are fortunate to have you for their mother.
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn
        ___________________________________________________

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


        On the Beach with IC

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        • #19
          Originally posted by Berkshire Road View Post
          You amaze me. You are such a tireless advocate for her, and you give her such unconditional love -- at such a young age. When I was 25, I was barely ready to think about kids! You are a very strong woman, and your girls are fortunate to have you for their mother.
          Oh Carolyn you make me blush! I am trying so hard to get her help, it is so complicated. I was a psych major and work with lots of kids with ADHD, but it is so different when it is your own child and I just don't know what to do if this medicine doesn't help. I will probably have to take her to a specialist and unfortunately the one who diagnosed her (who I like and respect) isn't covered by our insurance! The story of our lives lately!
          I am not the perfect Mom, but I have been trying hard to do all I can to help her and educate myself since we started seeing problems back when she was 2. It has been a long rough road, but she has made great strides since then. I think I need to look at these medicine trials the same as I did when she first started getting special services and special ed preschool. We had to do alot of trial and error before things settled down and she made progress and it is going to be the same with meds. It is just so frustrating as a Mom to see your kid go through this. She sticks out so much when around other kids her age, but she doesn't seem to realize it and that is a good thing. On the other hand, she is a smart, sweet, compassionate child who is wise beyond her years! And I am very proud of her!
          Rachel
          DX's:
          IC; PFD; possible Fibromyalgia; IBS;

          Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

          I've Tried:
          three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
          Currently using:
          Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
          Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
          I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

          Comment


          • #20
            You should be very proud of her -- and about that "Perfect Mother" thing: There isn't one. We all just do the best we can. Your best is pretty darn good, that's all I'm saying!
            Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
            Wishing you happiness and good health, and all the best out of life.

            Peace, Carolyn
            ___________________________________________________

            Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


            On the Beach with IC

            Comment


            • #21
              Update...

              Well she seems to be doing OK on Concerta. She is on the lowest dose b/c our pediatrician is out of town until August. She is still quite distracted, but I can see the difference if she doesn't take it. And she is not so angry and nasty like on the other meds. She is very emotional though; I haven't been feeling well (darn IC!) which takes a toll on her and she misses her aid from school alot, to the point where she cries about it and is very sad. She probably won't have the same aid again and that is really upsetting to her. We are hopefully going to get her in to see a child Psychiatrist before school starts and in the mean time are just trying to give her lots of love and help her go through this seperation from someone she got very attached to.
              Thanks for the thoughts and prayers!
              Rachel
              DX's:
              IC; PFD; possible Fibromyalgia; IBS;

              Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

              I've Tried:
              three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
              Currently using:
              Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
              Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
              I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

              Comment

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